Tag: mom

Missed Opportunities

~ Kai Raines ~ Leave a comment

I was talking to my sister the other day, and I don’t remember why, but she asked me if I remembered a book we had as kids that was about a girl who wanted to be a ballet dancer. She wasn’t able to be a dancer because she had some sort of health problem. My sister didn’t remember the health problem…I didn’t remember the book. That is until she described a page where the girl was kneeling on the coach and looking out the window as her friends rode their bikes. But she couldn’t join them. I remember that one image. I remember that she was sad.

My sister wondered why my mom would have picked that book for us. The 60’s was not exactly the age of disability awareness and inclusion. I don’t think she was a champion of disability rights. Or that she was particularly sensitive to the needs of the disabled. She used to refer to my dad as a “cripple” …sooo…. However, my mom had a heart problem from complications of rheumatic fever as a child. She had a damaged valve and because of that she was limited on her physical activity as a child.

So, I wonder, could she have given us the book as a window into her life as a child? I don’t have any idea…and I never will. If she was sharing herself with us, she needed to provide more information. I’m guessing for my sister and I it was an interesting book, and we had varying degrees of sadness for the little girl. My sister would have been the one to remember the ending, but she doesn’t. It may remain a mystery…unless I track down the book. Look out google.

My mom loved sports. She liked football and college basketball, but she LOVED baseball. She loved the St. Louis Cardinals. We lived in Chicago when I was young, and I remember going to Cardinals v Cubs double headers as a kid. My mom was an encyclopedia of baseball facts. She remembered games, players, coaches, managers, owners, playoffs, trades, botched calls, and specific plays. She was a wealth of knowledge. I remember Ozzie Smith because he was my favorite Cardinal. And hot dogs were the best at a baseball game…kind of grosses me out now but I was young. For my mom’s 90th birthday we took her to a Cardinals game against the Rays, here in Florida, and she had a hot dog…mustard, relish, and onion. She was happy.

My mom would have loved to play sports, but she couldn’t because of her heart. When she was young there were not many options for girls. Schools didn’t have competitive teams. She might have been happy to play baseball on the playground with the boys, but she couldn’t. She must have been so frustrated. I also love sports. My opportunities to play were nothing like today but I played basketball, softball, and swam competitively. I can’t imagine what I would have done without those sports. I did play football with the boys in the backyard, and I had a basketball hoop that I was at all the time. I wanted to be Oscar Robertson. There were no women players for me to look up to at the time. I would have given anything to play in the WNBA.

Maybe my mom identified with that little girl in the book. Always being the one on the inside looking out. Wanting so much but never having the chance. Maybe that’s why she bought it for us…because she was that girl.

When I graduated from law school my mom told me she always wanted to be a lawyer. What?! I never knew that. I don’t remember her ever talking about a career she wanted. I figured she wanted to be a mom…and to devote herself to her amazing daughters. Right?! She told me she always wanted kids. My dad said if it wasn’t for him, they would not have had any children. I don’t know what was true, and I never will.

I worry that my mom felt like her life was filled with missed opportunities. Or that it was filled with second choices…or third choices. I guess I don’t need to worry now but it’s sad. It’s sad to think of all the frustration she must have felt. It’s sad to be one of the daughters who may not have been her first choice. And it’s sad she didn’t fight for herself. I know opportunities were not the same but there were schooling options for her, especially as we got older. She had choices. They may have been limited but she had them. I wonder why she didn’t advocate for herself. Maybe she did and I just don’t know. She was pretty vocal about what she felt she deserved and didn’t get. Or in what ways other people didn’t give her what she wanted, so I feel like I would have heard.

I wonder what it would be like to feel like your life was a missed opportunity because there was so much you wanted but it was all just out of reach…and you believed there was nothing you could do about it. I don’t really know. I have limitations in my life due to disability and chronic pain, but I don’t feel like I’ve missed out on life. I’ve been married (more than once), had children, gone to school, earned advanced degrees, experienced multiple careers, and met many wonderful people. There are things I cannot do but those are not the things that define my life. My life is full of experiences and opportunities and lots of people I really love. There may be things I would have done differently, but I consider my life well lived…well living…I’m not dead yet.

I’m sad for my mom today. Sad to think she didn’t have the chance to reach her full potential. Or to become fully who she was meant to be. And sad because she missed the chance to feel proud of herself. Proud that she had done something that really meant a lot to her, because being a wife and mom were not those things. I think in the end those missed opportunities weighed on her…on her self-esteem.

All that makes me eager to follow my dreams, even when they seem like a fairy tale. To take chances and try new things. To bring awareness to all the areas of my life. To live intentionally. To make my choices where I have them and not be content to let life happen to me. Seize the day and all that shit. And to love freely, fully, generously, and always. Because in the end all that matters is how we love people. The lovers, the dreamers, and me.

When I’m 64

~ Kai Raines ~ Leave a comment

So, I had a weird thing happen this week. First, it’s my birthday week. I currently have a line from a Beatles song in my head, “Will she still need me, will she still feed me when I’m 64.” And I’m about to find out…although she doesn’t usually feed me because she hates to cook. Anyway, my wife had to go back to Colorado for work. So, I am here in Florida, and she is far away in Colorado.

In case you want to feel sorry for me, don’t. I’m not here alone. My stepson, Justin, is here with me. He just moved here about 10 days ago…and of course we have the Bulldog sisters too. That’s our dog, Abby, and her sister, Presley. Presley is Justin’s dog. They are sisters but from different litters. They are so much alike it’s crazy. They are both so fucking stubborn. And they even sleep the same. It reminds me of the theme song of The Patty Duke Show…”they walk alike, they talk alike, what a crazy pair….” Yep, I’m 64 alright…and that show was in black and white. Anyway….

A few days ago, I noticed a package sitting on the table by our front door. It seemed like it just appeared there. I asked Justin about it, and he told me he brought it in the night before. I hadn’t noticed it until the morning. I thought it was strange that the package was addressed to my dad. My dad died almost a year ago…so he didn’t order it.

Being quite brave, I decided to open the package…the next day. Inside the package was a book called Walking the Himalayas. That was weird. I had wanted to read that book for a couple years. It was in my Amazon cart. There was no note in the box and no return address. It was really strange.

I puzzled over the package for a bit and then I came to the only reasonable conclusion…my dearly departed dad sent it to me. That had to be it! This makes sense for so many reasons…my dad died so no one is sending him gifts anymore. Also, there wasn’t a note with the book. And no one would send my dad a book because he couldn’t read anymore because of his macular degeneration. And finally, it’s a book I wanted and it’s my birthday. It was definitely from my dad. I told Justin all of that and he appropriately responded with, “Whoa.” Ya whoa!

I was pretty excited to share this news with my wife when we talked that night. I told her the story and all my well thought out reasons why the book was from my dad. She did not say whoa…she said something to the effect of, “oh, crap.” Not her exact words but the emotion was there. She then told me that my sister had texted her and asked what I’d like for my birthday. Gayle told her to look at my list on Amazon…I know you’re following me here. Then my sister told her she was sending a book, Walking the Himalayas, and it would be addressed to our dad but that it was for me…and I should not open it until my birthday.

Well, my sister thought the story was funny and she jokingly asked me to thank Gayle for her. When I shared that with Gayle, we both had a good laugh. I’m grateful for the gift from my sister…even though I opened it before my birthday. I’m sure my dad would have wanted me to.

So happy birthday to me and go Rays! I’m off to a baseball game today where I can be my geeky self and keep my scorecard. I appreciate all the love for my birthday…and it turns out she will still need me when I’m 64…I can feed myself. Remember that in the end all that matters is how we love people. So, let’s love enthusiastically.

Did I Mention My Parents Are Dead?

~ Kai Raines ~ Leave a comment

I realized today that both of my parents are dead. Dead?! WTF!? I know now why my kids never want to talk about my death, someday far away (I hope)…parents don’t fucking die! My kids assure me that they’ll take care of me and braid my hair. I ask them how long I will have been in a vegetative state for them to be able to braid my hair? My hair is maybe an inch long. It’s hard for them to imagine a world without me in it…it’s hard for me to imagine too.

I picked up my mother’s ashes today and suddenly all of this is very real…in a new way. When she died, I was in Colorado visiting my kids and grandkids and our new great grandson. So maybe things didn’t seem so real. My parents were never in Colorado, well not since 2009, so it was easy to think they were fine in Florida…maybe not my dad because he’s been gone a while but definitely my mom. As we were driving home it started to feel very real. I could feel her absence as I got closer to Florida. It’s weird to feel the absence of something, instead of the presence.

My mom had been asking to go to Bob Evans for breakfast and I never had the chance to take her…she got way too weak too fast. We ate there many times with my parents and had a lot of fun drinking mimosas and telling stories about our lives. I learned a lot about my parents there. The food is not my favorite, although if you like grease and fat pull up a chair. It wasn’t our favorite restaurant, but both of my parents really loved it.

Today Bob Evans wasn’t fun. It was sad. Sad because the reality of them being gone smacked me right in the head…I gotta start wearing a helmet. I can’t go visit my mom anymore and there are no more phone calls. We also picked up her belongings from her assisted living facility…the apartment, as she referred to it. One day recently, she asked me if I thought we needed that big of apartment. It made me smile. I didn’t really want to pick up her things, but it had to be done. My wife went with me and that helped. My sister and brother-in-law are coming this week too…I’m really glad.

I remember a cousin of mine telling me not to visit my mom everyday in the nursing home because then I would be lost when she was gone. She gave this advice after losing her father. I did not visit her every day, but it turns out you can still feel lost. I think I may actually feel like an orphan. Shit.

My parents and I had a challenging relationship…mostly my mom and me. Although my dad would always defend her. We had periods of years where we didn’t communicate at all or where my mom wouldn’t communicate with me. I’d try but after so many unanswered calls I’d give up…I guess that’s not great. I felt so rejected and every call made it worse. I guess I was protecting myself…I don’t know if that was a good thing to do or not, but I can only take so much. But seriously, I did not expect them to die. Parents don’t die. Not this soon anyway…maybe not at all. I’m okay with the fact that my parents were both ready to die. I’m just not okay with them being dead. If you’re confused, welcome to my world.

Given everything that went on with my mom and dealing with her anger, I thought I might feel relieved when she died. I’m looking at those words I just wrote and cringing a bit. You are not supposed to feel relieved when someone dies, especially your mother…that’ll send ya straight to hell. My physical therapist told me one day that I was a good person for taking care of my parents. What “good person” thinks they’ll feel relieved when their mother dies?

I thought I’d feel relieved that I didn’t need to be afraid of her anymore. I wouldn’t be wondering what her mood was going to be when I saw her. Turns out I don’t feel relieved…so my soul might be saved. I feel like I’m missing something. Like I went out without a jacket and am stuck outside in the snow. Like you know something isn’t right, but you can’t quite put your finger on it.

And here’s a strange thing…when we picked up her things no one said anything at all. No “We’re sorry for your loss” or “We loved your mom” or “We miss her.” Nothing. No comments at all from any staff. I guess they go through this all the time. Maybe it’s old hat for them but not for me. I wanted to yell, “You know my mother is dead right?!” Say something…say some fucking thing. Don’t act like it’s just a normal Tuesday. It’s not normal. Nothing is normal. My mom died. She’s dead. She’s gone.

Let’s be real…my mom died and nothing is okay. I need to learn how to navigate a world that she’s not in, neither is my dad. Am I still a daughter if my parents are gone? Who am I if I’m not busy being their daughter? Who am I when I’m just me on my own…not me in reaction to them? Who am I if I define myself without their input or opinion? Maybe we really don’t grow up until our parents are gone. Maybe that’s when we can be free enough to allow who we really are to shine…when we can come out of the shadows. I told my wife that I spent a lot of time trying to be invisible growing up. If you’re invisible, then you can’t be in trouble or wrong or bad. 

Now I need to become comfortable with visibility. I don’t need to hide in the shadows. Now I really don’t need my parent’s approval…even if I do, it ain’t happening. I loved my mom and dad. I believe they knew that…that they were loved. They had grandchildren and great grandchildren that adored them…and my sister was always there for them. My parents are gone but love continues to win. My mom wanted to be with my dad, and now she is. Maybe that’s the power of love, to take you where you want to be. 

Love is a powerful force. It’s a force that needs attention and direction. Let’s love consciously, with intention. Love is not something to do half-assed…because in the end, all that matters is how we love each other…so do it with your whole self. Love must continue to win. Always.

What’s In A Name?

~ Kai Raines ~ Leave a comment

I remember when I was expecting my first baby…it was all very exciting. Everyone was asking if we had picked a name yet. Naming a human being is an interesting task…an important mission. So, we started looking at names. How do you pick a name from literally every name in the world for this little being you have not even met? No pressure there. And the possible list is a bit much. We didn’t even know if we were having a boy or a girl (more discussion on gender assigning at a later date). I suppose we weren’t picking from every name in the world. We were never big on Boris, Ivan, or Helga. Anyway, it was hard to even know where to start. I bought name books and spent days scouring them for the perfect name. 

Recently, my grandson, and his girlfriend, had a beautiful baby boy. My first question was whether the baby was healthy and the second was what’s his name? He told me they didn’t know yet. I’m way too type A to register “we don’t know yet” comfortably. How do you not know?! You’ve had nine months to decide. You only had two jobs…grow a healthy human and name him. Fifty percent completion rate is not that good…it’s a D. My great-grandson (and yes, I am way too young for that ancient title) deserves better than a D.

Of course, I did not say any of those things to my grandson or his girlfriend…those were just the musings of my mind…”musing” might be too gentle of a word…the roller coaster of my mind…the bumper car…that’s more accurate. I did ask when they were going to decide and my grandson said, “We don’t know. We’re going to get to know him a little and then decide.” When did my grandson become the Buddha or the Yoda? The simple wisdom in that answer did not escape me. Now my question was why doesn’t everyone do that? You give birth and then there’s a three-day waiting period before you can pick a name that child will have for the rest of their lives. That seems reasonable.

When I was pregnant, I spent a lot of time repeating names over and over, trying to see if I would like the name forever. We had a beautiful, healthy baby girl, and named her Jessica. It’s been almost forty years and I still love saying it…and Amy and Ben…can’t have anyone feeling left out. 

When I was born my parents wanted a boy, so the only name they picked was Kenneth, after my dad. That’s not really a pick because they didn’t have to come up with the name. For it to be a “pick” you gotta do the work. My family has a thing about names that begin with the letter K. My sister’s name is Kathy, well Kathleen. We only use the full name for dramatic effect. My parents decided on Karen for me. My two cousins are Kevin and Kelly. I’m not sure of the reason for the attachment to K…but there I was Karen Ann Morrison. 

You would need to live in a box to not have heard of all the bad press the name “Karen” has been getting. My summation is that some “Karen’s” have been complete assholes and managed to get themselves all over social media acting like the privileged fuckers they are. Now you can “be a Karen”… that’s a real thing…and it’s a really bad thing. It is bad to become a verb. WTF?!

The BBC gives this explanation. “‘Karen’ has, in recent years become a widespread meme referencing a specific type of middle-class white woman, who exhibits behaviors that stem from privilege. To give some examples, ‘Karen’ is associated with the kind of person who demands to ‘speak to the manager’ in order to belittle service industry workers, is anti-vaccination, and carries out racist micro aggressions, such as asking to touch a black person’s hair. But a predominant feature of the ‘Karen’ stereotype is that they weaponize their relative privilege against people of color – for example, when making police complaints against black people for minor or even – in numerous cases – fictitious infringements.” Now who wouldn’t want to be associated with that bullshit? Don’t be a “Karen.” But I am one. Thanks parents.

In the last two years, I’ve heard my mom say my name hundreds of times. The majority of the time she wasn’t saying it as much as screaming it…with much hostility. She used my name when she told me she hated my fucking guts. She used my name when she told me she was going to call the police, lie, and tell them I hit her. She used my name when she told me I had always been the bad seed of the family. She used my name when she told me the worst thing she ever did was move to Florida with me. I’ve heard my name a lot…too fucking much really.

My mom doesn’t actually say my name. She screams it, yells it, and spits it at me full of venom and animus. I can feel the hatred when she says it. She spews it at me as if it’s a curse she’s put on me. I have heard the name “Karen” more than I ever wanted to. I dread hearing my name now. I cringe when my mom says it because I never know what’s coming next. I have become so conditioned to the hostility in her voice that when she says it nicely, I don’t believe her.

Names are a strange thing. I’ve been thinking that parents should only be able to give a child a temporary name. You name the baby, after the three-day waiting period, and that name sticks until the child is old enough to pick their own name. What age would that be? I’m not sure. It can’t be too young. We don’t want a slew of Cinderella’s, Snow White’s, Spider-Men, or Thor’s. Someone might grow up and regret that choice…at least it was their choice. There’s power in naming something…power in naming yourself. You picked it, you own it.

I’ve read that the sound that people love to hear most is the sound of their own name. Personally, I’ve lost the enjoyment of hearing other people say my name. I used to love hearing my wife say it in her sweet Texas drawl. Family, friends, acquaintances, I don’t want to hear it at all. So, I have decided to pick my own name. I’m 63 so I should be old enough to pick a reasonable name…P!nk is tempting, but already taken.

When I was little my family called me KayKay. So, I thought maybe Kay. That might work. Then I heard my mom call me that and I understood something…I need a name my mother has never said. When I hear “Karen” I hear it from my mom, regardless of who’s speaking. It’s painful to hear it at times. The hate is all I hear now. I need a name that no one says around her, so she never hears it, so she can’t repeat it. Then I can get rid of “Karen” except with her. She’s the only voice I hear anyway. Then I will no longer be a “Karen.”

So, what do I want my name to be? One of the things about the name “Karen” is that it doesn’t mean anything to me. I wasn’t named after anyone…no best friend, favorite relative, or someone loved and admired by my parents. I’ve been pretty much the only “Karen” I’ve known. Well Karen Carpenter…I might have accepted being named after her. 

I realized that the name I pick has to mean something. It has to mean something to me. Meaning is very important to me. My tattoos were selected because of their meaning. All the jewelry I wear, and even my key chain has special meaning to me. Meaning is a big deal.

So…sticking with the “K” theme, my family seems fond of, I’ve decided on “Kai.” Why “Kai”? I’ll tell you. I like the sound of it, and I love what it means. “Kai” is a gender-neutral name that is Welch in origin and means “keeper of the keys and earth.” In Hawaiian, “Kai” means “ocean” or “sea.” In Japanese, “restoration” and “recovery” are included in the meaning. The ocean is my favorite place on earth, and I am restored when I am there. I am renewed and free in the ocean. I am not in pain in the ocean. I don’t have a disability either…I am restored. 

The Navajo say that “Kai” means “willow tree” whose spiritual properties include “protection” and “healing.” It’s also associated with “love” and “being lovable.” I think we all know love is an important theme to me…I do mention it on occasion. After a lifetime of negative messages, it took a long time to finally believe that I am lovable. Everything I talk about, everything I read about, everything I think about is focused on healing…my own, other peoples, and the worlds. “Divine is the task to ease pain.” I choose a name that means healing, lovable, and ocean. Kai. It’s perfect. It’s me in a name. Kai. It’s my name. It’s MY name. Kai Ann Raines…hmmm…I will not be using my middle name…lol.

Let’s be real…choosing a new name doesn’t necessarily solve anything. It does give me the joy of not being a “Karen” anymore. The name change moves me and creates a change of perspective…I’m not that person, I’m this person. The pain and damage caused by the misuse and weaponization of my name aren’t suddenly gone…although that would be awesome. The name change allows some space and fluidity in my thoughts and perspective. That movement allows me to see myself differently. It allows me to see myself through my-self…my own eyes…my own knowing. I see a bigger picture, not someone else’s narrow or biased view. I can be brand new, like a baby you get to know before you name him. I have gotten to know myself. I know who I am. I am a Kai, not a Karen.

Oh yeah…my great-grandson’s name is Zacary…it’s perfect just like he is. Good job mom and dad. I love that little baby. He reminds me that there is still hope and so much possibility in the world. So, I’m gonna love him the best I can. I want him to grow up feeling swaddled in love. And from that secure place he can see the possibilities and hope as well. I want him to see all he has to offer this world. I’m going to lead with love in all my interactions. I’m going to model love for him, the best I can.

Let’s love generously. Let’s be extravagant in our love…giving much and often…without conditions. Let loving actions take the place of empty words. Because in the end all that matters is how we love people. Love is a verb. That’s a verb I can get behind.

A Lesson in Letting Go

~ Kai Raines ~ Leave a comment

When I think of what makes up who I am, a large portion of that is my memories. My memories prove that I existed…I walked in this world. And hopefully I had an impact. We often think our mind is really who we are. Our ability to think, reason, remember, hold memories, have rational conversations, communicate our feelings or ideas, or just having ideas at all. Now my Buddhist studies teach me that there is no solid, permanent self…that’s a conversation for another day.

Memories give life meaning. Memories help us to feel like we’ve lived a good life…or maybe a tragic life. Memories stitch together the fabric of our lives…the up and downs, joys and sorrows, pain and trauma. Memories, in large part, tell us who we are. I know who I was born to, where I was raised, schools I went to, friends I made, people I’ve loved, marriages, divorces. We remember the births of our own children and watching them grow and mature into adulthood, maybe even have their own children. The framework of my life holds the people and events that I possess as memories. 

And why is this on my mind, you wonder? Because there is a tremendous growth in all forms of dementia in this country. We hear about Alzheimer’s most frequently but that is only one form of dementia. Dementia scares me. Losing my memory scares me. I have told my children (they are all adults…most of the time 😏) that as I age, if I reach a time when I don’t remember them then I want them to help me die. I can’t imagine anything sadder than not remembering them, or my wife, my grandchildren, friends…all the associations that create my life as I know it. Maybe I won’t remember that I don’t remember but still I don’t want to be around…I can’t imagine life having less meaning for me than being alone even in the midst’s of people I’ve known and loved my whole life.

Sometimes as people age, they become depressed or angry…sad maybe. Full of regrets about what did or did not happen in their lives. Dreams never realized, opportunities lost, failures of one kind or another…disappointments. I think we feel those things more keenly as we move through the latter portion of our lives. I guess that can make people mad. I get that.

My own observation of people is that as they age, they become more intensely who they already were. If you were unhappy your whole life you won’t suddenly be filled with joy. If you loved your life, you’ll love it until the end. Buddha said that we are what we think and that with our minds we create the world. I’m not sure I’ve ever read anything truer in my life. We will continue to live the life we created in our minds. So, what happens when you start to lose your mind, your memory?

The movie, “The Notebook”, is a story about the romance between two young people. These characters, Noah and Allie, marry and then in their later years find themselves living through the experience of Allie’s dementia. When Allie found our she had dementia she started a notebook. In that notebook she wrote the stories of their lives together. She asked Noah to read it to her when she couldn’t remember, and she would come back to him. The movie takes place in a nursing home with flashbacks of their love affair. Noah visited Allie every day, even though she had no idea who he was, and he read to her from the notebook. She loved hearing about the love story of Noah and Allie. Noah hoped the notebook would jog her memory and that she would come back to him, even for just a moment. It’s a beautiful movie…a real tearjerker. I won’t spoil the story in case there’s anyone on the planet who hasn’t seen “The Notebook” yet.

The thing that is so difficult to believe is that she really didn’t remember. People lose their memories. They don’t remember anything. Really? That boggles my mind. How can that be? How can I still be me without any memory of who I am or how I got to where I am? How is that real? Where do all these memories go…somewhere in “the cloud,”I guess. It’s such a mystery to me and so heartbreaking.

My wife and I moved to Florida almost a year ago and we brought my parents to live with us. Our hope was that they wouldn’t ever need a nursing home because they could be with us, and we’d care for them. My mom has dementia. That’s a rough diagnosis to take in. Perhaps harder for the people in your life because frankly, you don’t remember…every time we talk about the dementia it’s new information for my mom. New information that infuriates her. She’ll tell me her memory is getting better and ask why can’t I give her good news sometime…or why does she need to know all that depressing information? Why does she? Maybe she doesn’t. There is the saying, “ignorance is bliss.” Not sure that’s true. I tell her about the dementia so she can make sense of some of her behavior and her forgetfulness. Maybe I need that more than she does…the making sense part.

Now I am disabled, so I have some understanding of loss…needing assistive devices, chronic pain, loss of abilities, etcetera, etcetera, etcetera. But I can only imagine the loss of my memory. I’m old enough that I get the “what did I come in here to get?” moments…but they’re moments…they come and, more importantly, they go. A couple years ago when I had an infection in my elbow replacement and had to have it removed, I had some problems. Maybe they were side effects of three surgeries in six months and months of IV antibiotics, I don’t know. All I knew was I couldn’t remember things I was told, my balance was off, and I felt like my processing of information was seriously delayed. I was so scared. I was terrified that I my mind and memory would be stuck in that awful place. Fortunately, I wasn’t stuck, but if I had dementia, I would be, and it would continue to get worse. I can only imagine what that fear would be like…panic and terror I suppose.

All of that would make for a seriously bad mood…people telling you what to do, giving you bad news repeatedly. You can’t drive, can’t go out alone…most of the freedoms we take for granted, gone. My mom wants to be dropped off at a shopping mall by herself. She wants to use Uber and be on her own for a few hours. But I can’t let her. It’s not safe. She can’t use Uber because she doesn’t know her address or the name of the apartment complex where she lives. She can’t be at a mall alone because she’ll get lost. She’s 90 and exhaustion can hit her suddenly and she needs help walking or the use of a wheelchair. All of that really pisses her off and I understand that. Even though I understand, I can’t let her do things or go places where she isn’t safe…that pisses her off too. And all of that makes for a volatile environment. 

Moods for people with dementia, for my mom, can change very quickly…and it always surprises me. In the movie “Pretty Woman” there’s a scene where Richard Gere, who plays Edward, thinks that Julia Roberts, Vivian, is doing cocaine in his bathroom. It turns out she’s flossing her teeth…strawberry seeds, go figure.  Edward shakes his head at his mistaken assumption and says, “Very few people surprise me” and Vivian replies, “You’re lucky. Most of them shock the hell out of me.” That’s me. I am frequently surprised…especially by the mood changes. Sunday was one of those days. My mom woke up fighting mad…literally. Nothing happened, she just came out of the bedroom all piss and vinegar. It was a full day of complaints, accusations, verbal assaults, name calling, and being told to “fuck off.” Needless to say, it was a long, exhausting, painful day. Now I imagine that Sunday was awful for my mom as well, except that Monday morning she didn’t remember anything. WTF!? Are you kidding me? How can anyone be a 4’10” hurricane of vitriol and not remember? I found myself wondering if it was true and how could it be true? How could you be that hurtful, go to sleep, and wake up with no memory of your behavior? No memory of how much you hurt people?

And there’s the rub…she can’t remember but can I let it go? I read a quote in a book once that said something to the effect of, “I’ve never let go of anything that didn’t have claw marks on it.” That is also me. Letting go is not my strong suit. I wish it was. I also wish being relaxed, easy going and patient were, but wishes do not always come true…even if you wish really, really hard.

Now let’s be real, letting go sounds easy…just let go. Duh! Open your clenched fist and LET IT GO…for the love of God, pry it out of your hand. I guess I’ve got movies and television on my mind today…in the television show “Reba,” her son-in-law, Van tells Reba, “I have one word for you, letitgo.” Reba says, “That’s three words.” And Van says, “Not the way I say it, Letitgo.” But how? How do I, how do we letitgo? I believe I come from a long line of grudge holders…people who remember every way you have hurt, offended or slighted them for your entire life. Letting go does not come naturally to us…my Irish Catholic people…and not to me…although I’m still wishing.

Why not let it go? What benefit would I get from hanging on? Holding on to the hurt, pain, mistreatment, abuse, nastiness? It must serve me in some way, or I’d fucking let it go already! I suppose that hanging on to the pain could make me look all noble. “Look at her? Even with all the mistreatment, she keeps caring for her mom?” A little inflating of the ego…everyone likes that at times. My sister jokes that she can’t tell if I’m a saint or really stupid taking this on. I’m gonna vote for neither. You do not have to know me well to know I am no saint. I swear to fucking much for that consideration. And I am not a stupid person, although in this instance I might have been a smidge naïve…just a smidge. I certainly did not anticipate being accused of elder abuse because I don’t make enough vegetables or taking care of them because I want their money or hating her…apparently, I brought her here with me because I hate her and want to make her miserable. She would rather “live in the gutter than in this hell” which we call Florida. I definitely did not expect all of that and it shocked the shit out of me.

So, then she forgets, and everything goes back to normal…for her. But I am slow to engage, slow to warm back up…very cautious and tentative…defended even. Perhaps slow to forgive. Definitely slow to letitgo. Letting go involves such vulnerability. Exposing my underbelly again even though it’s all ripped up. Vulnerable enough to open up again and try. Try to connect with her. Try to enjoy her and this time we have together. Try to laugh at some of the irony…or just try to laugh at all.

When something upsets our dog, Abby, she has to stop and literally shake it off before she can keep walking. Abby is the smartest dog I’ve ever known and maybe she has the answer. Perhaps the answer to letting go is taking a moment to shake it off. Recognize something scary or painful happened, acknowledge the impact, allow myself to feel it, then shake it off and let it go. Don’t hang on or wonder “what if” just let that shit go. Shake it off and keep walking…keep engaging and try again. That’s what Abby does…she keeps going. She may move more slowly or cautiously at first, but pretty soon she’s prancing along again…like nothing ever happened. She is not a grudge holder. Abby knows how to let go. Maybe I can learn a lesson about letting go from her…I’m shaking already.

Because let’s be real, all that really matters is how we love people…because love wins…always.