Tag: health

The Last Resort

~ Kai Raines ~ Leave a comment

Chronic pain is a funny thing…and by that, I mean a pain in the ass. Now that is funny because my ass doesn’t hurt at all. It’s a pain in my neck, my low back, my left arm and hand, my hips, knees, and feet. That’s all. It’s on my mind today because I woke up at 4 this morning. I woke up because I was in so much pain. I tried going back to sleep until 5:22 and then thought, “Fuck it” and I got up. I feel like I’ve lived a whole day already and it’s 9:53. Might be a long day.

Pain is on my mind because Friday I’m going to a new orthopedic surgeon to discuss my elbow. That is never my favorite conversation. When I fell and broke my arm, into several pieces, and dislocated my elbow two years ago, the surgeon told me that it was “reasonable” to try one more time to put a new implant in and see if it would stay in place. After that he said he would recommend removing the replacement elbow and putting nothing in its place…an arm with no hinge. He told me, if that occurred, I would still have partial use of my hand. And he said his patients that have had their artificial joint removed, without replacement, are happy with the outcome because they have no more pain.

Sit with that for a minute. No more pain…go from daily pain, that ranges from frustrating to intolerable, to none. None. Nada. Zippo. It’s hard for me to even imagine. It has been a long time since my elbow didn’t hurt. I should mention the reason for a new doctor is not because of a problem with the old one…and he isn’t old at all. My insurance changed, and he is no longer in network. That is very sad. I thought about changing my insurance back but the costs of everything would be so much higher, I can’t do it.

I got a recommendation for an “excellent” orthopedic surgeon from a physical therapist I trust. PT’s know all the best doctors…nurses do too. So, I made and appointment and waited three months to see him. Let me back up and say that my elbow has been hurting for the past year and a half. I know the replacement is loose. How do I know it’s loose you wonder. Because this has happened three other times. And those three times I have had revision surgery. The humeral component, in my upper arm, was removed and replaced…hence the term revision…in case you’re wondering…you’re probably not. I should also mention that I can’t always straighten my arm anymore because it gets stuck. When that happens, I push my arm and force it straight. It feels like trying to shift gears on your bike…but the chain is clanking around trying to connect…and the peddles don’t work until it does. My arm grinds and pops when I push it straight. Not my favorite feeling.

So, for a year and a half my old doctor has repeatedly asked me what I wanted to do about my elbow. I have always told him “Nothing.” I haven’t felt like the pain was bad enough for a surgical intervention…and that is the only intervention left. That is until now. Because now I can’t stand the pain anymore. I feel like it’s taking a toll on my body and my mental health…because I feel hopeless. Like I’ll be stuck with this pain, grinding, and popping forever. That’s depressing.

Okay, so now, back to my story…I went to see the new doctor. He said my X-rays looked “good” and my arm looked “good.” My arm is hugely swollen and it looks deformed. If that’s your idea of “looking good” then there’s a problem…we have a problem. Aside from when I broke my arm and dislocated my elbow, my X-rays have always looked fine. The loosening had never been seen until I had a CT scan. I don’t know why that is…different imaging or better imaging, I guess. I just know it’s true.

I told the doctor what my previous orthopedic surgeon said, and he looked at me like I was a lunatic. I felt as though he thought I was casually discussing having my elbow taken out…like I’d talk about what to have for dinner…as if it’s no big deal. It’s a fucking huge deal. I can’t begin to describe how big of a deal. If he had asked me, I would have told him it’s taken a year and a half to even consider this possibility. And I would have said that I’d been practicing doing everything one handed to get an idea of what it would be like. He actually said, “You know you won’t be able to use your arm because you won’t have a joint. Your arm will just hang there.” WTF!? Are you fucking kidding me? Thanks for mansplaining that to me because, dopey me, I didn’t know an elbow was important. That’s what I wanted to say but I refrained. He didn’t ask me anything. He spent all of five minutes with me before he referred me to a different doctor. He said if I needed my joint removed that would be the guy to do it. Obviously, I was a problem he didn’t want to deal with, so he sent me away.

He didn’t ask about the history of my elbow or the eleven earlier surgeries, including the three revisions and the infection that took six months and three surgeries, including several months with no joint, to treat. He asked nothing. I felt invisible and pushed aside. Disregarded. Like I was a problem he didn’t have time for…or any interest in solving. I was depressed, and it took me three weeks to even be willing to make an appointment with the next doctor.

This decision is not because of one failed elbow replacement…every replacement has failed. This is the fourth failure…fourth and final. I cannot keep doing this. This is a huge decision and it’s a painful decision…one I’ve considered for a long time. This was not an easy decision, and certainly not one I’ve taken lightly. It’s scary. I feel afraid. But I cannot live with the constant pain or continue to have my joint locking…or dislocating. My arm isn’t functioning now even with the joint.

So, is it better for me to be in constant pain, needing ever increasing amounts of pain medication. And I need stronger medication because what I have doesn’t work anymore. Is it better for me to lack sleep because of pain. Or to dread each new day because it’s intolerable. Because that’s what chronic pain does…it causes dread. Dread and fear and anxiety. It wears you down day by day…little by little.

Chronic pain is a challenge because other people don’t necessarily see it. I get up each day, take care of the dog, I cook meals, run errands…all the “normal” things. Someone observing me would not see my pain. It’s not like I walk around moaning and crying. I’m not big on complaining…it doesn’t help anything. But because you can’t see my pain you might not know it’s there. That’s a difficult thing about chronic pain…it is frequently invisible. Just because you don’t see my pain does not mean it isn’t there or that it isn’t significant.

I am a strong person. I know that. I’ve been through a lot of shit…and I keep going. In my family, I was praised for being strong. Praised for not complaining and for my ability to handle anything. I wanted the praise, and I wanted to be strong. And I am.

Now I’m learning it is not a sign of weakness that I need something done to help me. I’m not failing because the pain is too much to bear. I can’t take it anymore. I’ve dealt with it for over 7 years…that’s a long fucking time. Maybe my strength now is the realization that I need help. Maybe it’s finally having the ability to ask for help. To seek help. I wonder if at some point it goes from strength to stupidity to just pretend everything is fine when the pain is unbearable. Maybe that’s just denial…or fear…or both.

Chronic pain is a reality for millions of people in this country…including people you know. Chronic pain isn’t just physical pain. It’s also emotional pain. The fear. The depression. Feeling disregarded or disrespected. Dismissed…tossed aside for someone else to deal with. Told, without words, to be quiet and stop being a problem. Be an obedient and quiet little girl. Don’t make waves. Listen to the doctor…he says nothing is wrong…and his opinion is the only one that matters.

Now I doubt this doctor intended all of that…at least I hope not. He could have been having a bad day. I have no idea. But I am not just an elbow. The elbow in question comes with a person…me. And I need help. Seeing a doctor when you’re in a lot of pain, or there’s a problem…or both, is a very vulnerable position to be in. I was there because I needed you to help me.

I came to you sad and scared and I took the risk of sharing that with you. I came to you vulnerable. Don’t send me away. Don’t get me out of your office as fast as you can. Don’t mock me by imitating what my arm will be like without a joint…flailing it around, as you speak to me like I’m crazy. Understand that my pain must be fucking awful if I’m willing to consider such a drastic last resort.

When I come to you and tell you who I am, listen to me. And when I share my pain, believe me. I’m taking a risk to tell you…don’t make we regret it. Because then my pain will go back underground and remain buried until I’m willing to take another risk, if I ever am. Don’t teach me it’s not safe to trust.

In the end what matters is how we love people. Love the people in your life who are in pain. Believe them. Listen to them. Divine is the task to ease pain. Let’s ease each other’s pain…that is divine.

A Matter of Perspective

~ Kai Raines ~ Leave a comment

Jealousy is a funny thing…and by funny, I mean a pain in the ass and very discouraging. I consider myself a kind and supportive person. Eager to see people succeed and reach their goals. Now that’s what I consider myself to be but that doesn’t make it so. Well, I am those things but I’m also much more…for example, prone to jealousy or envy. Crap. Sometimes the truth hurts.

I have been working at losing weight for the past couple years. I guess before that I was working on gaining it. Who knew that was a job? I have changed what I eat, and I started exercising. Keeping my physical limitations in mind, I tread water for an hour a day when it’s warm out. Our pool is not heated…brrrr. I’ve made big changes, and it’s been hard. Hard to implement and even more difficult to be consistent…so fucking hard. Seems like it should be easy since I’ve developed new habits. Seems that way but….

Habits with eating are tricky because food is tricky. If I just didn’t need to eat, I’d have it made. But there are so many choices and so many things that influence my choices…my mood, what food is in the fridge, my mood, what people around me are eating, my mood, cravings, and my mood. I am an emotional eater. I’d like to say I’m not anymore but that would be a lie. I thought I’d be over it by now, but alas I am not.

A couple of weeks ago, I wrote a blog about my weight loss. I talked about how I lost weight with switching to whole food, plant-based eating. I felt vulnerable after that post because my weight is a very private topic to me. As I said, I am an emotional eater…and because I felt exposed, I handled my discomfort by making unhealthy food choices. Patterns are hard to break. I continued to sabotage myself for over a week. I did become aware of what I was doing…it only took 3 or 4 days to notice and then another week to decide to do something about it. Fuck. I guess it’s better than never being aware…still frustrating.

Speaking of feeling vulnerable, here’s something I’m not proud of…I feel jealous when I see the commercials for those injections that make you lose weight. My understanding is they help you lose weight because they suppress your appetite. I suppose you still make a choice not to eat. So, here’s the thing, I want shots. I want to have an easy time losing weight. I want to lose weight faster…but I can’t have the shots. The doctor said no, about 50 pounds ago. I don’t have diabetes. I’m not even pre-diabetic. That’s what I get for eating plants. Plus, my cholesterol has gone down 25 points in the last 8 months. I am happy that I’m healthier. That was my goal after all. But damn it I want shots too! I want to be one of those people in the commercials dancing and singing about lowering my A1C…whatever the fuck that is. I want to sing about losing weight…and I am definitely not singing.

As I am writing this Serena Williams is on tv injecting herself and taunting me about her 31 pounds she’s lost…seriously? What the absolute fuck?! I am frustrated…I know I hide it well. I am mostly just frustrated with myself and my attitude. You’ve gotta agree it needs work. Why can’t I just be happy for all the people of the world who are healthier because they’ve lost weight? I should be able to celebrate with them, shouldn’t I? What is up with all the jealousy and envy…and the judgement that lies behind it. I know I’m being judgy. I just don’t know why. Well…wait…ya, I know…I do know. Of course I know. Fuck. I don’t want to try. I don’t want to do the work. Even though I said I did in my blog, that was then, and this is today…moods come and go so quickly here…here being inside of me…this mind of mine.

Jealousy is “Feeling or showing envy of someone or their achievements and advantages, feeling resentful of another’s success or possessions.” It is a “complex emotion involving a combination of insecurity, fear, resentment, and suspicion; Unchecked jealousy can lead to anxiety, low self-esteem, and harmful behaviors like sabotage.” Envy is, “Wanting what someone else has, such as possessions, qualities, or achievements.” Now according to Merriam Webster I have more envy than jealousy…although I am resentful of Serena Williams…and Rebel Wilson…whatever.

Jealousy. Envy. Wanting what someone else has…being resentful. I am jealous and/or envious of weight loss being easy for other people. How do I know it was easy? Because it looked easy…from my perspective. People do dance and sing after all. So, according to me it was easy. Me in all my great wisdom…Duh, right? Jealousy…envy…I have them both. And an unverified belief that weight loss is easy with the injections and so hard for me…poor, poor me.

So, what to do…so far, I’ve only managed self pity. And I tell ya, it’s not really working. Feeling sorry for myself is not going to pull me out of this emotional soup I’m stuck in. I can’t seem to will myself out of this…so? So, what? That is the question. So, I wish I knew. I am hoping to discover something before the end of this blog. I’d like to think I have a point…don’t you worry, I’ll find one.

After I read books on plant-based eating and weight loss I became determined to change my eating habits. I wanted to lose weight, but I also wanted to be as healthy as I could, with as little pain and inflammation in my body as possible. I was training myself to enjoy healthy food…to like the taste of vegetables…I already love fruit. Then this jealousy and envy attacked me. But when did I decide that I changed my mind back? That I didn’t want to be healthy? That crappy food is more important to me than my own longevity, my own pain management. Do I like nachos and cookies more than myself? Do I want wine and cheese more than feeling better? Of course I don’t. I’m not an idiot…I can be difficult, but I am not an idiot. So where is the disconnect for me?

Food is important. We must eat to live. I feel strongly about continuing to live. But food also means so many things to us. We want cake for a birthday, champagne to celebrate an achievement…and more cake. We associate holidays with the smell of roasting turkey (at least I did before I became a vegetarian), mashed potatoes and gravy…or burgers on a grill in summer. I’ve had family or friends want to make a salad for thanksgiving and it offended me. You do not waste the precious space in your stomach on salad. Not on a holiday. You use every inch for “the good stuff.” Why is the “bad stuff” the “good stuff” for me? At least that has been my thinking…might still kind of be…a little.

When someone dies, we make a big meal to celebrate the life lost. We eat to mourn. People bring us comfort food after a loss…casseroles…lots of casseroles. On our own, when we’re sad, we reach for ice cream, cookies, candy…and of course, cake. We find comfort in food. We’ve been taught to. But do cake and cookies and casseroles really provide comfort, or do they just provide a distraction from the real source of our pain. After a loss we can feel empty, as if something is missing…and it is. Rather than sit with that discomfort, it’s easier to fill the emptiness with food. I know that I have often misinterpreted feelings like anger, that I notice in my gut, for hunger. If I feel something in my stomach it must be hunger, right? No. We feel and carry emotions throughout our bodies.

We’re meaning makers. There’s a story of our life running through us. The story we tell ourselves about where we’ve been and where we’re going. That story frames how we see the world…it is the lens we look through to view everything. How we treat our bodies is part of that story. How we feel about eating, what we want to eat, what we like and dislike, and how we eat are all part of that story. Some of it is learned…passed on to us by our families, our friends, our world. And some of it is habit…the way we’ve always done it. There are some parts of our story, what we tell ourselves, that we may not even be aware of. We make decisions based on our story, and the habits we’ve developed. Perhaps a better alternative is to become intentional in our eating.

We eat for more reasons than to just survive. We eat to nourish and restore our bodies. We can honor our bodies with the food choices we make. We can discover what is sacred to us in the ordinary. The things we do each day without a thought. What we eat, how we feel about eating, who we share meals with, and how we approach eating all shape our perspective…our story. Are we grateful for food, for nourishment, for everything that went into what we eat…the seeds, the land, the farmers, farm workers, truck drivers, grocery store workers, the sun, the rain, the person who prepared the meal…there is so much to be grateful for. Do we intentionally focus on gratitude when we eat? There are people all over the world who would give anything to have the abundance of what we eat…even a portion of it. Do we stop and notice all of that, and feel thankful, before we take our first bite?

So, maybe a change in perspective is all I really need. A shift from lack to gratitude. Recognizing that I do not lack anything just because I can’t have the weight loss injections I want. Gratitude that I can do the work. And I have done 85 pounds of the work. Intentional gratitude that I get to eat regular meals. That I have abundant food choices…including beautiful, nourishing fruits and veggies. That I get to choose…and I am not starving. Gratitude that I am not experiencing food insecurity. A deep concern for those who are. A concern that moves me to action and a determination that out of my abundance I will share…gladly and graciously.

Sometimes all you need is a new perspective…and a better attitude. Apparently, I need both. I need a perspective that teaches me loving-kindness towards others and a desire to see people be all they can be…to become who they really are. All of us fully embracing ourselves, the good and the not so great…embracing our broken and beautiful selves. Loving ourselves into the fullness of our beings. And offering others the same. Because in the end all that matters is how we love people…even when they have something we think we want. Love anyway.

Here’s Your Answer…Finally

~ Kai Raines ~ Leave a comment

So, I have been trying to build my online presence. How’s it going you wonder? Not great. Why you ask…because it turns out I don’t spend much time on social media. I don’t like social media much, especially lately. My idea of social media is looking at pictures of my grandkids, clips of the WNBA, bulldogs, pandas, and little kids who drop the f bomb on Instagram. Because seriously, who can resist pandas? They are hysterical. Nothing phases them. They hang from trees, balance awkwardly on branches, play in the snow and when they fall, they roll up into a ball like it was all part of their plan. And yet it’s clear…they don’t have plan. If you are ever sad, search pandas on instagram. They’re the best.

So, I have a lot of work to do. I need to develop my engagement skills which is funny because I’m good at building relationships…just not online. For example, a month or two ago I posted that I lost 85 pounds, and I included a couple different pictures of my progress. Someone asked me how I did it. What did I say you ask? Nothing. I didn’t respond. I meant to but I never did. Fuck. I am clearly a work in progress…sloooow progress.

So here is my long overdue response…along with my apologies. The short answer is I adopted a whole food plant-based diet…mostly. I love cheese. Anyway, that’s where I am now but it’s not where I started. In case you’re wondering, I started as the junk food queen of Florida.

When I decided I needed to do something to lose weight, besides hoping, it was after I saw a picture of myself. I didn’t realize how much weight I had gained or what I looked like. You know how you can know you’ve gained weight, but you think it’s not that big of a deal? At a checkup, my doctor asked me what WE were going to do about the weight gain. I wanted to say, “WE think YOU should lose the weight for us.” I was really upset by the photo and decided I needed to do something, so I joined Noom. I picked Noom because there were daily reading assignments, and I love to read and learn new things, so it seemed like a good fit.

All of this took place during Covid…the time when everyone in the world gained weight. There was nothing to do except eat and drink. I needed both vices to survive supervising online school for my grandkids. Even with all that, I did lose weight on NOOM. 40 pounds. And then I started gaining it back slowly. I was sticking with the calorie guidelines, mostly, but I was not making healthy food choices. Snacking, big heavy meals, sweets, and wine. Comfort food. Comfort candy. Comfort wine. Right?! I have a wicked sweet tooth, and I was eating a lot of sugar and enjoying too much wine. Never wanting to take responsibility too soon, I blamed Covid for all of that. Who didn’t eat and drink more? I was afraid and I was stressed. I was worried that everyone I loved was going to die. I spent a lot of energy just trying to cope…everyone did.

Now I am not saying anything about the general population losing or gaining weight and I am not telling anyone what they should do. Humans come in all shapes and sizes and that is a beautiful thing. I am only speaking for me. I’m sharing my experience because I think other people have found themselves in a similar place and felt like I did. I reached a point where I was unhappy with my weight and how I looked. I looked different than I thought I did, and I was frightened by what I saw…in the picture and on the scale.

So, pandemic or not, I knew I needed to make changes in my life. First, I joined Noom. Second, I quit drinking. The drinking was hard because it had become a nightly habit and the people around me were drinking. But I did it. I decided I wouldn’t drink any calories, except for the creamer in my morning tea. I love my tea. I quit for 9 months, then I drank some, and then I quit again. Currently, I only drink on occasion. It’s too easy for me to gain weight when I drink. And alcohol isn’t the only drink with calories. I quit drinking coke and juice.

After we moved to Florida, I struggled to lose more weight and found myself gaining instead. Turns out my mom loved junk food…loved it! Cheetos and candy. And she loved me to join her in those treats…and I did…for a while anyway. There was one other time in my life when I lost a significant amount of weight. It was after I had my 3 kids and was going through a divorce. In my memory, it was easy to lose the weight…95 pounds. So, I kept wondering why it was so hard to lose weight now. It definitely was not easy…not even close.

I remember reading about Shonda Rimes, the creator of Grey’s Anatomy, losing weight. She said that she had worked hard for everything she achieved in her life so why would losing weight be any different. That made sense. Now working hard implies discipline and discipline makes me cringe. When I hear that word I think of punishment. Discipline was harsh, painful, and meant negative consequences…a spanking or grounding when I was a kid. Discipline was to be avoided.

Although I had never thought about it, I’ve done a bunch of things in my life that took great discipline. I have multiple degrees that required a lot of school…classes, papers, tests. I held jobs for years. I showed up to work on time, got my work done, and did more than just work 9 to 5 when it was necessary. I lost 95 pounds…I wonder if regaining weight required discipline…ya, I know…it didn’t.

So, from my Cheeto and candy induced coma, I made some decisions. Noom was no longer helping me, or I wasn’t allowing it to, so I ended my membership. Next, I read a book called, Plant Based Weight Loss, by Shawn A. Sales and I decided to eat a primarily plant-based, whole food diet. I also committed to not eating a plant-based pile of crap. There is plenty of plant-based junk food out there and I’ve eaten a lot of it. Gluten free, plant-based pop-tarts. Oh yes, they have them and I have eaten them…fortunately, they aren’t good. I used to joke that I was a horrible vegetarian because I didn’t eat vegetables. I decided to change that too. I gave up coke, chips, candy, cake, donuts…you get the idea. I have a crazy sweet tooth, and I found the best way to control it was to not activate it. So, I gave up sugary treats. This was no small feat since the lived with the queen of sweets and Cheetos. Having Celiac disease was helpful here because I couldn’t eat the Krispy Kreme donuts, pie, coffee cakes, and other gluten filled treats in the house. That did not take discipline, just the fear of puking my guts out.

Another book I read was, How Not to Die, by Michael Gregor, MD and Gene Stone…catchy title huh? I’m not sure the people I have gifted it to appreciated it. This doctor talks about how you can reverse or slow down most diseases with a plant-based, whole food diet. There are people in my family with diabetes and according to Dr. Gregor you can reverse it. I know someone with Parkinson’s and their symptoms could be improved and the progress of the disease slowed with a change of diet.

A huge factor motivating me to change my diet was chronic pain. I have multiple health issues that cause me chronic pain…degenerative disc disease, degenerative joint disease, a connective tissue disorder, and fibromyalgia. I have joint replacements in both knees and my elbow. Most of my spine is fused and I have a screw and staples in my foot. I have pain daily and I’m tired of it…I’m tired from it. I decided I was ready to do anything I could to reduce my pain. Plant-based, whole foods are supposed to decrease inflammation, and I wanted to see if it would help me. I felt desperate. I have been dealing with serious chronic pain every day for many years. I was willing to try almost anything.

So, I got discipline. I set goals, changed some habits, and learned I do in fact have self-control. Of course, I had those things previously, but I wasn’t accessing them to help myself. I started losing weight again. It was easy. It was easy if I stuck to my plan. By eating plant-based whole foods I was losing weight. I wasn’t counting calories or policing how much I ate, and I was not exercising…yet. I wasn’t hungry because I was eating as much as I wanted to, of plant-based whole foods. If I was hungry, I ate. And weight started coming off naturally…in a sense, easily.

I’m sure the changes shocked the hell out of my system. I shocked myself. I started to like vegetables and salad. I already loved fruit. Now I’ve lost 85 pounds. It could be more, but I’ve had some bumps in the road. Like my birthday when I decided I wanted gluten free cupcakes and that sent me on a sugar spiral. I recently had some teeth extracted and for soft foods I picked pudding, ice cream, and mashed potatoes. I know there are other choices, but I didn’t make them. Between that and my recent trip to New York. I gained 10 pounds…which I have lost again. I frustrated myself with the yo yo-ing…my discipline is evolving.

Apparently, you do have to practice discipline and maintain awareness of what you’re doing and the choices you’re making in order to lose weight and to develope new habits to reach a goal, even if it’s difficult. I am training myself to crave healthy food because I’m committed to caring for my body. This body of mine has been through so much and yet it keeps going, keeps working even when it’s in pain. The least I can do is respect it enough to care for it.

I don’t have the answer for weight loss. I have my own experience to share and an understanding that when I eat the best foods for my body, I naturally lose weight. Is it easy to eat a plant-based, whole food diet…you wonder. Not always. There are so many food choices available that are not either of those things. So, I have discipline. I care for myself by following the diet that I believe is in my best interest. It’s a way of eating that I can keep long term…because it’s good for me.

So, I share my path here for anyone who may find themselves in my shoes. I share to give hope to anyone who felt like I did…stuck and hopeless. I learned to take a step…just a small step…to control what I can. I control what I feed myself. So, I changed that. I needed to care for myself and that was my first step. I made the change out of love for myself, not because I was rejecting or hating myself or my body. I still believe that in the end all that matters is how we love people…and that begins by loving ourselves. I can’t love you until I love me first.

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But I Don’t Feel Sad

~ Kai Raines ~ Leave a comment

Depression is a funny thing…well, not exactly funny…interesting. I had a friend years ago who lectured me about how people take “happy pills” to avoid dealing with life. Taking the easy way out, according to her. She made her comments before she knew I took an antidepressant. I felt offended and I let her know. She had no personal knowledge about antidepressants; she just had opinions. I explained that depression is generally caused by a chemical imbalance in your brain and that imbalance will not correct itself on its own. If you do not have an imbalance then an antidepressant will not do anything for you. That’s what my doctor told me. It’s not that simple and there can be other causes but explaining it all will take too long and way too many words…and I am not a doctor. Depression is complicated.

Taking an antidepressant is not an easy way to anything because people, like my friend, are very judgy about it. They think you are weak or crazy. Why can’t you just be happy, they ask, and then accuse you of trying to escape your life or reality. What they do not understand is what it feels like to be depressed, clinically depressed. It is awful.

Over 29% of adults have reported having a diagnosis of depression at some point in their lives. Over 21 million people are affected by depression each year. Depression affects women more often than men. During the pandemic there was an increase in depression. That makes sense. Four out of ten people reported being depressed or anxious during Covid 19. I’m surprised it’s not ten out of ten. That shit was scary and hard. The number of depressed individuals increased 60% between 2013 and 2023, according to the Center for Disease Control and Prevention. And you are more likely to be obese if you are depressed and more likely to be depressed if you are obese. That’s fucked up. The symptoms of depression include, severe and persistent low mood, a sense of despair, decrease in energy, changes in level of functioning, weight gain or loss, without dieting, difficulty getting out of bed, problems with concentration, sleeping, and energy. And a decrease in your sense of self-worth. Depression is the most common cause of disability in this country.

There is a genetic component to depression as well. In my family, my grandmother was depressed. My mom was depressed. My children have dealt with depression, as well as people in my extended family. And I understand that my great grandmother was most likely depressed. She would “take to her bed” for days at a time. I’m not sure about my grandma but my mom did the same thing. We were in trouble when she went to bed and shut the door.

Anger is not listed as a primary symptom of depression, so I was surprised…well, surprised in hindsight…that it was a symptom for me. As close as the DSM V, the Bible of mental illnesses, comes is irritability. Well, I was irritable too. I just didn’t realize it until I wasn’t anymore.

Medication is not a quick fix, and it does not just make you happy. I have done my share of therapy over the years…there are therapist happily retired with my financial help. And I worked through a ton of shit. I am still working through issues…on and on they go. What an antidepressant has done for me is help me return to a place of caring about my life and wanting to deal with shit…deal with life. They helped me feel like myself again. Allowed me to get out of bed and engage with the world. Take care of myself and whoever or whatever else I needed to.

My wife, Gayle, and I have been married almost 14 years and been together 17. One of the things I love most about her, about us, is how easy it is to be together. We get along great. I never get tired of her company. She is my best friend. I see her first thing every morning and last thing every night and I wouldn’t want it any other way. There is a comfortable and familiar flow to our relationship…it’s easy…usually.

I have written about the past couple of years and my wife traveling between Colorado, where we used to live, and Florida, our current home, for work. She traveled and I traveled. She flew and I drove. Then we drove. I made several road trips to Colorado to spend time with her, more than a week, because the separation was hard. Then Gayle retired in November, and she is in Florida permanently. We still drive to Colorado when we want to visit but we do it together.

After she was home, we noticed ourselves being irritable with each other. We have felt that before and recognized it as a settling back in with each other period…getting used to each other again. During our time apart we developed our own way of doing things…different from each other. For example, she ate dinner way later than I did. She ate different food, cooked differently than the way we did it before. She loaded the dishwasher differently…small, stupid things that did not feel small or stupid. We felt distant…I felt a distance between us.

I like to think of myself as laid back and easy going. I like to think it, but thinking does not make it true. Too bad. I tend to take things very personally, even when they are not personal. I do this even though, in the book The Four Agreements, by Don Miguel Ruiz, the second agreement is not to take anything personally. Followed by do not make assumptions. Check and check. I do both. I try so hard.

So, these little conflicts became ginormous in my mind. Ginormous and personal. And I became irritable, disagreeable…angry. I was angry that things were not the same. Nothing felt particularly easy. And I became paranoid, convinced that she didn’t love me anymore. That she was tired of me. My mom used to tell me that people got tired of me. I thought it happened with my wife. And I didn’t think she even liked me anymore. I asked her and, even though she said she did, I didn’t believe her.

Now the real fucked up thing about this was that I didn’t realize I was angry. I thought she was mad at me all the time. Hence the conclusion she did not like me. For the first time I thought she might leave me…I mean how many more years are you going to spend with someone you don’t even like. That is a rhetorical question. I heard the words she’d say to me as accusations, condemnations, or criticisms. I felt like I was no longer good enough for her…like she wasn’t happy with me anymore. I was not bursting with happiness either. Now let me be clear, this was all happening internally…mostly. It seemed like she was snapping at me all the time. I felt like nothing I did was right. I’m certain she was not getting warm fuzzies from me either.

Several months earlier I had stopped taking my antidepressant. I talked to my doctor about it and told her I didn’t think I needed it anymore. I wasn’t depressed. With her cautious okay I weaned off it. And I was fine. I noticed a few times I felt sad but then I had some reasons for sadness. It seemed like a proper response to circumstances. Sometimes I would question myself about whether my feelings were a sign of depression…but I assured myself they were not. It’s possible I needed a second opinion.

Then I experienced a situation with a friend who was really depressed. They were sad about lost relationships, afraid of being alone, hopeless, and isolated. And I saw them struggle to feel normal…to be happy again. They were so depressed…the kind of depression that makes you want to stay in bed and be left alone, permanently. That scared me. It scared me enough to start taking my antidepressant again. Because of them I saw myself differently…through the lens of fear. Fear that I could end up at that same place…again.

Antidepressants take a couple of weeks to work. In the past when I had gone on medication I remember not really noticing whether the medication was working until some random day when I realized I was happy again. This time my realization was that I wasn’t angry anymore. I felt like myself again. And things with my wife were normal again…easy. The flow was back.

What changed? Did my wife finally realize that I was right about everything? That’s funny. So, what changed? I did. I had my random moment and realized I was happy again. When the happiness arrived, the anger departed. Or rather I let the anger go. I guess in my insecurity I was clinging to it before…I couldn’t see any other way to feel. I felt justified in my anger. It’s hard to let it go when you feel justified.

But now…now I saw a new, clearer perspective. One less centered in my ego. Ego’s kind of suck. I took a step out of my mind…not to be confused with being out of my mind. My mind had focused on all the ways nothing was my fault, or more accurately, my responsibility. Everything was someone else’s fault. Their responsibility. My ego was in overdrive. Placing blame away from myself. And I was not really looking to blame…maybe I was. I didn’t mean to be. I was hurt. I was hurting. I felt lost and alone. I told my daughter that I felt insignificant and invisible. She told me that was my past trauma speaking because no one who knows me feels that way about me.

Growing up I felt like I had to fight to be seen, to be heard…to matter. And so often I wanted to be invisible because it felt safer. But that’s not true anymore. As long I remain open, I am seen, heard, understood, and I am loved…liked even. The only time that’s not true is when I shut down. When I am no longer willing to receive, no longer willing to give.

Andrea Gibson, the poet, said that a music box is still a music box even if the lid remains closed. Of course, it can’t fulfill its purpose without opening. Aren’t I the same? Aren’t we all the same? I can’t fulfill my purpose or have the depth of relationships I’m meant to without opening. What stops me from opening…from being vulnerable? Oh, wait I know. Fear. Fear fucks everything up. Fear and my ego…stupid dumb ego.

How can I tune in to my heart and stop listening to my mind and my overactive ego. It’s easy to blame other people for our circumstances, for our feelings but it’s not their fault. It’s mine. I’m responsible for my actions. I’m responsible for my feelings. No one makes me feel anything. And guess what? All of that is true for you too. Surprise! We have all kinds of choices. No two people react the same in a situation because of all those choices. Freedom and all that crap.

It’s easy to get caught up in the emotion of a moment and lose sight of our choices. To surrender our reactions to just that, reacting. Allowing emotions to carry me away from my ability to choose…to choose to respond rather than react. I would like to think I was fighting for our love by arguing…fighting for us. I fear that I was arguing to lash out…not really that. Fighting as much with myself as with Gayle. Feeling unhappy with her because I was unhappy with me. I guess taking my fears out on her…without clueing her in. Without clueing myself in. I didn’t know.

Now I’m not just trying to blame myself for everything…I’ve done that many times. Burying my needs or feelings to end a conflict quickly. Conflict is uncomfortable. And I don’t like it. I was raised to blame myself. But this is how the situation looks to me now…in hindsight. I wish hindsight could come before I make a mess of something. I can see things differently than I did before. That’s with the help of my antidepressant. I can examine my behavior. I can look at not just what I’m doing it but why. And I can change it. I can voice my needs and my feelings. I can decide what I can do for myself and what I want to ask from someone else. Then they have their own choices to make. There is no choice where there is no understanding and no understanding unless I communicate. That scares me too. It’s me being vulnerable…again.

So where am I going with all of this? Excellent question. There is so much love available to us if we can keep the lid of our music box open. If we take the risk of being vulnerable. If we allow ourselves to be seen…to be known. And that is scary. Vulnerability is scary.

We miss out on life if we are unwilling to open to it. Sometimes we need medication to help us. I’m grateful for my medication. Sometimes we need therapy…or both. Always we need each other…always. Communication is the key to our relationships. It’s the best gift we can give each other. Because in the end all that matters is how we love people…show your love by communicating and connecting. Love will win…it always does. Even if you have to serpentine to get there.

Elbow Shemelbow

~ Kai Raines ~ Leave a comment

Now this blog has a huge WTF!? factor…just so you know. I went to fetch my wife…sound southern, don’t I? I fetched her from yonder Colorado. (Of course, people in Florida don’t have southern accents.) Anyway, I drove out to Colorado for two weeks to visit my kids and grandkids and to bring my wife home. When we left Colorado, we drove to Texas to see my wife’s family. Fortunately, we did not get hit by a tornado, but it was close.

The evening we arrived, I noticed my arm was red. Specifically my left, elbow replacement arm, was red around my elbow. I didn’t think too much of it until the redness spread on Sunday. That’s when I showed my wife and became terrified that I might have an infection in my elbow. Apparently, I was told, you can get an infection in a joint replacement up to a year after the surgery. From reading I’ve done it can be many years after surgery. That’s scary.

So, on Memorial Day I called to talk to the on-call doctor back in Florida. He prescribed me some antibiotics and said I needed to be seen when I got home, and I needed to call if anything got worse. Cellulitis is what he called it. It’s a bacterial infection that is usually caused by a cut or some other opening in your skin…well, I don’t have any cuts, so I thought it didn’t sound so bad. Then I started reading about it in connection to joint replacements. Thank you very much google. According to the Mayo Clinic, Cleveland Clinic, and John’s Hopkins this type of infection almost always requires surgery to get the infection out and remove the infected joint. WTF!?

Now I’ve had a lot of surgeries in my life…approximately 45 on various joints. 13 on my elbow. I’m not so afraid of surgery. I’m afraid of what it would mean if I did need surgery. If my elbow replacement needs to be removed, besides the months of IV antibiotics, I won’t have an arm anymore. Nothing will replace the replacement. I’ll have an arm with no elbow so my arm will just be decorative…because it won’t work. I’ll wear a brace and have minimal use of my hand.

When I had the surgery for my broken arm and dislocated elbow replacement last November, I was told that if this replacement failed, as others have, the only option left would be to remove it and not replace it anymore. At that time, I appreciated knowing that if that happened, at least I wouldn’t be in pain anymore. That sounded good. Until now. Now it sounds horrible. If this infection is in my joint, I’m going to lose my arm. Its not going to be amputated but it will only be for show…a useless appendage hanging from my shoulder. I feel overwhelmed and terrified. It’s one thing to hear about a possible thing that might happen in the far away future and being punched in the stomach by an inevitability staring you in the face.

Maybe it’s not inevitable. The redness is mostly gone…it’s still swollen, hot, and stiff. I see the doctor Friday. So, WTF!? I don’t know what the fuck. My work this week is sitting with not knowing…and not freaking out. I’m not inappropriately freaked out…only about a 5. That seems reasonable…given the circumstances. I did stop googling. My mind is very distracted this week on its own…I don’t need to encourage it by being sucked down the google black hole.

I need extra awareness this week. Awareness of my interactions with myself and with others. Awareness of my anxiety. Awareness of my capacity and willingness to love. Awareness of kindness I can offer to myself and others. I didn’t do anything to make this happen so being angry at myself seems unhelpful. Because in the end all that matters is how we love people…and that includes me.

Strangely Grateful

~ Kai Raines ~ Leave a comment

Sometimes when people lecture me on being grateful, I want to punch them in the stomach…I never do which is a good choice on my part.  I am growing up. I’m not sure anyone can look at anyone else’s life and decide whether you’re grateful or not. I think gratitude looks different in everyone.

I consider myself a “glass half full” kinda person. I look for reasons to be grateful. I put a positive spin on things, I’m excellent at reframing, and I like to give people the benefit of the doubt. I work to be aware of my gratitude…and my attitude…which can have a rough edge at times. But sometimes shit goes down and I fear I may never be grateful again. The circumstances scream WHAT THE ACTUAL FUCK?!!! And then I find myself grateful again, despite (or in spite of) my outer circumstances. I might surprise you. I shock the hell out of myself. I’m telling you sometimes I rise…me and the phoenix…fly baby fly!

Of course, all of this is leading to a point. I promise. I have the most amazing wife. She is literally my favorite person in the world…sorry P!nk. We got married on 11-11-11. We thought that would be a lucky day and its Veterans Day, so we got married on a Friday because our friends and family were off work. And now our anniversary is a national holiday…as it should be. Last year we weren’t able to be together for our anniversary, so this year we decided to start celebrating early. The plan was the beach…Treasure Island on Friday and Siesta Key on Saturday. We packed some bubbly (beer bubbles for her and Prosecco bubbles for me) and some snacks. It was a beautiful Friday. All sunshine all day. It was in the 80’s and so the water temperature was chilly but warm enough to swim. We floated out in the water and just hung out talking…about nothing really, and everything. 

When we were getting out of the water, I noticed there was a small step up out of the water and onto the sand…created by the tide I suppose. I walk with a crutch, and I use it at the beach and in the ocean. My point being that I was being careful and lest you think what happens next was alcohol involved, I had had maybe 6 ounces of Prosecco a couple hours earlier. So, I was steady on my feet…or as steady as I ever am on my feet. I started to step up out of the water twice and stopped myself because it didn’t feel safe with the waves. Finally, I took a step and as I did the sand gave way under me and I fell. I fell forward and on my outstretched left arm, which I heard snap and felt break. As a bonus, my elbow was also dislocated. This would be the time to tell you, or remind you, that I have an elbow replacement in my left arm. My interpretation of my elbow dislocating was that the replacement was completely mangled. When I cradled my left arm with my right hand, after I told Gayle to call 911, because I was definitely not okay, I could feel my replacement jiggling around…or my bones…or both. It felt like it was in three pieces. That’s a gross feeling. Even with all the surgeries I’ve had and the years of chronic pain, this is the first time I have ever told a medical professional that my pain was a ten…and I meant a FUCKING TEN!!!! 

People on the beach tried to help me stand up but I couldn’t take the pain of them trying to lift me under my arm. Finally, they pulled me by my shorts out of the water so I wouldn’t be knocked around with the tide coming in…I think it was coming in. I was getting wetter and colder by the minute. The paramedics carried me on a backboard to the ambulance. Slight side note, they put me on a backboard to the stretcher after I suggested it. I really think when you’re in a crisis you should not have to help the professionals with how to handle the situation. I’m making fun here, but they were great and very kind to me. Initially they were fixated on the idea of putting me in their wheelie chair thing and then confused by how they would roll it in the sand. So, the backboard was a welcome suggestion…a “good idea” even. 

Once I was in the ambulance, the EMT asked me if I had ever had fentanyl (I’m resisting the urge to make a bad joke here) and I said, “Yes, and if you have some I would like it NOW please.” Look at me still polite even while in raging pain. If I was a screamer or a crier, I would have been doing so much of both. Lucky for them I learned young to be quiet when in pain. No one wants to hear all that crying and whining anyway, even if your arm is in three pieces. Luckily the IV was put in quickly and a dose of Fentanyl followed. Five minutes later I asked for more. The first dose didn’t touch the pain. After the second dose I was able to relax the grimace that had become my face. I even managed to doze some during the 45-minute drive…I wanted to go to Morton Plant hospital and the EMT’s agreed…even though it was far. They really were great.

Then I got to the ER, got jiggled around, had X-rays, and some IV Dilaudid before I ever saw a doctor…at least I don’t think I had seen a doctor…my memory has a lot of fuzzy places. So, imagine my surprise when the doctor came in and said my arm was broken…that’s not the surprising part…wait for it…He said, “We’re going to admit you and you may have surgery tomorrow.” Now maybe I should have been prepared for that, given the circumstances, but I was not…not even a little.

Shortly after the doctor came in, I was moved to the surgical floor where some angelic nurses helped me change out of my swimsuit. I told them to cut the top off because I was not going to be lifting my three-piece arm to undress. They managed to get it off of me pretty easily, and without scissors. Turns out I had half of Treasure Island in my swim shorts. And that is the danger of pulling people, by their shorts, through the sand. Sand went everywhere. You could have built a small sandcastle in my room. I felt bad because someone from housekeeping had to come and clean it up. I just kept apologizing.

I did not meet my orthopedic surgeon until the next day. Dr. Andrew Boltuch, who my sister says is “too pretty” for her. There was more than one nurse who asked who he was after he left the room. He is very pretty…even a lesbian could see that. Not only is he pretty, but he’s also THE GUY for elbow replacements around here. Talk about serendipity…by the luck of who’s on call, I get the best specialist in the Clearwater/Tampa area…it might be all of Florida…or the United States…or the Universe! It’s hard to know.           

If you follow me, you know that I’ve had a lot of elbow surgeries, ten in fact. There have been repeated failures of the humeral component of my elbow replacement, and it has been revised four or five times in the past couple years. Including once when my joint got infected after surgery because of a sloppy stitching…and by that, I mean they left a fucking hole in my arm. That one surgery turned into three additional surgeries. Back to my point, my elbow is complicated. Even I know that. Dr. Boltuch told me that he had ordered a new humeral component with a longer stem so that it would go up beyond the fracture. He also ordered two cadaver bones to use to reinforce the fracture. So, there was no surgery Saturday. It took until Tuesday to get all the parts to put me back together again.

Tuesday, November 14th, I had a 6-hour surgery that began at 4:00 pm and ended at midnight. I realize that’s eight hours but that includes the getting me situated, asleep, sterilized, and then stapled back together parts. I love my doctor so much because whenever we’d ask him about the surgery, he’d think for a minute and then say, “It was so complicated.” I am hammered, glued, and nailed into place now. And except for the obvious healing pain, my elbow feels good. Better than it has in a couple years.

Now you may wonder, after ten surgeries and multiple revisions, why would I even consider having another implant put in. That’s a fair question and one my wife and I both asked. The doctor said he thought it was reasonable to try one last time with the new component parts and then if this one failed, he’d take the elbow replacement completely out. I would then be fitted for and wear a brace on my left elbow all the time. He said I’d have minimal use of my left hand. He also said that patients who have had that as their outcome are happy with it because they aren’t in pain anymore. Imagine that…no more pain. It made sense to me.

A small issue I haven’t mentioned yet is that the humeral component of my left elbow was already coming loose. When I would move my arm, the joint wouldn’t line up correctly and so I’d have to move it around until it was back where it was supposed to be. It was excruciating pain…although I only gave it a 9.5…because something could always hurt more…right? Anyway, I had an appointment with an orthopedic surgeon set for January to try and find out if anything could be done for my elbow…like injections or a brace. I had been told by the Mayo Clinic that unless something catastrophic happened to my elbow no one would ever do anything surgically to try and help it. At that time, I was already in pain every day…I’d say a 7 or 8…every day…every fucking day!

Now let’s be real…so far this story is pretty depressing. “Romantic day at the beach turns gruesome.” Some headline. I did start off talking about gratitude. And I did name this essay “Strangely Grateful,” so WTF?! The Fuck is that gratitude can find us, or be found, in the least likely circumstances. I was in excruciating pain all day every day because my elbow replacement was loose and moving around in me. With my history, no one was going to touch my elbow and I was depressed at the idea of living the next forty years in increasing pain. 

Enter catastrophic event…unplanned, unforeseen, and very unintended. I was being so careful. I am always careful because I don’t want to fall. That event, that catastrophic event, saved me. In that moment the best elbow doctor in this area (or the Universe) happened to be on call and happened to spend a good amount of time figuring out how to fix me. He had the answer for the chronic pain. Either this surgery works and I’m not in pain or the replacement gets removed and I’m not in pain. There’s no elbow pain at an 8 for the rest of my days. Catastrophe, serendipity, no more pain. I am grateful. I am fucking grateful! If my beautiful doctor wasn’t married, I’d marry him…well, if he wasn’t married, and I wasn’t married…and if I wasn’t a lesbian…you get the idea…we’d never be married. I do love that man and I am forever grateful to him for helping me. I can’t even imagine how complicated my surgery was, but he was in there for six hours doing everything he could to end my pain and leave me with a functioning arm. He came to see me after my surgery at 3:00 am to make sure I was doing okay. I did finally ask him if he ever sleeps because he does work some long ass hours.

Catastrophe, serendipity, no more pain. That’s my formula. Although a huge portion of the “no pain” is working through the healing pain to get to pain cessation. There are just never any good fucking shortcuts. So, catastrophe, serendipity, work your ass off, healing pain, no pain…at least not in that moment. I suppose the danger is in thinking we ever get to “no more pain” as a permanent place of residence. The amazing thing is that the catastrophe can lead to the end of your pain. I guess maybe our lives, if we’re really living them is just one catastrophe after another, with healing happening all around and within us…all the time.

Catastrophe, serendipity, healing pain, no pain…and never forget love. None of this means anything without love. The kindness we give strangers by pulling them out of the water by their shorts, the tenderness of professionals doing their best to ease your pain, the kindness of caring for another human being, the love of problem solving and mastering the complicated…all because we can. Because it is the kind and loving thing to do. Because in the end all that matters is how we love people. Divine is the task to ease pain. Let’s ease someone’s pain every day. Let’s be real…in the end love wins…always.

**Here’s a bonus “end of 2023” special for you…a little something for New Year’s Eve. At midnight open your back door to let the old year out and open your front door to let the new year in…don’t fuck up the order or you might get the same year over again. It’s an Irish tradition I’ve been told. I know I’m ready to open the back door and wish 2023 a fond farewell. 

Here’s to 2024 and all the catastrophes, serendipity, hard work, healing pain, no pain and love we can find, and we can share. Always share the love.

Happy 2024!