My Beautiful Girl

Wednesday was the funeral for my daughter Jessica. I wrote this letter o her and my grandson, Javon, heroically read it for me. It was impossible for me….

I don’t know how to write a eulogy for my daughter, so I thought I’d write her a letter.

Jessica, my beautiful girl,

No one ever prepared me for what to say if you died. Maybe because there aren’t any words…except all the bad ones…the F bomb being my favorite, as you were well aware. I can’t stop thinking that this is not how life is supposed to go. This was not supposed to happen. You were not allowed to die before me.

I’ve been thinking about a Brandie Carlile song called “You Without Me.” Before Christmas I was thinking about you and Amy and Ben and watching you all grow up and separate from me and become your own people…amazing and beautiful people I must say. Brandie Carlile wrote that song about watching that happen with her daughter who is now 10. She says,

“Was your smile always crooked? Was the freedom ever free?

Do you kick the rocks between your feet, after all this time with me?

You can listen to your own records now, decide what you believe

You can pray on stars and skip the gods like stones across the sea

But I would know you anywhere, I lost myself in you

Heavy are the hands that you are free to slip right through

Do what you have to do

There you are, my morning star, I wondered when you’d show

Give me just a quick thumbs up, a wink before you go

I never heard that voice before today, I remind myself to breathe

There you are, it’s just you without me.”

That’s how it should be Jessica…you without me…30 years from now. Not me without you. I’m not sure I know how to be me without you. I did lose myself in you, but I also found myself…as a mom…your mom.

I know that life was a struggle for you. I wanted so much to do or say something to help you realize how wonderful you are. You were so smart and so kind and so funny. Some of my favorite times were with you, Amy, and Ben all of us laughing until we cried.

My sweet girl, I know that this life was too hard and too scary for you. I’m glad you’re without fear now. We had some challenging times when you were growing up. You were still apologizing to me for your teenage antics throughout your 30’s. But I wouldn’t trade one moment of being your mom.

When you were born you didn’t cry like most babies. When the doctor handed you to me, you just opened those beautiful blue eyes and looked at me. No crying or fussing…just looking, as if to say, “it’s me mom….I’m finally here.”

Right before you died, you opened your eyes and looked at me. You hadn’t opened you eyes for over a day. You looked at me and held my gaze as if to say, “it’s me mom…I have to go now.” Your breathing immediately slowed and minutes later you were gone. I had the chance to tell you how much I love you. I told you there was nothing to be afraid of now and that it was okay for you to go…even though there was nothing okay about it. I stroked your cheek, kissed your forehead, and told you that I have loved every moment of being your mom. And then you were gone.

I was with you for your first breath and your last. Thank you for that.

I believe that you are in a peaceful place now. A place without fear. A place where Roro, Foddy, and Grandma Jojo were waiting for you…and where they will care for you now. And I know they will…I gave my parents a long lecture, with a lot of instructions, the day you died.

Now we try to rebuild a life without you in it. Me without you. All of us without you. I’m not sure how. I will miss you forever. I will be grateful for you forever. And I will love you forever…my beautiful girl. Rest well.

The Last Resort

Chronic pain is a funny thing…and by that, I mean a pain in the ass. Now that is funny because my ass doesn’t hurt at all. It’s a pain in my neck, my low back, my left arm and hand, my hips, knees, and feet. That’s all. It’s on my mind today because I woke up at 4 this morning. I woke up because I was in so much pain. I tried going back to sleep until 5:22 and then thought, “Fuck it” and I got up. I feel like I’ve lived a whole day already and it’s 9:53. Might be a long day.

Pain is on my mind because Friday I’m going to a new orthopedic surgeon to discuss my elbow. That is never my favorite conversation. When I fell and broke my arm, into several pieces, and dislocated my elbow two years ago, the surgeon told me that it was “reasonable” to try one more time to put a new implant in and see if it would stay in place. After that he said he would recommend removing the replacement elbow and putting nothing in its place…an arm with no hinge. He told me, if that occurred, I would still have partial use of my hand. And he said his patients that have had their artificial joint removed, without replacement, are happy with the outcome because they have no more pain.

Sit with that for a minute. No more pain…go from daily pain, that ranges from frustrating to intolerable, to none. None. Nada. Zippo. It’s hard for me to even imagine. It has been a long time since my elbow didn’t hurt. I should mention the reason for a new doctor is not because of a problem with the old one…and he isn’t old at all. My insurance changed, and he is no longer in network. That is very sad. I thought about changing my insurance back but the costs of everything would be so much higher, I can’t do it.

I got a recommendation for an “excellent” orthopedic surgeon from a physical therapist I trust. PT’s know all the best doctors…nurses do too. So, I made and appointment and waited three months to see him. Let me back up and say that my elbow has been hurting for the past year and a half. I know the replacement is loose. How do I know it’s loose you wonder. Because this has happened three other times. And those three times I have had revision surgery. The humeral component, in my upper arm, was removed and replaced…hence the term revision…in case you’re wondering…you’re probably not. I should also mention that I can’t always straighten my arm anymore because it gets stuck. When that happens, I push my arm and force it straight. It feels like trying to shift gears on your bike…but the chain is clanking around trying to connect…and the peddles don’t work until it does. My arm grinds and pops when I push it straight. Not my favorite feeling.

So, for a year and a half my old doctor has repeatedly asked me what I wanted to do about my elbow. I have always told him “Nothing.” I haven’t felt like the pain was bad enough for a surgical intervention…and that is the only intervention left. That is until now. Because now I can’t stand the pain anymore. I feel like it’s taking a toll on my body and my mental health…because I feel hopeless. Like I’ll be stuck with this pain, grinding, and popping forever. That’s depressing.

Okay, so now, back to my story…I went to see the new doctor. He said my X-rays looked “good” and my arm looked “good.” My arm is hugely swollen and it looks deformed. If that’s your idea of “looking good” then there’s a problem…we have a problem. Aside from when I broke my arm and dislocated my elbow, my X-rays have always looked fine. The loosening had never been seen until I had a CT scan. I don’t know why that is…different imaging or better imaging, I guess. I just know it’s true.

I told the doctor what my previous orthopedic surgeon said, and he looked at me like I was a lunatic. I felt as though he thought I was casually discussing having my elbow taken out…like I’d talk about what to have for dinner…as if it’s no big deal. It’s a fucking huge deal. I can’t begin to describe how big of a deal. If he had asked me, I would have told him it’s taken a year and a half to even consider this possibility. And I would have said that I’d been practicing doing everything one handed to get an idea of what it would be like. He actually said, “You know you won’t be able to use your arm because you won’t have a joint. Your arm will just hang there.” WTF!? Are you fucking kidding me? Thanks for mansplaining that to me because, dopey me, I didn’t know an elbow was important. That’s what I wanted to say but I refrained. He didn’t ask me anything. He spent all of five minutes with me before he referred me to a different doctor. He said if I needed my joint removed that would be the guy to do it. Obviously, I was a problem he didn’t want to deal with, so he sent me away.

He didn’t ask about the history of my elbow or the eleven earlier surgeries, including the three revisions and the infection that took six months and three surgeries, including several months with no joint, to treat. He asked nothing. I felt invisible and pushed aside. Disregarded. Like I was a problem he didn’t have time for…or any interest in solving. I was depressed, and it took me three weeks to even be willing to make an appointment with the next doctor.

This decision is not because of one failed elbow replacement…every replacement has failed. This is the fourth failure…fourth and final. I cannot keep doing this. This is a huge decision and it’s a painful decision…one I’ve considered for a long time. This was not an easy decision, and certainly not one I’ve taken lightly. It’s scary. I feel afraid. But I cannot live with the constant pain or continue to have my joint locking…or dislocating. My arm isn’t functioning now even with the joint.

So, is it better for me to be in constant pain, needing ever increasing amounts of pain medication. And I need stronger medication because what I have doesn’t work anymore. Is it better for me to lack sleep because of pain. Or to dread each new day because it’s intolerable. Because that’s what chronic pain does…it causes dread. Dread and fear and anxiety. It wears you down day by day…little by little.

Chronic pain is a challenge because other people don’t necessarily see it. I get up each day, take care of the dog, I cook meals, run errands…all the “normal” things. Someone observing me would not see my pain. It’s not like I walk around moaning and crying. I’m not big on complaining…it doesn’t help anything. But because you can’t see my pain you might not know it’s there. That’s a difficult thing about chronic pain…it is frequently invisible. Just because you don’t see my pain does not mean it isn’t there or that it isn’t significant.

I am a strong person. I know that. I’ve been through a lot of shit…and I keep going. In my family, I was praised for being strong. Praised for not complaining and for my ability to handle anything. I wanted the praise, and I wanted to be strong. And I am.

Now I’m learning it is not a sign of weakness that I need something done to help me. I’m not failing because the pain is too much to bear. I can’t take it anymore. I’ve dealt with it for over 7 years…that’s a long fucking time. Maybe my strength now is the realization that I need help. Maybe it’s finally having the ability to ask for help. To seek help. I wonder if at some point it goes from strength to stupidity to just pretend everything is fine when the pain is unbearable. Maybe that’s just denial…or fear…or both.

Chronic pain is a reality for millions of people in this country…including people you know. Chronic pain isn’t just physical pain. It’s also emotional pain. The fear. The depression. Feeling disregarded or disrespected. Dismissed…tossed aside for someone else to deal with. Told, without words, to be quiet and stop being a problem. Be an obedient and quiet little girl. Don’t make waves. Listen to the doctor…he says nothing is wrong…and his opinion is the only one that matters.

Now I doubt this doctor intended all of that…at least I hope not. He could have been having a bad day. I have no idea. But I am not just an elbow. The elbow in question comes with a person…me. And I need help. Seeing a doctor when you’re in a lot of pain, or there’s a problem…or both, is a very vulnerable position to be in. I was there because I needed you to help me.

I came to you sad and scared and I took the risk of sharing that with you. I came to you vulnerable. Don’t send me away. Don’t get me out of your office as fast as you can. Don’t mock me by imitating what my arm will be like without a joint…flailing it around, as you speak to me like I’m crazy. Understand that my pain must be fucking awful if I’m willing to consider such a drastic last resort.

When I come to you and tell you who I am, listen to me. And when I share my pain, believe me. I’m taking a risk to tell you…don’t make we regret it. Because then my pain will go back underground and remain buried until I’m willing to take another risk, if I ever am. Don’t teach me it’s not safe to trust.

In the end what matters is how we love people. Love the people in your life who are in pain. Believe them. Listen to them. Divine is the task to ease pain. Let’s ease each other’s pain…that is divine.

Three Things

Now here it is, already 2025…20 days in and I am still not ready. The year went so fast and so many things did not go how I planned…I hate it when that happens…and so I have been dragging my ass into 2025, a little bit kicking and screaming. My resistance reminds me of a quote I read, from someone, that said, “I never let go of anything that didn’t have claw marks on it.” That is an exact description of me…written by someone who does not even know me. If you read my blogs, you are nodding your head right now because you know. You know it’s true. If you don’t follow me, see what you’re missing? Also, it’s time to start…Now! Please.

One of the things that did not turn out the way I planned was the presidential election. I was ready for a President Harris. I feel like I am living in backwards world, where being a dishonest, arrogant, hateful, convicted felon paves the way for you to become President and being an honest, compassionate, and intelligent woman gets you nowhere. So, as the inauguration is taking place, I am reminded of 3 things I did immediately after the results of the election:

I joined the ACLU and signed up to volunteer.

I bought all my grandchildren, (ages 11 to 20) a copy of the US Constitution and told them to read it. I instructed them to learn what their rights are because they may not have them much longer.

Finally, I told my son and his fiancé to get married now. They want to have a big, beautiful wedding and that is a celebration I am eager to be a part of. Planning that takes time…and I’m not sure how much time there is after January 20th. I suggested they get the marriage license now and get legally married while they still can. The supporters of Project 2025, with the cooperation of the Supreme Court, aim to reverse marriage equality. To which I’ve been known to say, “Just try and get my marriage license from me.” I don’t think you can un-marry people or nullify marriages…not legally anyway. But that may not matter. Clarence Thomas has already said that marriage equality needs to be “revisited” by the high court. There is an Idaho case working its way to the Supreme Court right now that seeks to redefine marriage as between one man and one woman. That is happening as I write.

Of my many grandchildren, one said she would keep the constitution in her purse, and one sat down and started reading it…I don’t play favorites but come on, he sat down and started reading immediately. I am a proud grandmother.

Most importantly, my son and his now husband got legally married on December 29th! I am so happy for them and so relieved. I’m not sure if straight people can understand how important it is to be legally married. If getting married was a given for you, I guess you might take it for granted. But if you have been denied that right, it is huge…HUGE! To be recognized as a married person…no special rights, just equality. It is something I did not think I would see in my lifetime. To have your marriage vows honored for their importance in your life and in our society. Being a family…legally a family. That is important shit right there. That is a right I fought for and that is a right I will continue to fight for. Maybe the President will find out that someone in his life, that he loves, is gay and he will reconsider. Or maybe he will grow a heart…him, the Tin Man and the Grinch. Maybe he will learn some kindness and equity. Maybe he will grow to see beyond dollar signs and what benefits him and his cohort of billionaires. Maybe, maybe, maybe…unlikely, I fear.

So where am I going with all of this? I wish I knew. I am tired, frustrated, and terrified. The future seems more unknown than normal…and more out of control. So, what to do, besides meditate, pray, volunteer, give money, educate myself and others, and hope. It seems like conditions are ripe in this country for hate, violence, domination, and fascism to run rampant over the rights of the non-elite. Even President Biden warned of a growing oligarchy right here at home…just like other autocracies. Fuck.

We all know the saying, “What doesn’t kill you makes you stronger.” In some ways this is killing me…killing all of us…our collective spirits for sure. What I have always believed about this country and the rights guaranteed to us in our constitution has been completely blow the fuck up. And although they, the new autocracy, may not see it now, this will destroy their supporters as well. I fear we are all headed over a cliff, many voluntarily, and most leaving claw marks as they try to resist…as I try to resist. This is a proper place for claw marks. You cannot destroy other people and be unaffected. You cannot create bigotry, fear, and hatred and remain undamaged…or untwisted. And there are some fucking twisted people running things now.

Although I do believe that difficult circumstances can make us stronger, I prefer to believe that what doesn’t kill us makes us kinder…or it can make us kinder. We must cooperate to become kinder…we have to learn from our circumstances and allow ourselves to seek kindness as a character trait. I must understand, we must understand, that what we do affects other people and the choices others make impact us too. We do not live or move or act in a bubble. Our actions have consequences. Our inaction has consequences as well.

I have been re-reading The Four Agreements” by Don Miguel Ruiz. In the book he discusses the term “domestication” which seems particularly relevant right now. From birth we are taught what to believe and how to act. We are rewarded for “good” behavior and punished for “bad.”  We learn to seek rewards and fear punishment. We learn our lessons and bury our own opinions or beliefs. We are afraid of the consequences of disagreeing or forging our own path. And so, tamed and trained we become compliant. Silent and compliant.

If ever there was ever a time in our history not to blindly follow, comply or agree, it is surely today. Today is the day to wake up. Wake up to the new form of domestication we are experiencing in subtle and not so subtle ways. The push to doubt what we see with our own eyes. To accept lies as the truth, “alternative facts” right? To hate anyone who is not like “us.” “Us” being white, wealthy, heterosexual, Christian, republican, and if you are male, all the better.

As I have said before I am trying to live “off the edge.” The edge being a chronic, low-level anxiety that seems to be my neutral…waiting for the next catastrophic or traumatizing event to occur. Today is not the day to lose my feel for the edge. For me, our nation is on the edge. The edge of what exactly I’m not sure…although it does not feel like anything good.

The best I have to offer myself or anyone else today is to take a deep breath. Breathe deeply and feel yourself grounded wherever you are. In this one moment, in that one breath, I am okay. For one breath you are okay. That is all we have, one breath at a time…for the next 4 years. We must wake up and remain awake even when other forces strengthen their attempts at domestication. No one gets to decide what I believe. They may have when I was younger but not now. I am who I am. I believe what I know to be true…what I see with my own eyes and what I hear with my own ears, what I investigate, study, and learn. Guided by my spirituality and the golden rule.

I cannot come off the edge today, or even in the near future, but I can remain attentive and aware of what is happening…in me, around me, and in the world. I can be aware and engaged. I can continue to breathe and be engaged…even when it’s hard…even when it sucks. That is all I have for now…breathe, stay grounded, stay engaged, and most importantly, allow this world to make me kinder…to make us kinder. Even when it seems impossible. Because in the end all that matters is how we love people. Choose love…every time. Love will win. It always does. And be kind…please. Now more than ever.

Still Broken

Well, it has been a week…not even a week yet. Fuck. My wife asked me how I was doing on Wednesday or Thursday, and I said I felt overwhelmed. She asked me why, as in specific reasons, not questioning my emotions. I said, “I don’t know…the end of our democracy.” And that silenced us both.

Since then, my fears have just multiplied. You may ask, “Why?” I will lay it out for you:

*Putin, seeing the election results, said that a “new world order is forming.”

*The plan for mass deportation of undocumented migrants in this country regardless of circumstances or the devastating impact on the economy.

*A federal judge striking down Biden’s program for undocumented spouses, as illegal. The program designed to keep families together.

*The undoing of the constitutional right to reproductive healthcare, including the right to an abortion.

*The blatant plan to reverse marriage equality.

*Texts sent to Black Americans telling them they have “been selected to pick cotton” at a nearby plantation. These texts went out to adults, as well as, college and high school students. And these texts were not just in Georgia, Alabama, Louisiana the states considered the deep south…were I guess people expect such racism, seriously? They were sent in New York, California, Pennsylvania, Ohio, Wisconsin, and Michigan. And that is not the entire list. What is happening?

*The rise of fear, anger, and hate, and a growing attitude of us vs them. The use of those emotions as weapons to pit us against each other…even when what we are hearing is not true.

*The supreme court granting the president almost complete unchecked power. The branches of government designed to act as the checks and balances of presidential power no longer function that way.

*The President Elect already preparing pardons for the January 6Th rioters who attempted to overthrow our government and disrupt the peaceful transition of power. People died that day. 174 police officers were injured. One was killed.

*Elon Musk promised a cabinet position where he will cut the federal budget by 3 trillion dollars. And they have told us that people will suffer.

*RFK Jr. will oversee the Department of Health…and specifically women’s health. There is nothing that makes less sense than a man appointed to make the rules or guidelines for women’s health. He is an unapologetic anti-vaccination and conspiracy theorist…which could lead to the return of illnesses that previously were eradicated by vaccines.

*Referring to anyone who disagrees with the administration as the “enemy within” and the threat of using the armed forces against citizens of this country.

*And the last thing I am going to mention (and I could go on), the President Elect plans to destroy the Department of Justice and fire all career prosecutors, to remake the justice system in his image and use it against his enemies…that would be anyone who disagrees with him.

I feel like I am living in The Hunger Games…only this is no game. I love movies, but I do not want to live in them. They are fantasy and not real…except when the leader of our country wants to make it real. The elite having all the privilege, access, and opportunity and everyone else existing to meet their needs and keep them happy. And to entertain them…fooling themselves into thinking that the game you are entering is a privilege rather than an atrocity. But in the end, it took 3 books, Katniss Everdeen, the girl on fire, prevails…but a lot of shit goes down before that can happen.

Back in 2020 I wrote a blog called, “Broken.” At the time I was feeling devastated because of Covid and the tremendous loss of life and the murder of George Floyd. I am sharing the link here (http://karenraines.com/2020/06/03/broken/) because I am still broken. We are broken. Our country is broken. It is easy now to feel like everything is out of our control and there is nothing we can do, but that is not true. This week I joined the ACLU and signed up to volunteer. It’s a small step but it’s a step. We all must make ourselves keep moving forward.

Here’s the thing, I always write about love. Love as a guiding principle in my life. The need for love in our treatment of other people. Seeing people who may not be the same as us through a lens of love. Love conquers hate. Love is bigger than any person’s bigotry. Love produces more love. When we act with love for ourselves, our communities, our country, our world, our actions become compassionate, filled with kindness, and a desire to connect, not separate. We come to care for one another and want the best for each other…regardless of the color of your skin, what pronouns you use, who you love, where you’re from, or what language you speak. We see and share our common humanity. In the end, what matters is how we love people. We have some serious work to do.

Love is powerful and healing. We need some healing…some big fucking healing. Is that going to happen right now? I hope so but I think we are in for a rough road ahead. While fear, anger, and hate are in the oval office love will appear to be losing…but it will not lose.

Love has been on my mind all week and I’ve been confused on how to proceed. I do not feel loving right now. I am scared and angry. So, I turned to some teachers to find comfort and direction. Buddha said, “In this world hate never yet dispelled hate. Only love dispels hate. This is the law, ancient and inexhaustible.” And St. Francis had a beautiful prayer that can help us move in a positive direction. “Make me an instrument of your peace, Where there is hatred, let me sow love; Where there is injury pardon; Where there is doubt, faith….that I may not so much seek to be consoled as to console; To be understood, as to understand; To be loved as to love.”

Now there are some marching orders. But I am not marching right now. I am staggering. We are staggering. I still feel a deep sense of shock and loss. We need to feel all the feelings and not rush ourselves to get over it. Take time. Time to care for yourself and those around you. Think about ways to get involved and stay involved. Imagine a world where equality is the norm, and everyone has the same opportunities. Imagine no racism, sexism, misogyny, homophobia, transphobia, elitism…all the isms and phobias eliminated. Picture that world. Create a picture in your mind or on a vision board. Look at in several times a day. Make it the first image of your morning and last image you see at night. Look at it and believe in the possibility…the possibility of real change. Let that image guide you to the next best step for you…for us. Remember, in the end all that matters is how we love people…especially when it’s hard. Love always wins. Let’s win together.

Elbow Shemelbow

Now this blog has a huge WTF!? factor…just so you know. I went to fetch my wife…sound southern, don’t I? I fetched her from yonder Colorado. (Of course, people in Florida don’t have southern accents.) Anyway, I drove out to Colorado for two weeks to visit my kids and grandkids and to bring my wife home. When we left Colorado, we drove to Texas to see my wife’s family. Fortunately, we did not get hit by a tornado, but it was close.

The evening we arrived, I noticed my arm was red. Specifically my left, elbow replacement arm, was red around my elbow. I didn’t think too much of it until the redness spread on Sunday. That’s when I showed my wife and became terrified that I might have an infection in my elbow. Apparently, I was told, you can get an infection in a joint replacement up to a year after the surgery. From reading I’ve done it can be many years after surgery. That’s scary.

So, on Memorial Day I called to talk to the on-call doctor back in Florida. He prescribed me some antibiotics and said I needed to be seen when I got home, and I needed to call if anything got worse. Cellulitis is what he called it. It’s a bacterial infection that is usually caused by a cut or some other opening in your skin…well, I don’t have any cuts, so I thought it didn’t sound so bad. Then I started reading about it in connection to joint replacements. Thank you very much google. According to the Mayo Clinic, Cleveland Clinic, and John’s Hopkins this type of infection almost always requires surgery to get the infection out and remove the infected joint. WTF!?

Now I’ve had a lot of surgeries in my life…approximately 45 on various joints. 13 on my elbow. I’m not so afraid of surgery. I’m afraid of what it would mean if I did need surgery. If my elbow replacement needs to be removed, besides the months of IV antibiotics, I won’t have an arm anymore. Nothing will replace the replacement. I’ll have an arm with no elbow so my arm will just be decorative…because it won’t work. I’ll wear a brace and have minimal use of my hand.

When I had the surgery for my broken arm and dislocated elbow replacement last November, I was told that if this replacement failed, as others have, the only option left would be to remove it and not replace it anymore. At that time, I appreciated knowing that if that happened, at least I wouldn’t be in pain anymore. That sounded good. Until now. Now it sounds horrible. If this infection is in my joint, I’m going to lose my arm. Its not going to be amputated but it will only be for show…a useless appendage hanging from my shoulder. I feel overwhelmed and terrified. It’s one thing to hear about a possible thing that might happen in the far away future and being punched in the stomach by an inevitability staring you in the face.

Maybe it’s not inevitable. The redness is mostly gone…it’s still swollen, hot, and stiff. I see the doctor Friday. So, WTF!? I don’t know what the fuck. My work this week is sitting with not knowing…and not freaking out. I’m not inappropriately freaked out…only about a 5. That seems reasonable…given the circumstances. I did stop googling. My mind is very distracted this week on its own…I don’t need to encourage it by being sucked down the google black hole.

I need extra awareness this week. Awareness of my interactions with myself and with others. Awareness of my anxiety. Awareness of my capacity and willingness to love. Awareness of kindness I can offer to myself and others. I didn’t do anything to make this happen so being angry at myself seems unhelpful. Because in the end all that matters is how we love people…and that includes me.

Thoughts on PTSD

I think most people are familiar with the term PTSD. Post Traumatic Stress Disorder. We’re familiar with the words but maybe not the meaning or a full understanding of what’s involved with that diagnosis. I have diagnosed myself, (because it saves time) with PTSD as a result of the traumatic fall I had November 10th.

According to the National Institute of Mental Health, PTSD requires exposure to an event that involved the actual, or threat of death, violence, or serious injury. The disorder develops in some people who experience a shocking, scary, or dangerous event. Either you experienced the traumatic event, you witnessed it, someone close to you experienced the event, or you are repeatedly exposed to graphic details of traumatic events, for example, first responders. The National Center for PTSD estimates that out of 100 people, 6 will experience PTSD at some point.

As I was reading this week, I was reminded that my PTSD started before last November. When I was in my 30’s I started working for the Denver Department of Human Services as a child protection caseworker. I had a caseload of families with children who had been removed from their homes because of child abuse and/or neglect. One winter morning I had gone to a school staffing at 7:00 am about 45 minutes from where I worked. When I left the school, it was snowing…more like sleeting. I was driving very slowly because the highway was icy. All of a sudden, I saw a pickup truck lose control on the other side of the highway. The truck spun into the grass median and then flipped over and over toward me. I thought I was going to die. I thought the truck would end up on top of my car…and me. I tried to stop but my car slid on the ice. I hit the pickup truck when it stopped flipping and the car behind me hit me. As the truck was landing the driver was ejected from the front seat and went sliding down the highway. He looked like he was just sleeping as he slid by. I tried to steer away from him but couldn’t because of the ice. I thought I ran him over. 

When everything stopped moving, I was really shaken up. I understand now why an “excited utterance” is an exception to the hearsay rule in court. There’s no time or ability to lie about anything. I understand this because pretty much as soon as a state patrol officer said “hi” I blurted out everything that had happened, including thinking that I ran the driver over as he slid down the highway. The officer told me I did not run him over. The “him” was a 17-year-old, who stole his grandfather’s truck. He didn’t even have a drivers license. It was so sad because he died at the scene. The officer was gentle with me and told me several times that that young man’s death was not my fault. I think because the truck was flipping down the highway at me, I knew it wasn’t my fault. 

That accident gave me PTSD and I still have it. I cannot drive in the snow or ice…well, I physically can but emotionally it’s a bad idea. I am terrified of snowy or icy roads. And you may think, “well I don’t like them either, no one does.” True…but I’m afraid I’m going to be killed at any moment. I’m terrified that a car is going to flip over and smush me…and I’ll be dead. I literally cannot be in a car, riding or driving, in those conditions. That was almost 30 years ago, and I remember it like it was yesterday. I still feel the fear of dying and I still see that young man sliding down the highway. None of those images have faded in all these years.

It is natural to feel afraid during and after a traumatic event. A diagnosis of PTSD requires symptoms that last longer than a month and that significantly interfere with aspects of daily living, like work, or relationships. Symptoms must be unrelated to medication, substance abuse, or other illness. PTSD also requires: at least 1 re-experiencing symptom, such as flashbacks, distressing thoughts, recurring memories or dreams; at least 1 avoidance symptom, like avoiding thoughts or feelings, staying away from certain people, places, or events; at least 2 arousal and reactivity symptoms, such as hyper-vigilance, being easily startled or frightened, difficulty with sleep and concentration, feeling irritable or angry, self-destructive behavior; and at least 2 cognition or mood symptoms for example, difficulty remembering key parts of the traumatic event, ongoing feelings of fear, anger, shame, or guilt, loss of interest in activities you used to enjoy, feeling isolated, difficulty feeling positive emotions, and ongoing negative emotions.

There are so many reasons for PTSD personally, as communities, as a country, as a world…9/11, school shootings, as well as shootings in churches, synagogues, movie theaters, and LGBTQ+ nightclubs. There are murders, car accidents, bad falls, assaults, and fucking Covid. And I’m just stopping there but the list of trauma inducing events goes on and on…wildfires, tornadoes, hurricanes, floods…you see my point. I wonder if there’s anyone out there who doesn’t have PTSD. After 9/11 I walked around watching the sky and waiting for the next plane to crash and the next building to fall. After Pulse Nightclub I felt, and still feel, hunted, as a member of the LGBTQ+ community. After the Columbine shooting, I questioned the wisdom of sending my kids to school. The pandemic made me want to put everyone I care about into plastic bubbles so they couldn’t get Covid…and couldn’t die.

I think we are a nation of collective PTSD, but we don’t know it. We don’t know because, instead of feeling all the pain and loss of those events, we shut down or we just get angry. It might be righteous anger but it’s still just one feeling, one reaction. It’s easier to feel anger than to feel afraid or confused, or loss, or sadness. There’s been tremendous loss and we should all feel sad, we should be heartbroken, but instead we just get angrier. We are a nation full of angry people…angry traumatized people. When we attempt to solve problems while we are angry our solutions can easily turn to violence…guns, tanks, bombs. We hurt and so we want them to hurt too…whoever “them” may be. They did this to us, so we’ll do this to them…upping the ante with every reaction. 

And we are just reacting. When we’re traumatized, when we’re scared, when we feel threatened, our reaction is fight or flight. I am either gonna beat the shit out of you or I am gonna run the fuck away and hide. Those are the physical reactions our bodies automatically produce. We have a physical reaction but what is our response? Are we able to stop a moment, take a breath, and make a decision of how we will respond? Make a conscious choice. When a traumatic event occurs, our reactions are immediate, and they need to be so that we protect ourselves. When recurring fears and feelings are stirred up because of PTSD we need to find a way to respond. We need to be able to choose an appropriate response when we aren’t in danger, but we’re triggered. When I was walking my dog and I tripped, I was not in danger. Nothing happened to me. I was safe. But for example, if my reaction was to decide to never leave my house again, that might be a bit extreme. When triggered my reactions are not to actual danger but rather a perceived danger. I see danger everywhere because the world hurt me. The beach broke me, a car flipped in front of me, a dead body slid past me on the road…I was minding my own business, and the world got me. How did it get me? It reminded me that I am not in control. I’m not in control of the world or of people or even myself sometimes. Shit happens because I can’t stop it. I can’t stop it because I can’t control it…”it” being literally everything. Well fuck. People fall, cars crash, people die…life happens. Sometimes life feels a bit relentless. 

So, let’s be real…I have physically been put back together from the fall but mentally and emotionally, I feel guarded…maybe tentative is a better word. I feel tentative in my interactions with the world around me. So, what is a lover of the beach to do, especially since I’m scared now. I’m not exactly sure but I know one thing, sitting and being still with myself can only help. Sitting as in meditation or prayer or whatever reason causes you to sit alone and in silence. So, I’m gonna sit. Then, I’ll sit…and finally, I’ll sit some more. Because in a world that feels out of control, I can control that. I can control sitting myself down and meditating…or just closing my eyes and being still. Quiet, still, and by myself. 

So that’s my plan. To sit. Yep, that’s the whole plan. Call it meditation, call it relaxing, or call it laziness.  It doesn’t matter what you call it, it matters that you do it. So, I’ll sit 20 minutes a day…maybe only 10 to start. I’m not sure what to do with all these feelings. So, I’m gonna sit. I’m going to allow my much-feared feelings to arise as they want to and I’m going to sit with them. I’m going to stay with them. I am not going to interact with them, at least not now. I’m going to notice them in my mind, recognize them, notice them in my body, and then let them go. I’m going to notice, touch, and let go. And they will go…if I let go. I’m going to allow these feelings to come to me instead of trying to orchestrate how I’ll fix them without feeling them. Nothing needs to be fixed. All I need is to be aware.

Before I end here, I want to say that I am not writing this as a mental health expert or an expert in PTSD. I am writing as a fellow traveler on this journey with trauma. I’m reading and learning and sharing. This is not intended to take the place of any therapy. Only you know if you need therapy. If you think you might then you should. Therapy can be very helpful. 

If you are going to hurt yourself, call 911. If you have suicidal thoughts, get help right away. Reach out to a friend, a spiritual advisor, or someone you trust. Make an appointment with your doctor or therapist. You can contact the Suicide Crisis Lifeline 24 hours a day. Text 988 with any message you want and have a conversation with a counselor through text or chat. You can also call 1-800-suicide 24 hours a day, 7 days a week. Please reach out and get the help you need.

As a person who has experienced trauma, in relationships with people who have experienced trauma, in a nation that has experienced trauma, and as part of a massively traumatized world, be kind. Be kind to yourself. Be kind to other people. Lead with love in all your interactions. Because we need love to win. We need love to win everywhere. In the end, all that matters is how we love people. So, lead with love. Love is always the place to begin.