Tag: Depression

The Last Resort

~ Kai Raines ~ Leave a comment

Chronic pain is a funny thing…and by that, I mean a pain in the ass. Now that is funny because my ass doesn’t hurt at all. It’s a pain in my neck, my low back, my left arm and hand, my hips, knees, and feet. That’s all. It’s on my mind today because I woke up at 4 this morning. I woke up because I was in so much pain. I tried going back to sleep until 5:22 and then thought, “Fuck it” and I got up. I feel like I’ve lived a whole day already and it’s 9:53. Might be a long day.

Pain is on my mind because Friday I’m going to a new orthopedic surgeon to discuss my elbow. That is never my favorite conversation. When I fell and broke my arm, into several pieces, and dislocated my elbow two years ago, the surgeon told me that it was “reasonable” to try one more time to put a new implant in and see if it would stay in place. After that he said he would recommend removing the replacement elbow and putting nothing in its place…an arm with no hinge. He told me, if that occurred, I would still have partial use of my hand. And he said his patients that have had their artificial joint removed, without replacement, are happy with the outcome because they have no more pain.

Sit with that for a minute. No more pain…go from daily pain, that ranges from frustrating to intolerable, to none. None. Nada. Zippo. It’s hard for me to even imagine. It has been a long time since my elbow didn’t hurt. I should mention the reason for a new doctor is not because of a problem with the old one…and he isn’t old at all. My insurance changed, and he is no longer in network. That is very sad. I thought about changing my insurance back but the costs of everything would be so much higher, I can’t do it.

I got a recommendation for an “excellent” orthopedic surgeon from a physical therapist I trust. PT’s know all the best doctors…nurses do too. So, I made and appointment and waited three months to see him. Let me back up and say that my elbow has been hurting for the past year and a half. I know the replacement is loose. How do I know it’s loose you wonder. Because this has happened three other times. And those three times I have had revision surgery. The humeral component, in my upper arm, was removed and replaced…hence the term revision…in case you’re wondering…you’re probably not. I should also mention that I can’t always straighten my arm anymore because it gets stuck. When that happens, I push my arm and force it straight. It feels like trying to shift gears on your bike…but the chain is clanking around trying to connect…and the peddles don’t work until it does. My arm grinds and pops when I push it straight. Not my favorite feeling.

So, for a year and a half my old doctor has repeatedly asked me what I wanted to do about my elbow. I have always told him “Nothing.” I haven’t felt like the pain was bad enough for a surgical intervention…and that is the only intervention left. That is until now. Because now I can’t stand the pain anymore. I feel like it’s taking a toll on my body and my mental health…because I feel hopeless. Like I’ll be stuck with this pain, grinding, and popping forever. That’s depressing.

Okay, so now, back to my story…I went to see the new doctor. He said my X-rays looked “good” and my arm looked “good.” My arm is hugely swollen and it looks deformed. If that’s your idea of “looking good” then there’s a problem…we have a problem. Aside from when I broke my arm and dislocated my elbow, my X-rays have always looked fine. The loosening had never been seen until I had a CT scan. I don’t know why that is…different imaging or better imaging, I guess. I just know it’s true.

I told the doctor what my previous orthopedic surgeon said, and he looked at me like I was a lunatic. I felt as though he thought I was casually discussing having my elbow taken out…like I’d talk about what to have for dinner…as if it’s no big deal. It’s a fucking huge deal. I can’t begin to describe how big of a deal. If he had asked me, I would have told him it’s taken a year and a half to even consider this possibility. And I would have said that I’d been practicing doing everything one handed to get an idea of what it would be like. He actually said, “You know you won’t be able to use your arm because you won’t have a joint. Your arm will just hang there.” WTF!? Are you fucking kidding me? Thanks for mansplaining that to me because, dopey me, I didn’t know an elbow was important. That’s what I wanted to say but I refrained. He didn’t ask me anything. He spent all of five minutes with me before he referred me to a different doctor. He said if I needed my joint removed that would be the guy to do it. Obviously, I was a problem he didn’t want to deal with, so he sent me away.

He didn’t ask about the history of my elbow or the eleven earlier surgeries, including the three revisions and the infection that took six months and three surgeries, including several months with no joint, to treat. He asked nothing. I felt invisible and pushed aside. Disregarded. Like I was a problem he didn’t have time for…or any interest in solving. I was depressed, and it took me three weeks to even be willing to make an appointment with the next doctor.

This decision is not because of one failed elbow replacement…every replacement has failed. This is the fourth failure…fourth and final. I cannot keep doing this. This is a huge decision and it’s a painful decision…one I’ve considered for a long time. This was not an easy decision, and certainly not one I’ve taken lightly. It’s scary. I feel afraid. But I cannot live with the constant pain or continue to have my joint locking…or dislocating. My arm isn’t functioning now even with the joint.

So, is it better for me to be in constant pain, needing ever increasing amounts of pain medication. And I need stronger medication because what I have doesn’t work anymore. Is it better for me to lack sleep because of pain. Or to dread each new day because it’s intolerable. Because that’s what chronic pain does…it causes dread. Dread and fear and anxiety. It wears you down day by day…little by little.

Chronic pain is a challenge because other people don’t necessarily see it. I get up each day, take care of the dog, I cook meals, run errands…all the “normal” things. Someone observing me would not see my pain. It’s not like I walk around moaning and crying. I’m not big on complaining…it doesn’t help anything. But because you can’t see my pain you might not know it’s there. That’s a difficult thing about chronic pain…it is frequently invisible. Just because you don’t see my pain does not mean it isn’t there or that it isn’t significant.

I am a strong person. I know that. I’ve been through a lot of shit…and I keep going. In my family, I was praised for being strong. Praised for not complaining and for my ability to handle anything. I wanted the praise, and I wanted to be strong. And I am.

Now I’m learning it is not a sign of weakness that I need something done to help me. I’m not failing because the pain is too much to bear. I can’t take it anymore. I’ve dealt with it for over 7 years…that’s a long fucking time. Maybe my strength now is the realization that I need help. Maybe it’s finally having the ability to ask for help. To seek help. I wonder if at some point it goes from strength to stupidity to just pretend everything is fine when the pain is unbearable. Maybe that’s just denial…or fear…or both.

Chronic pain is a reality for millions of people in this country…including people you know. Chronic pain isn’t just physical pain. It’s also emotional pain. The fear. The depression. Feeling disregarded or disrespected. Dismissed…tossed aside for someone else to deal with. Told, without words, to be quiet and stop being a problem. Be an obedient and quiet little girl. Don’t make waves. Listen to the doctor…he says nothing is wrong…and his opinion is the only one that matters.

Now I doubt this doctor intended all of that…at least I hope not. He could have been having a bad day. I have no idea. But I am not just an elbow. The elbow in question comes with a person…me. And I need help. Seeing a doctor when you’re in a lot of pain, or there’s a problem…or both, is a very vulnerable position to be in. I was there because I needed you to help me.

I came to you sad and scared and I took the risk of sharing that with you. I came to you vulnerable. Don’t send me away. Don’t get me out of your office as fast as you can. Don’t mock me by imitating what my arm will be like without a joint…flailing it around, as you speak to me like I’m crazy. Understand that my pain must be fucking awful if I’m willing to consider such a drastic last resort.

When I come to you and tell you who I am, listen to me. And when I share my pain, believe me. I’m taking a risk to tell you…don’t make we regret it. Because then my pain will go back underground and remain buried until I’m willing to take another risk, if I ever am. Don’t teach me it’s not safe to trust.

In the end what matters is how we love people. Love the people in your life who are in pain. Believe them. Listen to them. Divine is the task to ease pain. Let’s ease each other’s pain…that is divine.

But I Don’t Feel Sad

~ Kai Raines ~ Leave a comment

Depression is a funny thing…well, not exactly funny…interesting. I had a friend years ago who lectured me about how people take “happy pills” to avoid dealing with life. Taking the easy way out, according to her. She made her comments before she knew I took an antidepressant. I felt offended and I let her know. She had no personal knowledge about antidepressants; she just had opinions. I explained that depression is generally caused by a chemical imbalance in your brain and that imbalance will not correct itself on its own. If you do not have an imbalance then an antidepressant will not do anything for you. That’s what my doctor told me. It’s not that simple and there can be other causes but explaining it all will take too long and way too many words…and I am not a doctor. Depression is complicated.

Taking an antidepressant is not an easy way to anything because people, like my friend, are very judgy about it. They think you are weak or crazy. Why can’t you just be happy, they ask, and then accuse you of trying to escape your life or reality. What they do not understand is what it feels like to be depressed, clinically depressed. It is awful.

Over 29% of adults have reported having a diagnosis of depression at some point in their lives. Over 21 million people are affected by depression each year. Depression affects women more often than men. During the pandemic there was an increase in depression. That makes sense. Four out of ten people reported being depressed or anxious during Covid 19. I’m surprised it’s not ten out of ten. That shit was scary and hard. The number of depressed individuals increased 60% between 2013 and 2023, according to the Center for Disease Control and Prevention. And you are more likely to be obese if you are depressed and more likely to be depressed if you are obese. That’s fucked up. The symptoms of depression include, severe and persistent low mood, a sense of despair, decrease in energy, changes in level of functioning, weight gain or loss, without dieting, difficulty getting out of bed, problems with concentration, sleeping, and energy. And a decrease in your sense of self-worth. Depression is the most common cause of disability in this country.

There is a genetic component to depression as well. In my family, my grandmother was depressed. My mom was depressed. My children have dealt with depression, as well as people in my extended family. And I understand that my great grandmother was most likely depressed. She would “take to her bed” for days at a time. I’m not sure about my grandma but my mom did the same thing. We were in trouble when she went to bed and shut the door.

Anger is not listed as a primary symptom of depression, so I was surprised…well, surprised in hindsight…that it was a symptom for me. As close as the DSM V, the Bible of mental illnesses, comes is irritability. Well, I was irritable too. I just didn’t realize it until I wasn’t anymore.

Medication is not a quick fix, and it does not just make you happy. I have done my share of therapy over the years…there are therapist happily retired with my financial help. And I worked through a ton of shit. I am still working through issues…on and on they go. What an antidepressant has done for me is help me return to a place of caring about my life and wanting to deal with shit…deal with life. They helped me feel like myself again. Allowed me to get out of bed and engage with the world. Take care of myself and whoever or whatever else I needed to.

My wife, Gayle, and I have been married almost 14 years and been together 17. One of the things I love most about her, about us, is how easy it is to be together. We get along great. I never get tired of her company. She is my best friend. I see her first thing every morning and last thing every night and I wouldn’t want it any other way. There is a comfortable and familiar flow to our relationship…it’s easy…usually.

I have written about the past couple of years and my wife traveling between Colorado, where we used to live, and Florida, our current home, for work. She traveled and I traveled. She flew and I drove. Then we drove. I made several road trips to Colorado to spend time with her, more than a week, because the separation was hard. Then Gayle retired in November, and she is in Florida permanently. We still drive to Colorado when we want to visit but we do it together.

After she was home, we noticed ourselves being irritable with each other. We have felt that before and recognized it as a settling back in with each other period…getting used to each other again. During our time apart we developed our own way of doing things…different from each other. For example, she ate dinner way later than I did. She ate different food, cooked differently than the way we did it before. She loaded the dishwasher differently…small, stupid things that did not feel small or stupid. We felt distant…I felt a distance between us.

I like to think of myself as laid back and easy going. I like to think it, but thinking does not make it true. Too bad. I tend to take things very personally, even when they are not personal. I do this even though, in the book The Four Agreements, by Don Miguel Ruiz, the second agreement is not to take anything personally. Followed by do not make assumptions. Check and check. I do both. I try so hard.

So, these little conflicts became ginormous in my mind. Ginormous and personal. And I became irritable, disagreeable…angry. I was angry that things were not the same. Nothing felt particularly easy. And I became paranoid, convinced that she didn’t love me anymore. That she was tired of me. My mom used to tell me that people got tired of me. I thought it happened with my wife. And I didn’t think she even liked me anymore. I asked her and, even though she said she did, I didn’t believe her.

Now the real fucked up thing about this was that I didn’t realize I was angry. I thought she was mad at me all the time. Hence the conclusion she did not like me. For the first time I thought she might leave me…I mean how many more years are you going to spend with someone you don’t even like. That is a rhetorical question. I heard the words she’d say to me as accusations, condemnations, or criticisms. I felt like I was no longer good enough for her…like she wasn’t happy with me anymore. I was not bursting with happiness either. Now let me be clear, this was all happening internally…mostly. It seemed like she was snapping at me all the time. I felt like nothing I did was right. I’m certain she was not getting warm fuzzies from me either.

Several months earlier I had stopped taking my antidepressant. I talked to my doctor about it and told her I didn’t think I needed it anymore. I wasn’t depressed. With her cautious okay I weaned off it. And I was fine. I noticed a few times I felt sad but then I had some reasons for sadness. It seemed like a proper response to circumstances. Sometimes I would question myself about whether my feelings were a sign of depression…but I assured myself they were not. It’s possible I needed a second opinion.

Then I experienced a situation with a friend who was really depressed. They were sad about lost relationships, afraid of being alone, hopeless, and isolated. And I saw them struggle to feel normal…to be happy again. They were so depressed…the kind of depression that makes you want to stay in bed and be left alone, permanently. That scared me. It scared me enough to start taking my antidepressant again. Because of them I saw myself differently…through the lens of fear. Fear that I could end up at that same place…again.

Antidepressants take a couple of weeks to work. In the past when I had gone on medication I remember not really noticing whether the medication was working until some random day when I realized I was happy again. This time my realization was that I wasn’t angry anymore. I felt like myself again. And things with my wife were normal again…easy. The flow was back.

What changed? Did my wife finally realize that I was right about everything? That’s funny. So, what changed? I did. I had my random moment and realized I was happy again. When the happiness arrived, the anger departed. Or rather I let the anger go. I guess in my insecurity I was clinging to it before…I couldn’t see any other way to feel. I felt justified in my anger. It’s hard to let it go when you feel justified.

But now…now I saw a new, clearer perspective. One less centered in my ego. Ego’s kind of suck. I took a step out of my mind…not to be confused with being out of my mind. My mind had focused on all the ways nothing was my fault, or more accurately, my responsibility. Everything was someone else’s fault. Their responsibility. My ego was in overdrive. Placing blame away from myself. And I was not really looking to blame…maybe I was. I didn’t mean to be. I was hurt. I was hurting. I felt lost and alone. I told my daughter that I felt insignificant and invisible. She told me that was my past trauma speaking because no one who knows me feels that way about me.

Growing up I felt like I had to fight to be seen, to be heard…to matter. And so often I wanted to be invisible because it felt safer. But that’s not true anymore. As long I remain open, I am seen, heard, understood, and I am loved…liked even. The only time that’s not true is when I shut down. When I am no longer willing to receive, no longer willing to give.

Andrea Gibson, the poet, said that a music box is still a music box even if the lid remains closed. Of course, it can’t fulfill its purpose without opening. Aren’t I the same? Aren’t we all the same? I can’t fulfill my purpose or have the depth of relationships I’m meant to without opening. What stops me from opening…from being vulnerable? Oh, wait I know. Fear. Fear fucks everything up. Fear and my ego…stupid dumb ego.

How can I tune in to my heart and stop listening to my mind and my overactive ego. It’s easy to blame other people for our circumstances, for our feelings but it’s not their fault. It’s mine. I’m responsible for my actions. I’m responsible for my feelings. No one makes me feel anything. And guess what? All of that is true for you too. Surprise! We have all kinds of choices. No two people react the same in a situation because of all those choices. Freedom and all that crap.

It’s easy to get caught up in the emotion of a moment and lose sight of our choices. To surrender our reactions to just that, reacting. Allowing emotions to carry me away from my ability to choose…to choose to respond rather than react. I would like to think I was fighting for our love by arguing…fighting for us. I fear that I was arguing to lash out…not really that. Fighting as much with myself as with Gayle. Feeling unhappy with her because I was unhappy with me. I guess taking my fears out on her…without clueing her in. Without clueing myself in. I didn’t know.

Now I’m not just trying to blame myself for everything…I’ve done that many times. Burying my needs or feelings to end a conflict quickly. Conflict is uncomfortable. And I don’t like it. I was raised to blame myself. But this is how the situation looks to me now…in hindsight. I wish hindsight could come before I make a mess of something. I can see things differently than I did before. That’s with the help of my antidepressant. I can examine my behavior. I can look at not just what I’m doing it but why. And I can change it. I can voice my needs and my feelings. I can decide what I can do for myself and what I want to ask from someone else. Then they have their own choices to make. There is no choice where there is no understanding and no understanding unless I communicate. That scares me too. It’s me being vulnerable…again.

So where am I going with all of this? Excellent question. There is so much love available to us if we can keep the lid of our music box open. If we take the risk of being vulnerable. If we allow ourselves to be seen…to be known. And that is scary. Vulnerability is scary.

We miss out on life if we are unwilling to open to it. Sometimes we need medication to help us. I’m grateful for my medication. Sometimes we need therapy…or both. Always we need each other…always. Communication is the key to our relationships. It’s the best gift we can give each other. Because in the end all that matters is how we love people…show your love by communicating and connecting. Love will win…it always does. Even if you have to serpentine to get there.

Off The Edge

~ Kai Raines ~ Leave a comment

It took me a long time to recognize this low-level anxiety that lives inside me. I feel like I am always on edge. Always expecting the next bad thing…the next person to hurt me or leave me without explanation. The next person to blow up at me, blame me, or take their anger out on me. The next crisis I need to be ready for. Being mentally and physically on edge contributes to me being on edge emotionally. All the time. It is exhausting.

I have been trying to create a way to mourn the loss of my mother. I am not sure how to do that when I feel angry at her. I’m hurt that she was so mean to me. I don’t know if I miss her because I haven’t been able to get past the other feelings. I feel guilty because I am relieved not to deal with her explosive outburst anymore. I don’t miss her hanging up on me multiple times a day. The years I spent away from her I wondered why she didn’t try to work things out with me or love me enough to fight for me. The years I lived with her in Florida, I understood that she hated me. That’s what she told me. That’s how she acted. She didn’t fight for me because she didn’t want me.

Now she’s gone and I am not sure what to do with all of that. I need to find a place where I can accept the situation as it was and accept her as she was…flaws, bitterness, cruelty and all. She wasn’t one thing. She wasn’t just mean. She wasn’t just angry. She wasn’t just cruel. She could be kind. She could be generous. She could be loving.

I am not one thing either. I am not just a person on edge. I am not just someone with anxiety. I can be kind. I can be generous. I can be loving. I’m a mix of all those things and more. Just like her. Sara Bareilles has a song called, “She Used to Be Mine” and she talks about this…sings about it. This song could be about me…or my mom. I’m not perfect but I try. I’m hard on myself and struggle with asking for help. I’m messy and I’m kind. I’m all those things smooshed together to make me.

The song goes on to talk about things coming into our lives that we don’t ask for and they shape us into who we are today…even if it’s not what we asked for…or not who we expected to be. I want to be willing to take risks. To be hurt but not destroyed. I want to be tough enough that when I get bruised, I can use that to grow stronger and more sure of myself. And when I feel stuck, for example now, I can rekindle a fire inside of myself to keep moving forward toward the person I am and the person I am meant to be.

I have been trying to create a ritual for myself to let her go. To let the experiences I had with her go. And to let the things she said to me go. I have felt heavy under the weight of her thoughts and feelings about me. I recently wrote about changing my name from Karen to Kai. Needing to move away from Karen because that’s the name she yelled at me and the name of the person she hated. This week I decided to change my name legally. The new name felt like a game of make believe. And I’m not playing a game. I’m creating the path to reclaim myself as myself…not who she said I was. I’m not trying to disown her or my family. I am taking steps to own myself and my identity. That’s mine to create, not hers to impose.

I had not planned to change my name legally. I surprised myself. I filled out the paperwork and I filed the petition. It’ll take a few months for the change to be ordered. I may have to attend a hearing to tell a Judge why I want to change my name. I’m not sure it’s really anyone else’s business why…of course that will not be my answer if the Judge asks. An attitude will get me thrown in jail…this is Florida after all. There was a ton of paperwork to fill out and get notarized before I could file the petition. I guess they’re making sure I’m not changing my name because I am on the run from law enforcement. I’m not. I promise.

I was not sure how I would feel after I filed the paperwork. I felt relief. I felt like a giant chain that weighed me down, with other people’s opinions fell away. I was standing up for myself. I felt like I was claiming my own identity without the input of my mom. This is me regardless of what she thinks or what she might have said. She would have been angry about the change. She would have taken it as a rejection of her. It is not about her at all. It is about me…claiming my own power and not allowing anyone else to tell me who I am or how I should be myself. The change is because of me not her. This is who I am. This is who I continue to become.

The acceptance I want to find for myself, I want to find for her too. I do not think my mom’s life turned out how she imagined, and she was bitter. I had no control over that. I did not ruin her life, regardless of what she thought. I loved my mom. We had a challenging relationship. In the end I was working to change it…make it better. That didn’t happen but it doesn’t mean I didn’t love her or that I didn’t try.

Loving is hard. I try my best, but I am not always great at it. I hope my love can be a solid ground for someone else. I always say that in the end all that matters is how we love people. So regardless of what happens I move forward and remind myself that I did not give up on love today.

Do not give up on love today. Never give up on love. Love always wins.

Elbow Shemelbow

~ Kai Raines ~ Leave a comment

Now this blog has a huge WTF!? factor…just so you know. I went to fetch my wife…sound southern, don’t I? I fetched her from yonder Colorado. (Of course, people in Florida don’t have southern accents.) Anyway, I drove out to Colorado for two weeks to visit my kids and grandkids and to bring my wife home. When we left Colorado, we drove to Texas to see my wife’s family. Fortunately, we did not get hit by a tornado, but it was close.

The evening we arrived, I noticed my arm was red. Specifically my left, elbow replacement arm, was red around my elbow. I didn’t think too much of it until the redness spread on Sunday. That’s when I showed my wife and became terrified that I might have an infection in my elbow. Apparently, I was told, you can get an infection in a joint replacement up to a year after the surgery. From reading I’ve done it can be many years after surgery. That’s scary.

So, on Memorial Day I called to talk to the on-call doctor back in Florida. He prescribed me some antibiotics and said I needed to be seen when I got home, and I needed to call if anything got worse. Cellulitis is what he called it. It’s a bacterial infection that is usually caused by a cut or some other opening in your skin…well, I don’t have any cuts, so I thought it didn’t sound so bad. Then I started reading about it in connection to joint replacements. Thank you very much google. According to the Mayo Clinic, Cleveland Clinic, and John’s Hopkins this type of infection almost always requires surgery to get the infection out and remove the infected joint. WTF!?

Now I’ve had a lot of surgeries in my life…approximately 45 on various joints. 13 on my elbow. I’m not so afraid of surgery. I’m afraid of what it would mean if I did need surgery. If my elbow replacement needs to be removed, besides the months of IV antibiotics, I won’t have an arm anymore. Nothing will replace the replacement. I’ll have an arm with no elbow so my arm will just be decorative…because it won’t work. I’ll wear a brace and have minimal use of my hand.

When I had the surgery for my broken arm and dislocated elbow replacement last November, I was told that if this replacement failed, as others have, the only option left would be to remove it and not replace it anymore. At that time, I appreciated knowing that if that happened, at least I wouldn’t be in pain anymore. That sounded good. Until now. Now it sounds horrible. If this infection is in my joint, I’m going to lose my arm. Its not going to be amputated but it will only be for show…a useless appendage hanging from my shoulder. I feel overwhelmed and terrified. It’s one thing to hear about a possible thing that might happen in the far away future and being punched in the stomach by an inevitability staring you in the face.

Maybe it’s not inevitable. The redness is mostly gone…it’s still swollen, hot, and stiff. I see the doctor Friday. So, WTF!? I don’t know what the fuck. My work this week is sitting with not knowing…and not freaking out. I’m not inappropriately freaked out…only about a 5. That seems reasonable…given the circumstances. I did stop googling. My mind is very distracted this week on its own…I don’t need to encourage it by being sucked down the google black hole.

I need extra awareness this week. Awareness of my interactions with myself and with others. Awareness of my anxiety. Awareness of my capacity and willingness to love. Awareness of kindness I can offer to myself and others. I didn’t do anything to make this happen so being angry at myself seems unhelpful. Because in the end all that matters is how we love people…and that includes me.

Does Absence Really Make the Heart Grow Fonder?

~ Kai Raines ~ Leave a comment

“Absence makes the heart grow fonder” is a well-known saying. We say it when we’re going to be away from someone, and it feels difficult. It’s going to be hard to be apart. It’s going to be scary. We say it to comfort ourselves and convince ourselves that everything will be fine. This past year, my wife has had to live between Colorado and Florida because she still has a job in Colorado. So, half of the year she was there and half of the year she was here in Florida with me. During that time, I thought a lot about absence and whether it makes the heart grow fonder. I’ve decided absence on its own doesn’t really do anything, except maybe, make us forget.

Just being absent doesn’t automatically expand our heart or deepen our connection. While my wife was gone, six to eight weeks at a time, I did things to remind her what she means to me. We FaceTimed every day, at least once, and sent texts throughout the day. I sent her cards, flowers, cinnamon bears, words of love songs, and I wrote her a love poem. I wanted her to know she was always on my mind. It occurs to me that what I did was make myself present…instead of absent. My heart grew fonder but not because of absence. My heart grew fonder because of effort and intention. I intended to remain as present as possible in her life while she was away. I made the effort to make that happen. So maybe, absence met with intention and effort makes the heart grow fonder.

On its own, I think absence, rather than making the heart grow fonder, makes us forget. Someone who has hurt you is no longer in your life, a difficult situation has ended, an abusive situation you’ve been removed from for years – years without contact with certain people or situations and we think we’re healed…the wounded part of us is all better. But is it? Not confronting something doesn’t make it healed. It makes it repressed or buried, possibly festering from lack of attention. Sometimes the absence of something doesn’t make the heart grow fonder, even though we think it does.

I have had a challenging relationship with my parents, mostly my mom, throughout my life – I sometimes think just the sight of me or the mention of my name pisses her off. It’s scary, at least to me. There was a period of time that I didn’t have contact with my family…about twelve years. I missed them. I thought of them often, especially on special occasions. I spent holidays with my own family – my wife, all of our children and grandchildren. Some holidays we went to Texas to celebrate with my wife’s extended family. And I missed mine.

After twelve years, I saw a picture of my parents on Facebook. I was startled by how much they had changed. They looked so much older and more fragile than I remembered them. I started thinking about their eventual passing. I didn’t want to have regrets about our relationship. Regrets that I hadn’t seen them at least one more time. So, I wrote a letter to my parents. I told them that Gayle and I had taken two of our grandkids to see The Harlem Globetrotters for a birthday gift and they loved it. I remembered them taking me to see them and I was thrilled…Meadowlark Lemon and Curly Neal. It was the best. I thanked them for that memory. I thanked them for taking me to see The Carpenters and John Denver. As an adult I realize that may not have been their first choice of things to do, but they did it anyway. I told them I appreciated that. That letter was the catalyst for reconnecting. 

I sent the letter when I felt like I didn’t need or expect any response. I didn’t want my letter to have an agenda. I also knew if I had expectations, I could end up hurt. My mom called me a week or so after receiving my letter. We had a nice conversation and I caught her up on my kids and grandkids. A couple months later, I drove with my daughter and her two kids to see my parents. We were in town for a few days and while we were there, we stayed in a hotel so everyone would have space for quiet and relaxation. It had been twelve years after all. Our visit went great. We talked and laughed and spent time looking at old photo albums. Remember when those were a thing? We left on great terms, and I continued contact with my parents through daily FaceTime calls.

Things with my parents were great, so great in fact that we invited them to move to Florida with us so they could be with family. We have wonderful extended family in St. Louis, and they have their own parents and families to care for. We wanted my parents with us so that we could take care of them. My hope was that they would never need a nursing home because we would have them with us, in our home. It was so perfect…in my head. My mom really wanted to be with us in Florida and convinced my dad, who acquiesced. My sister lives in New York and I had been in Colorado and my parents needed more contact than either of us could manage long distance. So, look out Florida here we come…turns out, right back where we started from.

We had so much fun when we first got here. We tried new restaurants and took drives along the Gulf. We laughed all the time. Then the honeymoon ended. Fuck. My mom was depressed and mean. We moved May first and by Mother’s Day I was sure I had asked someone who hates me to move in with me. She was verbally abusive to my dad and me. She said hateful things to both of us. I felt like she had stored up every negative thought she ever had about me, and once we were in Florida, felt like she needed to vomit all of it at me…usually while yelling it at me. I found out things she thought about me that really crushed me. I wish I could un-hear them but no such luck.

We forget. So, is this the forgive and forget type of forgiveness? I don’t think so. This is the I want the ideal in my head so much that I choose not to remember the past. I ignore what I know to be true. I ignore my perceptions and people’s warnings. This is the choice to ignore what’s real until reality smacks you with a two by four and knocks you flat on your ass…my ass. It didn’t feel like a choice. It felt real. I wanted it to be real. I wanted to belong to my parents, especially my mom. I wanted her to want me…to love me…to like me…me the person. But that’s not real. It’s not the experience of my life, especially here in Florida.

I came to realize that what I missed was the idea of my family, my mom. The mom who’s there after school with homemade cookies and milk. The mom who wants to hear all about your day. The mom who loves you as a daughter but also really likes you as a person. The mom who is proud of you just because of who you are, not because you went to law school. I had built up an ideal family in my mind and that’s what I was looking for. That’s what I thought I had gotten after a twelve-year separation. I thought I had achieved the “just moving forward” with my mom. 

Let me be real…it’s time for more therapy. I have personally assisted in the successful career of several therapists in my life. Doesn’t seem like therapy could hurt me. I’m already hurt. It’s time for me to separate myself from my mom, not physically, but emotionally. Everything she says hurts me and so I feel raw most of the time. I have to find a way to keep her messages out of me. Just because she says it doesn’t make it true. How long before I know that at my core?

I was so seduced by how well things went before we moved that I doubted myself and my memory of life with my parents. I wanted the seduction to be the truth, even though I should have known it wasn’t. I wanted to be able to just move forward. I forgot that my mom lives in the past. I forgot that she’s moody and depressed and won’t acknowledge it, let alone talk about it. I also let myself forget how volatile my parent’s relationship was…the fighting, screaming, throwing and breaking things, and name calling. My mom remembers every grievance she ever had against my dad. We lived in her reality of two or three stories that were supposed to show me that my dad was an ass. These incidences were from fifty years ago.

And here’s some reality, I didn’t really forget. I was in denial. Fuck. I didn’t want my memories and experiences to be real. I wanted to be wrong. It was easier to just blame myself. And so, I did. I blamed myself for every problem in my home. I rearranged the past to make it more comfortable for myself. It was so much easier for everything to me my fault. Simpler if I was the problem. If I was the problem before, and now I wasn’t, then everything would be good, right? Not so much. Just because it’s easier doesn’t make it true. I was thinking all sunshine and rainbows and instead got a hurricane of reality. The good news is the hurricane woke me up. The bad news is that I ignored everything I knew from my childhood and put myself right back in the center of the storm.

Absence didn’t make my heart grow fonder. It made my heart forget. I forgot. I tried to undo the past in my mind by blaming myself for all the problems. I allowed myself to be naïve about my parents, especially my mom. I wanted things to be good between us so fucking bad that I became blind and a bit deaf. I saw things as either/or instead of both/and. My mother can be kind and she can be mean. I can love my mom and still see who she is. Conflicting things can exist at the same time. It’s called cognitive dissonance. It’s holding two conflicting thoughts in your mind at the same time. Personally, I call it a mind fuck, but I’ll go with the official term. 

My thoughts about my mom are almost always conflicting. I remind myself that no one is one thing. No one is bad or good. We are all both. We are all shades of gray, and we change all the time. My history is to discount information that I don’t like and cling to what do. It’s time for me to do some rethinking and unlearning. I need to unlearn what I grew up believing was acceptable and rethink responsibility. I am not responsible for what went on in my house. My parents were the parents. And regardless of what someone else believes about me, it’s what I believe that matters. I decide who I am. I decide who I become.

Absence, on its own, is neutral. What we tell ourselves about absence is the story we create and the story we live. Instead of absence, I focus on presence. I need to remain present in my own life and in the lives of the people around me. I can be present even when I am physically absent. I can remain present in moments of cognitive dissonance. I can manage conflicting ideas and thoughts. And I can love imperfection…in others and myself. I can love humanness. I can love boundaries that allow me to be loving and safe. 

I live a life of intention and effort. I am thoughtful in my words and actions. I choose presence. I choose honesty and vulnerability. I choose moving forward. I choose love. In the end all that matters is how we love people…so I choose to love well.

Broken and Beautiful

~ Kai Raines ~ 1 Comment

This morning I woke up in pain, actually I woke up because of pain. I hate waking up in pain and I wake up in pain every day. The degree of pain differs but not the fact of the pain. It makes me want to move and not move at the same time…because I’m not sure which one will help…maybe neither will. The amount of pain can’t be predicted. There’s the regular pain that getting up and moving might loosen up and help. Then there’s the wake me up pain from my elbow that goes from my shoulder to my fingers and from my back, that moves from my neck to my tailbone and shoots into my legs. It’s scary to start your day that way. Sometimes I just want to scream when I wake up.

I don’t always wake up because of pain but I do always have pain when I’m awake. Sometimes I wake up angry and sad. Pain is a hard way to start a day. Some days are better than others.There are definitely days I find myself wondering how I am going to manage this excruciating pain for the rest of my life. Now, I do tell myself to slow the fuck down and remember that I don’t have to live the rest of my life today. I just need to manage today…moment by moment…and sometimes that is hard enough. 

I found this shell on the beach one day. I fell in love with it because it’s broken but it’s beautiful. The break has healed, although the scar remains. It’s amazing really. The shell is still a shell, but it’s scarred. I am like that shell. We are all broken in one way or another. The world is hard, living is hard, and we all break, or get broken. I don’t think I’m the only person who feels this way. We all have things that feel bigger than us at work in our lives that we aren’t sure we can manage. Like the shell I found, we are all scarred physically, emotionally, mentally, spiritually…maybe in multiple ways. And like the shell that broke, we heal. We have scars but we heal. The scars help us remember where we’ve been and how we got to where we are today. We are broken and beautiful.

Now before anyone freaks out, please hear me when I tell you I am NOT saying that I need to be fixed. I am NOT saying that you or anyone else needs to be fixed. Being broken is part of being a human being on this planet. There’s a million ways to be broken…chronic pain, physical illness, mental illness, divorce, death, loss, a destructive relationship, a dying relationship, problems with children, health problems or mental health problems of someone you love or care for, aging parents, end of life issues, just being alive issues…the list goes on forever because we are individuals with unique challenges in our lives. Even if the challenges look similar, we are unique people who handle circumstances, and brokenness differently.

I love the musical, “Dear Evan Hansen.” It deals with the suicide of a high school student, the attempt by another student, mental health issues, depression, grief, loneliness, isolation, belonging…it’s got it all, because it’s fucking high school…and high school has it all. At one point in the movie, Evan Hanson’s mom talks to him about when his dad left them and how overwhelmed she felt. She says, well, she sings, it is a musical, “and the house felt so big, and I felt so small….” I feel that way with pain sometimes. The pain feels so big, and I feel so small…but it isn’t just physical pain, it’s the pain of human existence…when it all feels so big, and I feel so small…what’s a human being to do?

When I share my brokenness with you I’m allowing you into my core… the scariest, most sad, hopeless, vulnerable places inside of me…the places where I am me, really me, unfiltered. Exposing my most delicate places, is not an easy position to be in or tolerate for very long. We are broken and beautiful…I am broken and beautiful. When we can share ourselves honestly, the brokenness isn’t so scary…because I am not there alone. Our brokenness makes us human; it makes us real. I think we are perfect in our brokenness…our scarred selves. We are more perfect when we can share our brokenness with someone else. We have he potential to ease each other’s pain. Hippocrates said, “Divine is the task to ease pain.” Maybe we become more divine when we help someone by talking about our vulnerable, broken, scarred places. You see, I’m real, just like you…and the velveteen rabbit.

Kelly Clarkson wrote a song called “Broken and Beautiful.” I’m guessing she wrote it following her divorce. Anyway, in the song it says, 

“I never held my hand out and asked for something free

I got pride I could roll out for miles in front of me

I don’t need your help, and I don’t need sympathy

I don’t need you to lower the bar for me.

I know I’m Superwoman, I know I’m strong

I know I’ve got this ‘cause I’ve had it all along

I’m phenomenal and I’m enough

I don’t need you to tell me who to be.

Can someone just hold me?

Don’t fix me, don’t try and change a thing

Can someone just know me?

‘Cause underneath, I’m broken and it’s beautiful.”

Can someone just know me…just know me. That’s what I want. It’s what we all want. To be known…the good, the bad, and the ugly. But how can we know each other? We have to be still. Be still and know….there is no knowing without being still.  We can’t know something moving past us at 100 mph.  We have to stop and be still…be still to know…to know ourselves, our spouse, our children, family, friends, co-workers, people in this country or in this world…there is no knowing until we’re still. We have to be willing to stop…because if you know me then you can love me…but not before. And I’m worth stopping for…and so are you.

I have lots of scars on my body…stretch marks from having babies, knee, elbow, back, shoulder, and foot scars from many surgeries. And I have a lot of other scars that you can’t see, unless I show you. All those scars help to tell the story of me…how I became who I am today.  I don’t need to be fixed but I do need to be known. We’re all broken and we’re all beautiful. We are all worth the time investment it takes to get to know each other.  Those scars quilt together the fabric of who I am and what has shaped and influenced me…past pains and triumphs…current pains and triumphs. 

I do not need you to tell me what I need to do to get “better.” “Better” isn’t in the cards for me…management is. I’m not your project and don’t need to be told how to be me. I’ve got this. I’ve had it all along. I need you to know me. I need you to love me without trying to fix me. Allow me to show you the most tender and vulnerable parts of me, safely. Let me be tried, scared, hurt, disappointed, frustrated. Let me feel my feelings. Don’t create a situation where I need to say “I’m okay” for your benefit…so you won’t be uncomfortable. I don’t need your sympathy or for you to feel sorry for me. After all I’m fucking Superwoman.

Please don’t judge me, label me, and put me in a neat little box built to ease your own discomfort. Know me without the filter of what you think about my pain, your interpretation of my pain, or what you think you know about me? Be still. For the love of God, please, be still. You can’t find me if I don’t let you, and I won’t let you until you’re still. Your stillness allows space for me to trust you and for you to see me. Really see me.

Let’s be real…it can be lonely being in pain, being broken. But it doesn’t need to be because we’re all broken and we all have pain. We don’t need to feel alone. We need to allow ourselves to be seen…to be known. For that to happen, we have to do two things: be still so that we can know and then, allow ourselves to be seen. We have to be vulnerable and willing to take the risk of knowing and being known. “Divine is the task to ease pain.” Let’s do that for each other…ease each other’s pain. When we know someone we can love them…really love them. And in the end, all that matters is how we love people. Let’s make sure love always wins.