Tag: Death

My Beautiful Girl

~ Kai Raines ~ Leave a comment

Wednesday was the funeral for my daughter Jessica. I wrote this letter o her and my grandson, Javon, heroically read it for me. It was impossible for me….

I don’t know how to write a eulogy for my daughter, so I thought I’d write her a letter.

Jessica, my beautiful girl,

No one ever prepared me for what to say if you died. Maybe because there aren’t any words…except all the bad ones…the F bomb being my favorite, as you were well aware. I can’t stop thinking that this is not how life is supposed to go. This was not supposed to happen. You were not allowed to die before me.

I’ve been thinking about a Brandie Carlile song called “You Without Me.” Before Christmas I was thinking about you and Amy and Ben and watching you all grow up and separate from me and become your own people…amazing and beautiful people I must say. Brandie Carlile wrote that song about watching that happen with her daughter who is now 10. She says,

“Was your smile always crooked? Was the freedom ever free?

Do you kick the rocks between your feet, after all this time with me?

You can listen to your own records now, decide what you believe

You can pray on stars and skip the gods like stones across the sea

But I would know you anywhere, I lost myself in you

Heavy are the hands that you are free to slip right through

Do what you have to do

There you are, my morning star, I wondered when you’d show

Give me just a quick thumbs up, a wink before you go

I never heard that voice before today, I remind myself to breathe

There you are, it’s just you without me.”

That’s how it should be Jessica…you without me…30 years from now. Not me without you. I’m not sure I know how to be me without you. I did lose myself in you, but I also found myself…as a mom…your mom.

I know that life was a struggle for you. I wanted so much to do or say something to help you realize how wonderful you are. You were so smart and so kind and so funny. Some of my favorite times were with you, Amy, and Ben all of us laughing until we cried.

My sweet girl, I know that this life was too hard and too scary for you. I’m glad you’re without fear now. We had some challenging times when you were growing up. You were still apologizing to me for your teenage antics throughout your 30’s. But I wouldn’t trade one moment of being your mom.

When you were born you didn’t cry like most babies. When the doctor handed you to me, you just opened those beautiful blue eyes and looked at me. No crying or fussing…just looking, as if to say, “it’s me mom….I’m finally here.”

Right before you died, you opened your eyes and looked at me. You hadn’t opened you eyes for over a day. You looked at me and held my gaze as if to say, “it’s me mom…I have to go now.” Your breathing immediately slowed and minutes later you were gone. I had the chance to tell you how much I love you. I told you there was nothing to be afraid of now and that it was okay for you to go…even though there was nothing okay about it. I stroked your cheek, kissed your forehead, and told you that I have loved every moment of being your mom. And then you were gone.

I was with you for your first breath and your last. Thank you for that.

I believe that you are in a peaceful place now. A place without fear. A place where Roro, Foddy, and Grandma Jojo were waiting for you…and where they will care for you now. And I know they will…I gave my parents a long lecture, with a lot of instructions, the day you died.

Now we try to rebuild a life without you in it. Me without you. All of us without you. I’m not sure how. I will miss you forever. I will be grateful for you forever. And I will love you forever…my beautiful girl. Rest well.

Hurricane Milton…Or A Tiny Little Rose?

~ Kai Raines ~ Leave a comment

While my parents were alive and living with my wife and I, we occasionally talked about their deaths and their last wishes. Neither of them wanted any kind of service or memorial. No wake. No funeral. No casket. They wanted to be cremated. I asked them what they wanted done with their ashes. My dad said, “Just throw them away.” And my mom, as only she could, said, “Just throw them on the ground and walk all over me like everyone has my whole life.” So, I told them both “I’m not doing that” and suggested that we put them in the Gulf. They agreed or gave me their version of “whatever.” I was happy to take that as a yes.

When my sister came for a visit, the topic came up again. That must be super annoying for people in their 80’s and 90’s, everyone always bringing up your death and pushing you to plan for it. I was thinking my plan is to avoid it as long as possible…as if it is up to me. My sister said that we could send the ashes to Switzerland and have them made into blue diamonds. And why you may wonder? So, we could have a crown and put the blue diamonds in it. And then as each person dies another stone gets added to the crown. I said, “Who’s gonna wear all the dead relatives on their head?” I don’t remember her response. Mine was, “It’s sure as shit isn’t gonna be me.” Then she said we could have them compressed and made into frisbees and send them flying out into the Gulf. I’ve got to admit that one sounded fun…probably only because I wouldn’t be one of the frisbees. We had some good laughs with my parents over both of those ideas. I know you can find all kinds of stuff on the internet but who searches for what to do with someone’s ashes…besides my sister, I’m not sure. My sister is super funny and a great storyteller…she had both covered here.

In the end, of course, it was up to us. We decided that Kathy, Rick (sister and brother-in-law), Gayle and I would go out on a boat together and spread their ashes into the Gulf of Mexico. We found a place in Dunedin that has daily boat trips called “Burial at Sea” that are specifically designed for spreading ashes. I guess “burial at sea” is hard to remember because my brother-in-law referred to it as “the death boat.” Naturally that’s the name that stuck.

Of course, as soon as we had a simple plan our adult children chimed in and wanted a seat on the boat…they were their grandparents after all. And since they all have children, all the great grandkids would be here too. So, we arranged for the death boat October 14th at 1:00. Fortunately, it’s a big boat because we went from 4 people to about 20. We finalized plans for places to stay and food for a meal together after the death boat. And then there was Milton.

One of the reasons we picked Clearwater for retirement is because Tampa hasn’t been hit by a major hurricane in 100 years…and we’re about 15 minutes from Tampa. Now Milton was threatening to end that streak. WTF?! Hurricane Helene had just devastated the big bend area of Florida. We waited and hoped that Milton would decide to go somewhere else. Although, you can’t really hope that the hurricane hits someone else. I was hoping it would just evaporate…. that would have been the most convenient outcome. Clearly, I missed my calling as a scientist.

If you saw any news at all you are aware that Milton did not just go away. It became a category 5 hurricane. It did shift south and so Tampa, and Clearwater were spared a direct hit, but it was crazy. We were on the outer edge of the eye of the hurricane. We didn’t get raindrops, not even big ones. We had walls of water falling…wall after wall of rain for hours. All the while, the wind raged. We had wind speeds up to 129 mph. Milton was a category 3 storm when it hit the Florida gulf coast.

I had panicked calls and texts from family and friends worried for my safety. My wife wanted me to go to Atlanta. It was not that simple. First, I was not under an evacuation order. More importantly, I had less than a quarter tank of gas. “90 miles,” said my car. Now I’m not good with geography but even I know you cannot get to Atlanta with 90 miles worth of gas. And in case you’re thinking, “Why would she not have filled the tank sooner?” “Poor planning.” That’s a little judgy of you. I did not fill my tank because there was no gas…as in none, nada, zip, zero. I went to numerous gas stations, and they all had the little yellow bags on the pumps, like they do when they’re broken, with the addition of plastic wrap. All the pumps were prepared for Milton…and all the gas was gone. That was Tuesday. I couldn’t get gas until Monday. By that time my car was finding a gas station for me.

That was the beginning of Milton. The serious warnings began Monday. They were amped up on Tuesday and included evacuation orders for zones A, B, C, and all mobile homes. We live in zone D. The airports closed Tuesday morning. Everything else closed Tuesday afternoon. So, the death boat plans were quickly sinking. We didn’t even know if the boat place would still exist on Sunday. Our outing seemed incredibly unlikely…even more so after the airport closed, and all the flights were cancelled. I’m pretty good at recognizing the obvious. No ashes were leaving my house that weekend.

When I was talking to my wife, during the hurricane, and sending her videos, I told her that I thought my mom was fucking with the weather. She said, “Your mom has no control over the weather.” I told her I wasn’t so sure. The next day I was talking to my sister, and she mentioned that Rick thought my mom was causing the hurricane because she doesn’t want to be in the water. My mother was afraid of water her whole life. I wonder why she agreed to a burial at sea. I’ll never know. I was texting my nephew, to give him an update on the death boat and Milton. He told me that he wondered if maybe Roro (that’s what all the grandkids called her) brought the hurricane. And finally, I was talking to my daughter, and she told me she thought the same thing. I don’t know if my mom can influence the weather, but me and the family believe she can and she did.

So, there will be no burial at sea. Florida can’t take another round of the “wrath of Rose.” We have an alternative plan. Their ashes will be spread in New York somewhere my parents loved. They spent a lot of time at my sisters. They’d visit for 3 or 4 weeks at a time. That’s where their final resting place should be. They were happy there, surrounded by the love of their grandkids and great grandkids…and of course Kathy and Rick.

I hope in the spring my side of the family can travel to New York and give my parents their final resting place…at last. A lot of love and planning went into our decisions for my parent’s ashes. I hope they could feel that. Because in the end all that matters is how we love people. And they were loved…still are.

When I’m 64

~ Kai Raines ~ Leave a comment

So, I had a weird thing happen this week. First, it’s my birthday week. I currently have a line from a Beatles song in my head, “Will she still need me, will she still feed me when I’m 64.” And I’m about to find out…although she doesn’t usually feed me because she hates to cook. Anyway, my wife had to go back to Colorado for work. So, I am here in Florida, and she is far away in Colorado.

In case you want to feel sorry for me, don’t. I’m not here alone. My stepson, Justin, is here with me. He just moved here about 10 days ago…and of course we have the Bulldog sisters too. That’s our dog, Abby, and her sister, Presley. Presley is Justin’s dog. They are sisters but from different litters. They are so much alike it’s crazy. They are both so fucking stubborn. And they even sleep the same. It reminds me of the theme song of The Patty Duke Show…”they walk alike, they talk alike, what a crazy pair….” Yep, I’m 64 alright…and that show was in black and white. Anyway….

A few days ago, I noticed a package sitting on the table by our front door. It seemed like it just appeared there. I asked Justin about it, and he told me he brought it in the night before. I hadn’t noticed it until the morning. I thought it was strange that the package was addressed to my dad. My dad died almost a year ago…so he didn’t order it.

Being quite brave, I decided to open the package…the next day. Inside the package was a book called Walking the Himalayas. That was weird. I had wanted to read that book for a couple years. It was in my Amazon cart. There was no note in the box and no return address. It was really strange.

I puzzled over the package for a bit and then I came to the only reasonable conclusion…my dearly departed dad sent it to me. That had to be it! This makes sense for so many reasons…my dad died so no one is sending him gifts anymore. Also, there wasn’t a note with the book. And no one would send my dad a book because he couldn’t read anymore because of his macular degeneration. And finally, it’s a book I wanted and it’s my birthday. It was definitely from my dad. I told Justin all of that and he appropriately responded with, “Whoa.” Ya whoa!

I was pretty excited to share this news with my wife when we talked that night. I told her the story and all my well thought out reasons why the book was from my dad. She did not say whoa…she said something to the effect of, “oh, crap.” Not her exact words but the emotion was there. She then told me that my sister had texted her and asked what I’d like for my birthday. Gayle told her to look at my list on Amazon…I know you’re following me here. Then my sister told her she was sending a book, Walking the Himalayas, and it would be addressed to our dad but that it was for me…and I should not open it until my birthday.

Well, my sister thought the story was funny and she jokingly asked me to thank Gayle for her. When I shared that with Gayle, we both had a good laugh. I’m grateful for the gift from my sister…even though I opened it before my birthday. I’m sure my dad would have wanted me to.

So happy birthday to me and go Rays! I’m off to a baseball game today where I can be my geeky self and keep my scorecard. I appreciate all the love for my birthday…and it turns out she will still need me when I’m 64…I can feed myself. Remember that in the end all that matters is how we love people. So, let’s love enthusiastically.

Why Would It Be Different In Heaven?

~ Kai Raines ~ Leave a comment

Mother’s Day was Sunday. I was asked several times how I was doing on my first Mother’s Day without my mom. There is no simple answer to that…or maybe no nice answer. The last two Mother’s Day’s were horrible. My mom was angry and mean. She spent the day yelling at my dad and I and slamming things around. So, it would be dishonest to say that I really missed her Sunday. I was grateful to spend this Mother’s Day with my daughter, grandchildren, and great-grandson. It was a beautiful day.

Prior to the last two years, I didn’t see my mom for twelve years. And although I sent her a text message each year, I know she didn’t read them…possibly because I sent them and also because she didn’t do texting. I always struggled to find a Mother’s Day card for my mom. They tend to be pretty mushy and sentimental…two things I don’t feel about my mom. I wouldn’t give her a card with words I didn’t mean and so I always got her funny cards, which she hated. She liked to be gushed over. The last two years I gave in and gave her sentimental cards and they didn’t make any difference to her. She wasn’t speaking to me, so she didn’t even acknowledge them.

The last time I saw my mom she was not in a great space or mood. She looked at me and pretty snarkily said, “I should have never moved to Wisconsin!” I told her we weren’t in Wisconsin. She asked where we were and then said, “I should have never moved to Florida.” Shortly after that she turned away from me, curled up, and went to sleep. That was the last conversation I had with my mom. She’s been on my mind so much.

I’ll be honest…I’m tired of grief. I am way the fuck over it. It isn’t as neat and orderly as I’d like it to be. It’s a fucking mess. I’m a fucking mess. I would like to know when I’ll be okay…when will I just feel like me again. Maybe I won’t…I mean I am an orphan after all. I would like to know something else…actually I’d like to know everything else, but specifically, right now, I want to know what it’s like to die. What does it feel like? I have some fears around dying…not so much the actual death but the being dead. I’m afraid I’ll miss people and be sad and lonely. I suppose at that point it won’t matter…it’s not like I can be suddenly undead…aren’t zombies the only people that can do that? Are they even people? I digress.

This is what happens to me when my wife travels. My mind runs wild with unanswerable questions. She had to go back to Colorado for work. Leaving my English Bulldog, Abby, and I alone in Florida. It’s the first time I’ve been here without either of my parents alive. I’d like to say Abby is helpful, but mostly she’s just sleepy. She needs her full 22 hours of sleep a day.

P!nk wrote a song after her dad’s death called, “When I Get There.” In the song she asks why things would be different in heaven than they were here. Or why would her dad be different in heaven. I think she says he was always first in line, and he always said what was on his mind…things like that. It’s funny because I’ve been wondering the same thing…mostly about my mom. Why would things suddenly be different just because someone died? Why would she be different just because she’s dead?

I floated this idea past my wife, just to see what she thought…she didn’t like it. She reminded me about all the accounts people have given of near-death experiences…I guess more accurately they are dying and being brought back to life stories. People report seeing a bright white light that’s warm and welcoming. They hear the voices of people they love who have died. This reassures her, and millions of others, that there is a heaven, and it’s our final destination.

Personally, I don’t believe in heaven or hell. I do believe in reincarnation. The energy that is the core of who we are, our soul or spirit, has to go somewhere. I think it comes back in another form. I’m pretty sure I’ll be back as a gnat or an ant, because I’ve killed many of them when they’ve invaded my home. Side note…The other day there was an ant on our counter. Now instead of killing it, I picked it up and went to put it outside. And that little fucker bit me. It left a red lump on my palm. That’s karma baby…but I still didn’t kill it. I used to tell the little kids in my mindfulness program that we don’t kill things just because we can…they would usually stomp ants anyway. I tried.

I have read several of books by James Van Praagh, the psychic medium. I’ve also seen him in person and watched him connect people in the audience with departed loved ones who have a message to give…or just something to say. He’d ask the audience if a name or specific situation, that he was describing, meant something to anyone in the audience. Someone would raise their hand and then he would begin to tell them about who was there to talk to them and what they were saying. He was able to provide very specific information about people, situations, causes of death, etc. He’s really impressive.

I have heard James Van Prague talk about what happens when we die. He had said that through his readings he’s learned that there isn’t a heaven or hell, although he does use the term heaven anyway. He explained that when we die our energy goes with like energy. If you were a loving and kind person in your life you would be surrounded by others with similar loving and kind energy. If you were mean and hateful then you would be attracted to the mean and hateful energy of the departed. So, in a sense we create our own heaven or hell. I suppose that’s good news and scary news.

Now I was raised Catholic. I come from an Irish Catholic family that has its attachment to Catholicism rooted in Ireland. My grandmother went to church early in the morning, before she had to work, at least several days a week. Then church on Sundays and confession probably every week. Now all of that is to say that there was no other option than being Catholic in my family…and it wasn’t really an option to just not be anything.

In my Catholic training (catechism classes…yay.) I learned about purgatory. Purgatory is an intermediate state between death and heaven. It’s a place of temporary suffering. Merriam-Webster says that it’s a “place or state of suffering wherein…the souls of those who die in God’s grace may make satisfaction for past sins and so become fit for heaven.” I’m gonna have to say “no thank you” to that good news…yikes!

What I don’t understand is if you go to confession, as required in the Catholic Church and you do your Hail Mary’s, or whatever the priest assigns, you’re supposed to be forgiven…so why the pit stop to be punished again? Although it sounds super fun…I’ll give it a hard “oh fuck no.” Why change if you still end up suffering before you’re good enough for heaven? Heaven being the goal for most people. I don’t believe in purgatory either. I do think there’s a gap between when we die and when we are reborn, but I don’t think it’s punishment.

So why is all this on my mind? I’ll tell you. I worry about my mom. I worried about her when she was alive, and I worry about her now. My mom was not a happy person…at least not the mom I experienced. She had a difficult life as a child and that shaped who she was and how she saw herself. She didn’t believe anyone loved her. She didn’t think my dad loved her, even after almost 70 years of marriage. She was damaged as a child and that kept her from fully accepting who she was. It also kept her closed off to recognizing and receiving love. She may not have had love as a child, but she was loved by many as an adult. It’s very sad to me that she couldn’t accept love. I worry now that she might feel alone. She didn’t like to be alone. She was scared alone. Nothing I learned in catechism told me how to address those fears.

Personally, I believe that our souls or spirits are timeless because we’ve been here before…many, many times. I don’t think that a love connection you shared with someone while you were alive is gone when you die. I think that love bonds go on forever. Maybe it’s like object permanence…even when a person you loved is gone from your presence, you know they still exist out there somewhere. And the love you shared with them continues.

I think part of the process of death and reincarnation is our souls working out past karma…karma from our current lives and past lives. James Van Praagh has explained that after death people of like minds gravitate together and share a natural attraction. So, for example, a soul like Hitler, who created mass destruction, devastation and death, will be attracted to similarly dark energetic souls.

James Van Praag describes “heaven” as having many levels and that the one that we enter right after we die is similar to our existence on earth and that people eventually evolve from these earth-like levels. He says that our soul’s movement is enabled by understanding that religion is a human tool and is not needed in the higher planes. From his experience communicating with spirits, he has learned that the only religion is love.

If we enter heaven with a similar mindset that we had while we were alive, then why would things be different in heaven? If you go to heaven as the same person you were two minutes before you died, then what’s different in heaven, besides being dead? I wonder if that’s confusing to a spirit…seems like it to me. I guess there’s no instant angelhood…I’m not sure that’s a word or a thing.

My mom was an angry person and she held on to resentments. I worry that heaven might not be great for her right now. I want her to find peace and rest but I’m not sure that’s immediately available to everyone. I don’t want her to live in an eternal place that’s as painful for her as her life was. The good news, according to James Van Praagh anyway, is that there’s no mental illness after death. Mental illness is a condition of the physical world. I don’t know who my mom would have been or what she would have been like without mental illness…maybe now she’ll have the opportunity to find out.

Honestly, I hope there’s healing in heaven…if there is a heaven…or wherever we end up. I don’t think there’s a place up in the sky where the dead, the “good” dead, reside, playing the harp and laying on clouds. But if heaven is where we go to work out our past karma and await rebirth, that makes more sense to me. If our mindset can continue to evolve and progress even after we die, then the work never ends…the work of becoming never ends. We are always becoming even after we cease to be on this planet. Maybe we have the ability for clear retrospect when we die. Maybe we can see more accurately what was available to us when we were alive. Maybe we see missed opportunities or missed understandings. Maybe we get to have all that we thought we missed out on…love, belonging, gratitude, rest, being seen and loved for who we are.

I definitely have more questions than answers with all of this death stuff…and I’m in no hurry to experience it firsthand. What I do know for sure is that in the end all that matters is how we love people. Because love wins…always.

And for you mom…May you find peace. May you find rest. May you know you are loved.

Difficult Teachers

~ Kai Raines ~ Leave a comment

I was catching up on the tv show “The Good Doctor” earlier this week. This is the final season so I guess it’ll be extra dramatic…as if a drama needs more drama. Anyway, a main character was murdered. He was killed in an anti-Semitic, anti-gay hate crime. Being a card-carrying member of the LGBTQ+ community that was difficult to watch…even when it’s not real…probably because it is real. So, Asher died and there was very sad funeral. All the people were crying, and I started crying. Pretty soon I was sobbing…and sobbing.

Have I mentioned that I’ve been having a hard time grieving for my parents? I guess mostly for my mom. I have such mixed-up feelings about her. I’ve been pretty shut down…sad but shut down. I feel confused about grieving for someone I loved so much but was angry at and deeply hurt by. I have unresolved feelings about her and I’m not sure how to resolve them or come to terms with them…or even just how to not allow her to hurt me anymore. I realize she’s gone but I have an excellent memory…and she was a powerful figure in my life.

I read a story about Buddha where he talked about a personal attendant of his who aggravated him and made him angry. His attendant was difficult to deal with. Buddha had the choice to send him away, but he didn’t. He said that it’s the difficult people in our lives who are our best teachers. Those are the people who challenge us to really look at ourselves honestly. My mom was definitely one of those people for me.

Growing up I didn’t want to be like her. I was afraid of her. I think I developed my personality in reaction to her…or reaction against her. I am who I am in large part because of her. I had an idea of who I thought she was, or how I thought she was, and I was determined not to be like her at all.

I never thought I was much like my dad either until my parents lived with us. I have some the the same quirky habits he had. My wife would say annoying not quirky. If he wanted something to eat, he’d tell you, but he’d also tell you exactly how he wanted it. For example, chicken noodle soup in a cup, not a bowl, with a chicken leg in the cup so the soup would warm it up. Or 3 crackers with a small spoon of cheese spread, and 3 olives. My mom got so mad at him for that. I got mad at him for mansplaining to me how to clean up my dogs’ vomit…so I understand the frustration. When my wife offers to make me a sandwich, I give instructions too…very specific instructions. That is why she doesn’t make me sandwiches anymore. I get that.

In a song from the musical, “Wicked” called “For Good.” It’s Elphaba and Glenda singing about their friendship. When they first met, they hated each other…there’s a song called “What Is This Feeling” and what they feel for each other is loathing. But I digress…the change song talks about people coming into our lives for a reason, which we may or may not understand. They come to teach us something. We are led to people who will help us to grow. The women say that because of their friendship they’ve been changed for good…as in permanently. They question whether they’ve been changed for the better but definitely for good. At the end of the song, they say that because they knew each other, they have been changed for the better…and for good.

I became who I am because of my parents. I was definitely changed for good…and I think for the better. There’s an ebb and flow in relationships…all relationships. There are times we’re closer to someone and times we feel more distant. Sometimes we need the proximity and sometimes we need the space. Relationships are constantly changing and constantly in motion. That continuous flow changes us. Rocks are shaped by the movement of water. Water wore through rock over millions of years and as a result we have the Grand Canyon.

People are shaped by movement as well. The movement of negotiating relationships…all of them. Personalities rub against each other and the rough edges of who we are, the things we cling to smooth out over time. They change us for good. We are not the same person we were at the beginning of the relationship. They also change us for the better if we are intentional about our relationships and our interactions. We become more of who we were meant to be…we become more truly who we are.

Some people believe that we chose the life and family we’re born into long before we are ever born. Maybe I did. Maybe I chose all the pain and challenges I was born into. I know that because I knew my parents, as my parents, I was changed for good, and I was changed for the better. I am a better person because of them.

Let’s be real…we are shaped and sculpted by all the relationships we have in our lives. And we are a force that shapes others as well. Let’s lead with love in all of our interactions. Let’s be aware of what we’re doing and how we are impacting the people we come into contact with each day. Let’s love to change people for good, and because they knew us, for better. Because in the end all that matters is how we love people…let’s love them well.

Where She Go?

~ Kai Raines ~ Leave a comment

When our soon to be 13-year-old grandson, Anthony, was a toddler, and he couldn’t find something, he’d say, “Where she go?” It was funny and adorable and not usually about a person…just something missing. He’d put his arms out with his palms up and turn his head side to side, and look around quizzically as he said, “Where she go?” I’m not sure why it was all “she.” It might have been as simple as him having a lot of women in his life. His two grandmas took care of him every day, and he had two other grandmothers, as well as, two sisters, and of course his mom. There were a lot of “she” in his life.

Yesterday I was sending out letters telling banks and creditors that my mom died. I was looking at the death certificates for both of my parents and I felt panic…where she go? How can she be gone? It’s the panic a child feels when they wander away from their mom in a store and when they turn around, they don’t see her. Where she go? Where the fuck are my parents asks the lost child and the panicked adult? Now I’m not wondering if they’re in heaven or hell…I don’t actually believe in either. I mean how could they possibly have death certificates? Only dead people have those. Why can’t I find her? She’s definitely missing. 

I packed up my mom’s clothes and have them loaded up for a donation today. All that’s left is pictures and memories. I just typed that sentence and remembered Jim Croce had a song in the 70’s called “Photographs and Memories.” My sister always said I liked sad music. She might be right…I did like his music…and it is kind of sad. Pictures and memories are what I have left of my parents. They are what remains for me to remember them. It doesn’t feel like enough…at least not today.

I feel untethered. Set adrift to…I have no fucking idea where. That feels a little risky…not knowing where I’m going. I’m 63 years old. I have plans and goals. I have a family. We moved to Florida to retire. I know where I’m going. I don’t know where I’m going with my parents…or my mom. There were years that I did not see my parents or talk to them, from 50 to 61, although I’m not sure why. I’m sure they had their reasons; I just don’t know what they were. I guess it doesn’t matter now. It seems that feeling untethered is a familiar feeling after all.

There were other times my parents and I didn’t communicate for a period of years, but the 50 to 61 period started on my 50th birthday. My mom remembered birthdays and she always called. Sometimes she’d send a card, but she always called…but on that day she didn’t call. No call and no card…I was in trouble. Why? No clue. I called my mom a week or two later, but she didn’t answer and didn’t return my call. That went on for several weeks…calling, no answer, leaving a message, no return call. And then I stopped calling. All I was doing was hurting myself by hoping she’d answer the phone…but she never did. And I quit trying. 

Maybe I should have persisted with my calls. I don’t know. I didn’t want to beg to be their daughter…and that’s how it felt. Like when your child comes up to you, usually while you’re on the phone, and pokes you repeatedly in the leg saying, “Mom! Mom! Mom!” Because all urgent matters take place while you’re on the phone. All my unanswered calls felt like me jumping around and poking her leg, and still getting nothing from her. I felt unwanted, or worse…like I didn’t exist. That’s when I felt like an orphan. From 50 to 61 I was an orphan. I was an abandoned child…although not exactly a child…not understanding where my parents went. They disappeared from my life.

For a long time, I thought there must really be something wrong with me because my own mom didn’t want me…didn’t love me. I felt like I must be defective somehow. Living on the island of misfit toys, or misfit daughters. What was so wrong with me that she didn’t want me? 

The difficulty with my mom was that I never knew where I stood with her. I would think things were fine and then she’d be mad at me and stop answering my calls. So, I’d call and call and call until finally she would answer the phone. She’d be cold as I ice, and I’d have to apologize and apologize some more until she’d finally let it go…but it was never gone. My mom remembered every detail of every time someone hurt her. She was easily angered or offended. And she kept score. The difficulty was I frequently didn’t know what I had done wrong. So, my mom would be mad until she wasn’t and then expect everything to go back to normal. If she was okay about something, I was expected to be okay too. Her feelings ruled.

The crazy thing in all of this is that if she had just told me that there was problem, we could have talked about it and hopefully resolved whatever the issue was. Instead, I tried to figure it out and when I couldn’t I stopped trying. It took me many years and lots of dollars in therapy to reach a place where I could see that I was not the cause of all of the problems in her life. She was the only one who could have changed anything…and she didn’t. I don’t know if she didn’t want to or if she didn’t know how…maybe she didn’t care enough to try. I don’t know and I’ll never know.

Now, let’s be real…what is my fucking point? I wish I knew. I still feel shocked that both of my parents are gone. All the years that I didn’t see them, I felt rejected. Like I didn’t matter enough for them to try. Try to see me or talk to me and tell me what was on their mind. Sometimes what I think I missed most about my parents during my 50’s was the “idea” of them. Perhaps more accurately, the “ideal” of them. Maybe that’s what I miss now too. The ideal of a mom…where she would love me just for being me. I felt the most loved when I graduated from law school. They both liked that for sure. I wanted to be loved just for being their daughter, not for an achievement. 

It’s easy to look back and question or wonder…second guess myself and my parents. I’m not sure how helpful that is. I don’t need to analyze my mom as much as I need to understand myself in relationship to her. Who was I with her and who am I without her? What habits or patterns did I develop in reaction to her? I frequently felt the need to protect myself when I was with her. How did that impact my relationship with her? How did it affect my relationships with other people? Does it still affect them? It all feels confusing right now. There’s a mountain of feelings and experiences to sort through. 

What I do know is that I can always love better. I’m guessing that my parents were hurt and I’m not sure how well I responded with love. And love isn’t all kisses and butterflies…it’s having hard conversations and being completely honest. It’s seriously clearing the air. Not allowing a lifetime of grievances to stack up so that even small things become a bigger deal than they need to be. 

What I know is that I tried. I did my best. I’m guessing they did too. What I’m left pondering is how I could have loved better? How could I have loved more honestly? More authentically and with more vulnerability? How could I have loved with less judgment? How can I stay grounded so that I can be my best most loving self all the time? 

I am grateful for the last couple weeks with my mom. While she was happy and relaxed, we loved each other. I know she loved me the best she could, and I loved her too. She knew I loved her. And in the end, all that matters is how we love people. So, we need to get busy loving people. Because love wins…every time.

Did I Mention My Parents Are Dead?

~ Kai Raines ~ Leave a comment

I realized today that both of my parents are dead. Dead?! WTF!? I know now why my kids never want to talk about my death, someday far away (I hope)…parents don’t fucking die! My kids assure me that they’ll take care of me and braid my hair. I ask them how long I will have been in a vegetative state for them to be able to braid my hair? My hair is maybe an inch long. It’s hard for them to imagine a world without me in it…it’s hard for me to imagine too.

I picked up my mother’s ashes today and suddenly all of this is very real…in a new way. When she died, I was in Colorado visiting my kids and grandkids and our new great grandson. So maybe things didn’t seem so real. My parents were never in Colorado, well not since 2009, so it was easy to think they were fine in Florida…maybe not my dad because he’s been gone a while but definitely my mom. As we were driving home it started to feel very real. I could feel her absence as I got closer to Florida. It’s weird to feel the absence of something, instead of the presence.

My mom had been asking to go to Bob Evans for breakfast and I never had the chance to take her…she got way too weak too fast. We ate there many times with my parents and had a lot of fun drinking mimosas and telling stories about our lives. I learned a lot about my parents there. The food is not my favorite, although if you like grease and fat pull up a chair. It wasn’t our favorite restaurant, but both of my parents really loved it.

Today Bob Evans wasn’t fun. It was sad. Sad because the reality of them being gone smacked me right in the head…I gotta start wearing a helmet. I can’t go visit my mom anymore and there are no more phone calls. We also picked up her belongings from her assisted living facility…the apartment, as she referred to it. One day recently, she asked me if I thought we needed that big of apartment. It made me smile. I didn’t really want to pick up her things, but it had to be done. My wife went with me and that helped. My sister and brother-in-law are coming this week too…I’m really glad.

I remember a cousin of mine telling me not to visit my mom everyday in the nursing home because then I would be lost when she was gone. She gave this advice after losing her father. I did not visit her every day, but it turns out you can still feel lost. I think I may actually feel like an orphan. Shit.

My parents and I had a challenging relationship…mostly my mom and me. Although my dad would always defend her. We had periods of years where we didn’t communicate at all or where my mom wouldn’t communicate with me. I’d try but after so many unanswered calls I’d give up…I guess that’s not great. I felt so rejected and every call made it worse. I guess I was protecting myself…I don’t know if that was a good thing to do or not, but I can only take so much. But seriously, I did not expect them to die. Parents don’t die. Not this soon anyway…maybe not at all. I’m okay with the fact that my parents were both ready to die. I’m just not okay with them being dead. If you’re confused, welcome to my world.

Given everything that went on with my mom and dealing with her anger, I thought I might feel relieved when she died. I’m looking at those words I just wrote and cringing a bit. You are not supposed to feel relieved when someone dies, especially your mother…that’ll send ya straight to hell. My physical therapist told me one day that I was a good person for taking care of my parents. What “good person” thinks they’ll feel relieved when their mother dies?

I thought I’d feel relieved that I didn’t need to be afraid of her anymore. I wouldn’t be wondering what her mood was going to be when I saw her. Turns out I don’t feel relieved…so my soul might be saved. I feel like I’m missing something. Like I went out without a jacket and am stuck outside in the snow. Like you know something isn’t right, but you can’t quite put your finger on it.

And here’s a strange thing…when we picked up her things no one said anything at all. No “We’re sorry for your loss” or “We loved your mom” or “We miss her.” Nothing. No comments at all from any staff. I guess they go through this all the time. Maybe it’s old hat for them but not for me. I wanted to yell, “You know my mother is dead right?!” Say something…say some fucking thing. Don’t act like it’s just a normal Tuesday. It’s not normal. Nothing is normal. My mom died. She’s dead. She’s gone.

Let’s be real…my mom died and nothing is okay. I need to learn how to navigate a world that she’s not in, neither is my dad. Am I still a daughter if my parents are gone? Who am I if I’m not busy being their daughter? Who am I when I’m just me on my own…not me in reaction to them? Who am I if I define myself without their input or opinion? Maybe we really don’t grow up until our parents are gone. Maybe that’s when we can be free enough to allow who we really are to shine…when we can come out of the shadows. I told my wife that I spent a lot of time trying to be invisible growing up. If you’re invisible, then you can’t be in trouble or wrong or bad. 

Now I need to become comfortable with visibility. I don’t need to hide in the shadows. Now I really don’t need my parent’s approval…even if I do, it ain’t happening. I loved my mom and dad. I believe they knew that…that they were loved. They had grandchildren and great grandchildren that adored them…and my sister was always there for them. My parents are gone but love continues to win. My mom wanted to be with my dad, and now she is. Maybe that’s the power of love, to take you where you want to be. 

Love is a powerful force. It’s a force that needs attention and direction. Let’s love consciously, with intention. Love is not something to do half-assed…because in the end, all that matters is how we love each other…so do it with your whole self. Love must continue to win. Always.

Multiple Diseases of the Elderly

~ Kai Raines ~ Leave a comment

The cremation place called me this morning…maybe it’s a cremation facility…I’m not sure. Anyway, they called early this morning to let me know that they have my mom and they’re taking care of her. That seems strange because she’s dead so how much are they really taking care of her? I understand that they were telling me that her body is being handled respectfully. I do appreciate that. They also wanted to ask me if I wanted the cause of death on all the death certificates or just some, what about half and half? Of course, I ordered 7 so there you go. We’re getting 4 of one and 3 of the other. I’m not sure which way so it’ll be a surprise. 

Since I had them on the phone…and a side note here, these cremation people are really lovely. They speak softly and calmly…slowly. They are as relaxed as possible, I’m sure because they are dealing with some unstable people…like me. So, since I was talking to them, I asked what my mom’s cause of death was, because no one told me, and I didn’t think to ask. She said, “Multiple diseases of the elderly.” Multiple diseases of the elderly…what the fuck does that mean? I thought they’d say natural causes because being almost 92 is a natural cause of death. Multiple diseases of the elderly make it sound like no one really knows…she was old…elderly…so check the box that covers the most options. Like a big “I’m elderly” blanket. 

I do not agree with their cause of death. My mom did have heart failure and A-Fib. She had a damaged valve in her heart because of rheumatic fever as a child. She had Parkinson’s disease that was progressing. She had a harder time moving her legs to walk and she became so unstable that she had to use a wheelchair. Her hands were shaking worse, and eating was more difficult. She had a hard time keeping food on a spoon or a fork. I know that really frustrated her. I can only imagine. I don’t think any of those multiple diseases were the cause of her death. 

Multiple diseases of the elderly were not the cause of my mother’s death. Not eating, not drinking, and sleeping were her causes of death. Maybe loneliness because she really missed my dad. Maybe that was the heart failure…failing from sadness. The real cause of death was that she wanted to die. So, the official cause of death was a “strong will.”

Now I feel confident in saying that “strong will” is not a choice on a death certificate. That’s too bad because I think it’s one of the most common causes of death for the elderly…strong will. I think that was the same cause of death for my dad. He was ready. She was ready. My mom told me that she wanted to die, and then she’d add, “Not because of you.” I did appreciate the clarification. 

My mom felt like she had lost control over her life and that all her decisions were made for her. That really made her angry. I told her that there were 3 things she controlled: what she ate, what she drank, and whether she took medicine. She controlled those things, and no one was going to make her do anything she didn’t want to. Then I talked to the staff to make sure I wasn’t lying. It was difficult for the nurses and aides who really cared for her to let her go. They wanted to convince her to eat, just a little, or take a sip of water…but they stopped. They honored her wishes, and in that way honored her. 

I do believe my mom willed herself to die. She definitely had a strong enough will to make it happen. She shut everything down and died. Strong will is not a disease but is certainly a cause of death. What are the multiple diseases of the elderly? At first, I was thinking of the obvious…heart failure, cancer, kidney, heart, lung, or liver disease, an aneurism, dementia, a stroke, and the list could certainly go on and on. My Aunt died of COPD, my dads’ parents died young of heart problems, my mom’s mom lived until 96…96 and ½. She’s got the record for sure. Her great grandchildren called her the “energizer bunny” and said that she kept going and going. 

But what are really the multiple diseases of the elderly? A “disease” is defined as an “illness or sickness characterized by specific signs or symptoms.” Seems obvious. But what about the “dis-eases” of the elderly? “Dis” is a Latin prefix meaning, “apart, asunder, or away.” The slang “dis” means “to treat with disrespect or contempt.” “Ease” is the “absence of difficulty or effort, making something less severe, or moving carefully.” Another definition is “to free something that pains, disquiets, or burdens.” 

So…apart, away, disrespect, absence of effort, less severe, free what pains or burdens us….Hmmm. Perhaps the real dis-ease for the elderly in our society is being put away or apart, not being respected as a useful member of society or a family. Maybe it’s that we want to be free from the extra burden of caring for someone in their last years. I guess it’s not that surprising since we do glorify youth in the United States. No one wants gray hair or wrinkles, so people have cosmetic changes made to themselves in hopes of looking forever young. We treat aging as a curse, instead of a natural part of life. I’ve told my wife that I like the lines on her face because I see them as laugh lines, and how could lines from happiness be a bad thing? 

When we moved to Florida with my parents, I had a plan. The plan was that my parents would live with us until their deaths. That way they’d never need a nursing home because we would take care of them for the rest of their lives. Oh, the best laid plans of mice and men…and women. For whatever reason, my mom became adamant that she wanted to be in a nursing home. She wanted to be away from me and away from my dad. She’d tell me that I didn’t want her there and neither did my dad, although that was untrue. 

We both tried to make her happy, but we couldn’t. When her aggressive behavior was too much for me to handle and keep my dad safe, I agreed to find her a nursing home. Getting her into a nursing home was a giant cluster fuck, as I have written about in other blog posts. Once she was in the nursing home she didn’t want to be there. She didn’t want to be at home with my dad and I either…I don’t know exactly what she wanted. I think that maybe she didn’t know either. That was sad.

I know that the elderly are frequently overlooked in our country. Unlike other cultures, we don’t look to our elders for their wisdom and insights about life. We don’t ask about what life has been like for them. We don’t ask about the things they’ve learned or the experiences they’ve had. My dad could tell you about every place he ate when he was traveling. When we were driving from St. Louis to Florida it was a narration of all the places he drove and where he ate the best something. I told my wife I want to start looking for places to eat when we’re driving cross country…usually I just want to grab something and get right back in the car…but I could change, and it might be fun.

I think the multiple dis-eases of the elderly are loss, sadness, lack of control, and nothing to look forward to. The dis-ease is in watching everyone you love die. You may want to live a long life but along with that comes the loss of many people in your life. My mom said all the time that all of her friends were dead. Then she lost my dad. It’s hard to go from independence to complete dependence. My mom would tell people that I made her sell her car and that she could still drive fine. What she didn’t say was that one whole side of the car was scratched because she hit the side of the garage regularly pulling in. And she was completely blind in one eye. So, she could drive but it was dangerous for her, anyone on the road, and the garage. I understand selling the car represented a huge loss of independence for her.

It’s difficult to move somewhere knowing that you won’t move again. My wife and I talk about Florida as our last move, and we hope to stay where we are. But I’m 63 not 91. I know there’s still life ahead of me and many things I want to do. In a nursing home people only leave when they die. She felt like she was waiting to die. I would try and focus on everything she still had, a big family with grandchildren and great grandchildren, and the fact that she was very loved. I think my mom was sad and felt like I put her away, even though she’s the one who put herself away. It was hard to see her sad and angry.

We have a rapidly growing population of people over 65 in this country…I’m not, but that’s what I hear. We don’t have good answers about caring for an aging population. If you have the money, you can find a beautiful resort style place for independent or assisted living, with increasing levels of care as you need it. If you are not independently wealthy, it’s not as easy. The multiple diseases of the elderly are sadness, isolation, loneliness, loss. Those are the dis-ease’s of the elderly. Those are the causes of death in our elderly. 

I don’t know how to solve the problem except with awareness. We tried to give my mom and dad a full and happy life in Florida, some days were more successful than others. I’m not sure I was always as aware or attentive to my mom’s emotional needs as I could have been. I do know I was doing my best. The only way to discover what needs to be done is to lead with love. If I am leading with love, then I am seeing issues and people through a lens of love. When we love people what are we willing to do for them? If we love our neighbor as ourselves then what actions are we willing to take? Could we befriend a lonely neighbor or just say “hi” to someone? My mom used to love to sit on the patio and watch people walk their dogs. She was thrilled when someone stopped and talked to her. That’s all it took. Less than 5 minutes. Certainly, we all have 5 minutes to give. 

Let’s be real…Everyone wants to matter…to be seen…to be cared about. None of that changes just because you’re 70, 80, or 91. We never reach a place of not needing. We thrive in connection with others…in relationships. We are interdependent beings. We all need love, and we all have a tremendous capacity to love. Sometimes we hoard our love or reserve it for special people in our lives. But love is one of those things that the more you give it away, the more you have to give. 

So, let’s lead with love. If we use love as our guiding force, we will find the people and places that need our love the most. Let’s find them and let’s give all the love we can. We can meet people’s needs to matter and be seen by taking our focus off of ourselves and turning it towards others. We can find ways to be loving all day every day. Let’s do that. Because in the end all that matters is how we love people. Let’s love freely and generously. Our actions can ensure that love wins. Love must always win. 

I’m An Orphan…Right?

~ Kai Raines ~ Leave a comment

Can you be an orphan at 63? Well, 63 and ¾’s to be accurate. Personally, I’m not sure but my sister says that we’re orphans now. My mother died March 17th. St. Patrick’s Day. My sister and I think she did that on purpose. Now no one will ever forget the day she died and it’s a national holiday for us Irish folks. What more could you ask for…green beer and toasts to you all night…toasts lengthening with each Guinness consumed. Omg! She would be so pleased. I’m happy for her about that. We did many toasts Sunday. My favorite was, “May heaven know you’re dead a full half hour before the devil finds out.” She wouldn’t like that one for herself, but my dad was probably laughing his ass off. Hopefully I didn’t create a conflict there…I wouldn’t want them to fight on her first day in heaven.

My mother died peacefully in her sleep Sunday morning. The rehab center called to tell me. It was a call I had been expecting at any time, but I was still surprised when it came. My mother wanted to die. She was ready. In her good weeks, she told me she had a great life but that she had lived longer than she wanted to. She missed my dad. She had stopped eating and drinking. She curled up in bed and went to sleep. She stayed asleep several days before she died. My dad passed away exactly the same way. I’m sure after 70 years it was hard to be apart. 

My first phone call was to my sister. I told her and then we just stared at each other silently for a minute or two on FaceTime, and then she said, “Well we’re orphans now.” I would have been surprised by that except she had been practicing this idea on me with “We’re gonna be orphans soon” or “We’re gonna be orphans when mom dies” and “We’ll be orphans. That’s what it’s called when both of your parents are dead.” That’s what it’s called alright…kind of.

An orphan is defined as, “A child under the age of 18.” This definition made my sister super sad, so I told her I’ll adopt her, and then she won’t be an orphan. I can be her “sister mother” kind of like “sister wife” only legal…at least I think it would be legal…super creepy but legal. And I won’t make her wear a long dress and braids…well maybe braids. I’m thinking Pippi Longstocking’ish. I need some red hair dye.

When I hear the word “orphan” I think of “Little Orphan Annie” the title of which became “Annie” probably because you don’t address a child as a “little orphan” or any kind of orphan. It’s not a title. The movie “Annie” reminds me of, “It’s a hard knock life for us” and “Tomorrow, tomorrow, I love you tomorrow….” And of course, Carol Burnett as Ms. Hannigan. She was some bitch.

For my sister’s sake, I also read that adults who have lost their parents can (and do) identify themselves as orphans. Merriam-Webster says, “A child whose parents have died, are unknown or have permanently abandoned them” are orphans. By that definition my mom was an orphan from a young age. Her father left my grandmother when my mom was 6, I believe. She told me that he was crazy about her and loved to take her places with him. She said that he loved her so much, but he still left, and she never saw him again. And she doesn’t know why. My mom was devastated by the loss of her dad. She had a double loss, her dad and being left with her mother, who she told us, never loved her. My grandmother’s brother, my Mom’s Uncle Mike, lived in the apartment with them. I’ve heard horror stories of how my grandma and great uncle would scare my mom and how they were mean to her. She was traumatized as a child. And I guess no one really cared. I know she felt abandoned and unloved.

It’s no surprise my mom had a lot of phobias…claustrophobia, acrophobia, and hydrophobia are the ones I remember. Not understanding why she was treated so harshly she came to believe that she was “bad” somehow and everything that happened was her fault. When children don’t understand what’s happening around them, they make up a story that solves the riddle for them. Our brains cannot manage the stress of not knowing or understanding what happened, so our brain creates a solution…even if the solution is hurtful to us…or untrue.

I was also an orphan, way before this St. Patrick’s Day. I was abandoned by my mother almost from birth. Not technically, not physically, but emotionally. My mom and I had a complicated relationship. I’m not sure exactly why.  I think many of our issues stemmed from her own childhood. They were hers but projected onto me, so what was hers became mine. Her mother favored her brother, 4 years younger than her, I believe. My mom used to say, as if she was joking, that her brother was “the sun, moon, and stars” to her mom and that “he could do no wrong.” She felt unloved and unwanted. I felt the same way. My mom and I had years that we were estranged from each other and that led to my estrangement from my dad, my sister, and all my extended family. I’m sorry for the lost years, at the time I was doing what I thought was best for me, and my own mental health. Would I do it differently now? I honestly don’t know.

I’ve used this blog to write about my mom and I will continue to write about her, probably a lot. I’m going to write about her because she was my mom. She was a very influential person in my life. The ways she loved and hated, was pleased or disappointed, what she accepted and what was just tolerated shaped who she was and who I am. Now with awareness, I want to choose my shape…I will shape who I will become…or am becoming. We are always becoming.

My mom had mental health issues. My primary caretaker had mental health issues. Issues that were never fully addressed and definitely not talked about. It was perhaps the biggest elephant in the room growing up…and there was a small herd. I’m going to free the poor elephant, actually, all the elephants. They’ve been chained up for too fucking long. I’m going to write about, and talk about, the issues in my family, with my mom, my dad, my parents (because they were different together than individually), maybe my sister, extended family…I’m gonna talk about patterns and habitual behaviors, familial and personal. I’m going to talk about the legacy of abuse, mental illness (in different forms), abandonment, grudges, withholding, and I’m going to talk about forgiveness, mental health, insight and change…I hope lots of change, for myself. I’ll leave other people to determine their own path through whatever life brings to them. Life brings a lot…a hell of a lot. 

If you’re reading this and you loved my mom, you might be offended when I talk about her…so this blog may not be for you. Remember though, I loved her too. I loved her and she was my model for motherhood and womanhood. I was sculpted out of my responses and reactions to her. In order to understand me I need to understand her. I need to develop my compassion for her. She was just a woman doing the best she could. It didn’t always feel that way. I’m sure it doesn’t always seem like I’m doing my best either. I’m gonna do my best with this. I’m gonna do my best for my wife, kids, and family. I’m gonna do my best for her and for me…so I keep moving forward.

Let’s be real…losing a parent is hard. Losing both in less than a year feels like a lot. That’s my official assessment of myself…it’s a lot. Sorting through baggage, that we’ve carried for years is hard work. The starting point is to put it down. Set the baggage down. It may feel like you can’t because it’s such a part of you and after all it’s part of a matched set. Do it anyway. Set it down and look around it. Finding a new perspective can get you started on a new path, and intentional path…a path for you and your health, both emotional and physical. I am choosing an intentional path. I am choosing my path. No one is making me do anything. I’m taking the path that leads me through all the shit I’ve been avoiding for such a long time. No more serpentining…constantly running in a zigzag line because I’m afraid of what will happen if I stop. What happens if I stop? If I stop and set down the baggage…I guess it’s time to find out.

So I’m headed on to a path of transformation. My transformation. I am way the fuck too old to be blaming my mom for anything. It’s time I take charge of my own life. My own life and my own behavior. In order to love someone, you have to know them. And to know them you have to listen, deeply. Its time for me to know, listen to, and understand myself. To give myself the same consideration I’d give a friend. And of course, it all starts with love. Love is the greatest gift we can give someone, including ourselves. I’m going to lead with love, in the world and with myself. I’m gonna try some tenderness. In the end, all that matters is how we love people, and that includes ourselves. I want love to win in my life, and in yours. Let’s be love warriors…starting now. I’ll go first….

I Am Fucking Exhausted…The 6th Stage of Grief

~ Kai Raines ~ Leave a comment

I did a 5-part blog and podcast on grief last year. I’m sure you know the stages: denial, anger, bargaining, depression, and acceptance. I think there should be a 6th stage of grief…EXHAUSTION. Because grief is fucking exhausting! 

My whole body hurts with how exhausted it is from pain. This 6th stage is for any loss, any grief. I’ve written about chronic pain because I know chronic pain…and it is exhausting. I’m exhausted. I woke up this morning because I was in pain, and after a full night’s sleep I am still exhausted. Every ounce of me is exhausted. 

My dad died two months ago, and I’m exhausted. Exhausted and frustrated because I don’t think I’ve even begun to grieve his loss because I don’t have the time or the energy. I boxed up all of his clothes and donated them to hospice. It’s strange packing up someone’s life and giving it away. I don’t want all traces of him to be gone. My sister and I kept things that were important to us and things we thought would be meaningful to our kids. I had a dream that my dad’s baseball cap, which has been hanging on the kitchen chair for the past year, had moved to another chair. In the dream that was my dad letting me know he’s still around. And so, his hat hangs on the kitchen chair, waiting for him to move it. I’m really tired.

My mom has dementia and lives in a skilled nursing facility. She has good days and bad days – and they are either REALLY good or REALLY bad. Today is bad. I am the enemy she fights against. She says mean and hateful things to me. She hangs up on me several times a day…and, although it’s pitiful, I’ve tried to beat her to hanging up…although I won’t just hang up on her. I try and end a negative conversation first but she’s always faster than I am. It’s exhausting. I’m tired of trying to calm her and placate her. It’s exhausting. She’s exhausting. I found myself on the couch crying and telling my wife that I try to do everything for her but it’s never enough and it’s never right. I’m so fucking exhausted. I can’t even touch any of the grief I feel about her or my dad. It would require way more energy than I have – maybe more than I’m willing to give at this moment.

This week I found out that besides a separated AC joint in my shoulder I also have a torn rotator cuff. That helped explain the length of time it’s taking for my shoulder to heal and the amount of pain I’m still experiencing. I packed up my dad’s clothes, as I mentioned, and am in the middle of taking care of the financial stuff for both of them. We’ve also been trying to move my mom to a different facility where she would have more people she could interact with. I had the move all set up until the administrator, of the current facility, decided he knew what was best for my mom and told her she should go to assisted living. Of course, he didn’t tell her she can’t afford it and he didn’t consider her safety or needs because he doesn’t know her. He won’t do the paperwork for the transfer and now she only wants to go to assisted living. So, I’m having a pointless fight with this administrator, who is overstepping his position, and my mom is refusing to move…so that’s all fucked. I don’t really know what to do, what I do know is I’m exhausted. 

I think exhaustion is the 6th stage of grief. If you’ve ever experienced grief, it’s obvious, right? Exhaustion is the overlooked stage. Maybe exhaustion is the last stage coming after acceptance…you’ve come to terms with the loss but are so wiped out. You probably didn’t even realize how exhausted you were. I think exhaustion is woven in between all the other stages. There’s denial, exhaustion, anger, exhaustion, bargaining, exhaustion, depression, exhaustion, acceptance, exhaustion. It’s exhausting just reading all of that. And all those stages come and go as they please. I’m not sure how long it takes to feel like you are on the other side of grief…maybe there is no other side. Maybe we just adapt to the loss, and it becomes incorporated into who we are.

I am learning that exhaustion does not go away just because I accept a situation. Accepting chronic pain doesn’t stop me from waking up in pain. It doesn’t end the days where I am in so much pain, I’m afraid to take a step, because I’m scared of falling. It doesn’t stop the frustration of not being able to lift one leg to step into shorts because it’s agony…the lifting and the standing on one leg. It’s relentless. Its fucking exhausting. 

Accepting that my dad died doesn’t end the work that needs to be done. There are details to take care of…I didn’t realize how many details. And acceptance doesn’t help me deal with my mom’s emotions and grief. She was exhausting before my dad died. And accepting my mom’s dementia doesn’t stop the constant phone calls and complaints. It’s 10 am and I have already been hung up on 3 times. Acceptance doesn’t change that. I am exhausted. And in that exhaustion, I am trying to do the right thing all the time. But I don’t even know the right thing all the time. I am doing the best I can, although it never seems to be quite good enough. There’s always more – more to do, more to fix, more to appease, more to be responsible for…even if I’m not.

So, I’m exhausted, big damn deal. You may even be thinking, “Go take a nap!” This is not exhaustion that a nap helps or resolves. This is exhaustion in every cell of my being. Exhaustion to the bone. Now my natural reaction to all of this is to shut down emotionally…pull myself up by the bootstraps and march on. I don’t even own boots, but on I march. I’ll keep going because I don’t feel like I have any other choice. I’ll be responsible and keep moving forward…that’s what I do. As I write this I realize, I have totally shut down my emotions. I haven’t been feeling much of anything except pain and pressure. Pain in my body and pressure to keep doing…whatever needs doing.

I shut down inadvertently. I didn’t even realize it until now, writing about grief. A grief that I know I have not even touched…yet. So, what does shutting down do for me? It definitely does not end the exhaustion. It might even add to it because I waste so much energy trying not to feel. It cuts me off from myself and from caring for myself. I can’t care for what I refuse to see or feel. It creates a barrier between me and the people I love. It keeps them at a distance so that even if they could help, I’m not allowing them to. It causes doubts and confusion. It makes problems seem bigger than they are…it can make grief seem bigger than it is…or maybe more unmanageable is a better way to put it. I am fighting what already is…everything I’ve written about is already reality. I waste my time and energy longing for things to be different than they are. Now that’s exhausting…a waste of energy and exhausting.

So, let’s be real…sometimes I feel hopeless. I look out in front of me and fear that I’ll always feel as exhausted, sad, confused, and in the same pain as I am right now. But here’s the thing, I have no idea what the future holds…not 10 years from now, not even 10 minutes from now. There’s a line in the Indigo Girls song, “Closer to Fine,” that says, “And the less I seek my source for some definitive, the closer I am to fine.” I long for things to be stable and solid…something I can hang on to, solid ground to steady myself. But everything is changing all the time. If I can release this longing. Release this need for certainty. If I can lean into what scares me, then I can allow what is to be…as it already is…without all the kicking, screaming, and fighting. And I am closer to fine.

If I can stop looking for an answer, stop thinking I need an answer to save me…stop looking for the definitive…then I am fine. I am fine because I am here in this moment, just being in this moment, and I’m fine. When I try to change the past or arrange the future, then I’m really fucked. I’m fucked because I can’t but I’m still trying to convince myself that I can. I think maybe the answer is that there is no answer. There’s not one definite answer that works for the world. One answer that everyone is looking for. I don’t need an answer. I need a moment-to-moment strategy to live my life. And here it is…Stay. Just stay. Stay where I am. Stay with whatever feeling or situation I have in that moment. Just be where I am. Just be who I am. Just fucking stay. 

I need to release myself from the idea that I can take care of everything and everyone…I actually try to do that. Release myself and stay with whatever is there. I might feel scared or relieved, possibly pissed off, frustrated, discouraged, envious, abandoned, used, manipulated…you name it and stay with it…right where you are. Acknowledge whatever is there and stay with it. Look at it. Be curious about it. Be prepared to learn from it. We learn when we stay. We learn because we stay. Stay until you don’t need to anymore. And then, as Dharma used to say on “Dharma and Greg,” put it in a bubble and blow it away. Let go.

There you have it…my 2 strategies for life…Stay and Let Go. I knew I could be brief…too bad I didn’t start here; you could have been done in one minute. Seriously, it’s not bad advice. I’m learning to follow it myself. And behind the staying and letting go, always be guided by love…and some gentleness. It takes time to learn, and grow, and change. Love yourself through it. Love those close to you through it. Love those you’re not that crazy about through it. And people you don’t know or don’t think you care about…love them too. The only thing that will change the world is love. So, get to it. The world needs love. Desperately. 

Love must win…always.