Tag: Broken

My Beautiful Girl

~ Kai Raines ~ Leave a comment

Wednesday was the funeral for my daughter Jessica. I wrote this letter o her and my grandson, Javon, heroically read it for me. It was impossible for me….

I don’t know how to write a eulogy for my daughter, so I thought I’d write her a letter.

Jessica, my beautiful girl,

No one ever prepared me for what to say if you died. Maybe because there aren’t any words…except all the bad ones…the F bomb being my favorite, as you were well aware. I can’t stop thinking that this is not how life is supposed to go. This was not supposed to happen. You were not allowed to die before me.

I’ve been thinking about a Brandie Carlile song called “You Without Me.” Before Christmas I was thinking about you and Amy and Ben and watching you all grow up and separate from me and become your own people…amazing and beautiful people I must say. Brandie Carlile wrote that song about watching that happen with her daughter who is now 10. She says,

“Was your smile always crooked? Was the freedom ever free?

Do you kick the rocks between your feet, after all this time with me?

You can listen to your own records now, decide what you believe

You can pray on stars and skip the gods like stones across the sea

But I would know you anywhere, I lost myself in you

Heavy are the hands that you are free to slip right through

Do what you have to do

There you are, my morning star, I wondered when you’d show

Give me just a quick thumbs up, a wink before you go

I never heard that voice before today, I remind myself to breathe

There you are, it’s just you without me.”

That’s how it should be Jessica…you without me…30 years from now. Not me without you. I’m not sure I know how to be me without you. I did lose myself in you, but I also found myself…as a mom…your mom.

I know that life was a struggle for you. I wanted so much to do or say something to help you realize how wonderful you are. You were so smart and so kind and so funny. Some of my favorite times were with you, Amy, and Ben all of us laughing until we cried.

My sweet girl, I know that this life was too hard and too scary for you. I’m glad you’re without fear now. We had some challenging times when you were growing up. You were still apologizing to me for your teenage antics throughout your 30’s. But I wouldn’t trade one moment of being your mom.

When you were born you didn’t cry like most babies. When the doctor handed you to me, you just opened those beautiful blue eyes and looked at me. No crying or fussing…just looking, as if to say, “it’s me mom….I’m finally here.”

Right before you died, you opened your eyes and looked at me. You hadn’t opened you eyes for over a day. You looked at me and held my gaze as if to say, “it’s me mom…I have to go now.” Your breathing immediately slowed and minutes later you were gone. I had the chance to tell you how much I love you. I told you there was nothing to be afraid of now and that it was okay for you to go…even though there was nothing okay about it. I stroked your cheek, kissed your forehead, and told you that I have loved every moment of being your mom. And then you were gone.

I was with you for your first breath and your last. Thank you for that.

I believe that you are in a peaceful place now. A place without fear. A place where Roro, Foddy, and Grandma Jojo were waiting for you…and where they will care for you now. And I know they will…I gave my parents a long lecture, with a lot of instructions, the day you died.

Now we try to rebuild a life without you in it. Me without you. All of us without you. I’m not sure how. I will miss you forever. I will be grateful for you forever. And I will love you forever…my beautiful girl. Rest well.

Symbols and Scapegoats

~ Kai Raines ~ Leave a comment

My wife and I recently took a driving trip to New York, and on the way, I noticed something interesting…well, unsettling. I saw confederate flags flying in Florida, Georgia, South Carolina, North Carolina, and Virginia. Now, these were not little flags I had to search to find. These were gigantic…and they were flying next to huge American flags.

I don’t get flying a confederate flag. People tell me “It’s part of our history.” True. It’s a shitty part. People fly flags or wear symbols because they mean something to them. What does flying a confederate flag mean? What does it stand for…slavery, violence, oppression, people treated as property, brutality, racism, war, division. How about white, wealthy, male, landowners having all the control and power over the enslaved, women, the poor. Are those the things we want to celebrate? I think they should cause us to be horrified at what people are capable of…what we were, and still are, capable of and then rationalize away.

In Germany, it’s illegal to fly a nazi flag. You can’t wear a swastika, fly a swastika, and you can’t say, “Heil Hitler.” Anything considered unconstitutional. Isn’t that just part of German history? It’s not a history Germans want to celebrate or honor so Nazi symbols and flags are illegal. No long explanation or justification. It is illegal. We could learn something from Germany.

I believe in freedom of speech in this country. It’s one of the fundamental rights guaranteed by our constitution. It’s a right I cherish. And though we have freedom of speech, it is not blanket freedom. You cannot say or do anything. There are exceptions to free speech, such as, incitement to violence, true threats, such as hate speech, fighting words…there are a few others, but this covers it for my purposes…defamation or fraud also not legal. We do not have the freedom or protection, under the constitution, to say or do whatever we want. We are not free to scream out anything that comes to mind…you can’t yell fire in a crowded theater when there is not a fire. You cannot spew racist or hateful threats. That makes sense. Right? Seems simple…straightforward.

Why is the confederate flag not illegal? Why is it not considered a tragic and horrific representation of this country’s history, so we don’t fly flags or wear symbols that celebrate it. Why? Because it doesn’t stand for anything good or positive. It causes division and fuels hatred. It is time to remember and learn from our history so we don’t keep repeating it.

And what about giant American flags? What do those stand for? Extreme patriotism…extreme something. I see them in yards and at businesses. Pick up trucks fly big ones on the beds of their trucks (big compared to the size of the truck). Why? What is the message? In September, a man drove his pickup truck, with big American flags flying on it, into a Mormon church, and then opened fire with an assault rifle and set the church on fire. Four people were killed in the attack. Why…because he hated Mormons. Hmmm. There is nothing inherently patriotic about flying a huge flag.

I must admit my own bigotry of trucks with big flags on them. I am frightened of those trucks and their drivers. I perceive the owners, who I do not know…hence the bigotry…as conservative, far right individuals who are definitely not down with the gay folk. They won’t like me. They may not even think I should be allowed to live. I am afraid. It is a scary time to be a member of the LGBTQ+ community.

Yesterday I heard the Director if the FBI, Kash Patel, fired an agent for having a gay pride flag on his desk. Because it is “an inappropriate display of political signage.” Seriously!? Pride flags are not political statements. The statement they make is to value diversity and equality for all people. That is not a political statement. It’s a human statement…an inclusive statement. Now agencies within our government are combing through personnel files looking for anyone who is LGBTQ+. In case we need a reminder, it is illegal to fire someone for being gay or trans or because you think they are. This is America. The land of the free, right?

There are ICE agents acting like the gestapo raiding buildings and taking black and brown people into custody without explanation…based solely on how they look. Then people disappear, without due process or access to an attorney. And without agents knowing if they are in fact gang members, “dangerous criminals,” “the worst of the worst.” They don’t even know if they are undocumented or US citizens.

This week, a famous poem written by Martin Niemoller, has been on my mind… “First, they came for the Socialists, and I did not speak out – Because I was not a Socialist. Then they came for the Trade Unionists, and I did not speak out – Because I was not a Trade Unionist. Then they came for the Jews, and I did not speak out – Because I was not a Jew. Then they came for me – and there was no one left to speak for me.”

I’m terrified. Terrified and appalled by what is happening in our country, right now…people snatched off the street by masked men with guns, military patrolling the streets with semiautomatic weapons, political opponents of the President subjected to arrest, voting rights obliterated, courts under government control, people disappeared with no legal rights and no one knowing where they are…we are one step away from being Russia, North Korea, or Hiter’s Germany.

And we are not talking about mass “deportations.” Deportation is a legal process. It requires due process. You have legal representation. You know and can exercise your rights. That is not what’s happening. People are disappearing. People are snatched off the street, or in their homes, at church, or merely walking to the corner market…and they disappear. Their families and friends don’t know where they are. They have no access to an attorney. They are detained who knows where for God only knows how long. And these are not violent gang members and criminals. These are our next-door neighbors, service industry workers, farm workers, people who care for our children. the person beside you in church, the parents of your child’s best friend…your best friend.

It is time for us all to wake the fuck up! We must open our eyes and see how far gone we are already. Our country has been dramatically changed. And the more these things become normalized the more our democracy dies. Isn’t this what happened with Hitler? Someone, some group was scapegoated as “the problem.”  The Jews, then the gays…now, undocumented immigrants. If we just get rid of them everything will be fine, so the message goes. So, people get arrested…no one cares. People are sent to prisons in foreign countries and ICE facilities in other states. No one knows where. Still, no one pays attention. It doesn’t affect me, right? Until it does. Until the government is searching for anyone who looks like they aren’t from the US…until the government is seeking out LGBTQ+ people to fire…until the government is looking for someone who looks like me…until…God only knows.

Until the government ignores the courts and the court’s orders…no big deal. Until the President declares that crime is out of control, with zero evidence. California. Washington DC. Chicago. Portland. Until armed federalized military officers patrol the streets of our cities…with orders to use force, violence, against the American people. A military turned against the people and country they have sworn to protect. The framers of the Constitution warned us about exactly this…and they took steps to prevent it from happening. The Posse Comitatus Act prohibits federal military personnel from taking part in civilian law enforcement without express authorization by statute or the Constitution. This includes all branches of the military, including the National Guard if they are federalized. As they have been. If this does not get our attention, I’m not sure what it will take.

I purposely end all my blogs with my own quote, “that in the end all that matters is how we love people.” And I believe that. Hatred does not dispel hatred. Hatred inflames hatred. But loving does not mean doing nothing. Love is not passive. Love is active. Love seeks what is right and just. When we see our government spinning out of control, singling out groups of people to persecute, then love demands action. Love demands that we do something. We have to speak up and say something before there is no one left to speak. We need an action plan of what we can do to stand up for the constitution, for decency, for the scapegoated, for the freedom our country promises each of us…for the power of love.

Future generations will judge us on this moment…this period in our history. They will judge us by our response…or lack there of. Because in the end all that really matters is how we love people. Let’s love enough to act…to care for the persecuted even if we are not. Let’s show our love with action, non-violent action, because as Gandhi said, “An eye for an eye leaves the whole world blind.” Let’s follow great historic examples of love and political power…Gandhi, Buddha, Jesus, Mother Teresa, MLK. There are so many examples we can follow. People who have traveled this path successfully. People who loved even while surrounded by hatred. We can choose love and choose hope. We can create the change we want to see in the world…one loving act at a time. No matter what the question is, love is the answer. Love always wins…even when it looks impossible. Let’s do our part to make sure it does.

Off The Edge

~ Kai Raines ~ Leave a comment

It took me a long time to recognize this low-level anxiety that lives inside me. I feel like I am always on edge. Always expecting the next bad thing…the next person to hurt me or leave me without explanation. The next person to blow up at me, blame me, or take their anger out on me. The next crisis I need to be ready for. Being mentally and physically on edge contributes to me being on edge emotionally. All the time. It is exhausting.

I have been trying to create a way to mourn the loss of my mother. I am not sure how to do that when I feel angry at her. I’m hurt that she was so mean to me. I don’t know if I miss her because I haven’t been able to get past the other feelings. I feel guilty because I am relieved not to deal with her explosive outburst anymore. I don’t miss her hanging up on me multiple times a day. The years I spent away from her I wondered why she didn’t try to work things out with me or love me enough to fight for me. The years I lived with her in Florida, I understood that she hated me. That’s what she told me. That’s how she acted. She didn’t fight for me because she didn’t want me.

Now she’s gone and I am not sure what to do with all of that. I need to find a place where I can accept the situation as it was and accept her as she was…flaws, bitterness, cruelty and all. She wasn’t one thing. She wasn’t just mean. She wasn’t just angry. She wasn’t just cruel. She could be kind. She could be generous. She could be loving.

I am not one thing either. I am not just a person on edge. I am not just someone with anxiety. I can be kind. I can be generous. I can be loving. I’m a mix of all those things and more. Just like her. Sara Bareilles has a song called, “She Used to Be Mine” and she talks about this…sings about it. This song could be about me…or my mom. I’m not perfect but I try. I’m hard on myself and struggle with asking for help. I’m messy and I’m kind. I’m all those things smooshed together to make me.

The song goes on to talk about things coming into our lives that we don’t ask for and they shape us into who we are today…even if it’s not what we asked for…or not who we expected to be. I want to be willing to take risks. To be hurt but not destroyed. I want to be tough enough that when I get bruised, I can use that to grow stronger and more sure of myself. And when I feel stuck, for example now, I can rekindle a fire inside of myself to keep moving forward toward the person I am and the person I am meant to be.

I have been trying to create a ritual for myself to let her go. To let the experiences I had with her go. And to let the things she said to me go. I have felt heavy under the weight of her thoughts and feelings about me. I recently wrote about changing my name from Karen to Kai. Needing to move away from Karen because that’s the name she yelled at me and the name of the person she hated. This week I decided to change my name legally. The new name felt like a game of make believe. And I’m not playing a game. I’m creating the path to reclaim myself as myself…not who she said I was. I’m not trying to disown her or my family. I am taking steps to own myself and my identity. That’s mine to create, not hers to impose.

I had not planned to change my name legally. I surprised myself. I filled out the paperwork and I filed the petition. It’ll take a few months for the change to be ordered. I may have to attend a hearing to tell a Judge why I want to change my name. I’m not sure it’s really anyone else’s business why…of course that will not be my answer if the Judge asks. An attitude will get me thrown in jail…this is Florida after all. There was a ton of paperwork to fill out and get notarized before I could file the petition. I guess they’re making sure I’m not changing my name because I am on the run from law enforcement. I’m not. I promise.

I was not sure how I would feel after I filed the paperwork. I felt relief. I felt like a giant chain that weighed me down, with other people’s opinions fell away. I was standing up for myself. I felt like I was claiming my own identity without the input of my mom. This is me regardless of what she thinks or what she might have said. She would have been angry about the change. She would have taken it as a rejection of her. It is not about her at all. It is about me…claiming my own power and not allowing anyone else to tell me who I am or how I should be myself. The change is because of me not her. This is who I am. This is who I continue to become.

The acceptance I want to find for myself, I want to find for her too. I do not think my mom’s life turned out how she imagined, and she was bitter. I had no control over that. I did not ruin her life, regardless of what she thought. I loved my mom. We had a challenging relationship. In the end I was working to change it…make it better. That didn’t happen but it doesn’t mean I didn’t love her or that I didn’t try.

Loving is hard. I try my best, but I am not always great at it. I hope my love can be a solid ground for someone else. I always say that in the end all that matters is how we love people. So regardless of what happens I move forward and remind myself that I did not give up on love today.

Do not give up on love today. Never give up on love. Love always wins.

Still Broken

~ Kai Raines ~ Leave a comment

Well, it has been a week…not even a week yet. Fuck. My wife asked me how I was doing on Wednesday or Thursday, and I said I felt overwhelmed. She asked me why, as in specific reasons, not questioning my emotions. I said, “I don’t know…the end of our democracy.” And that silenced us both.

Since then, my fears have just multiplied. You may ask, “Why?” I will lay it out for you:

*Putin, seeing the election results, said that a “new world order is forming.”

*The plan for mass deportation of undocumented migrants in this country regardless of circumstances or the devastating impact on the economy.

*A federal judge striking down Biden’s program for undocumented spouses, as illegal. The program designed to keep families together.

*The undoing of the constitutional right to reproductive healthcare, including the right to an abortion.

*The blatant plan to reverse marriage equality.

*Texts sent to Black Americans telling them they have “been selected to pick cotton” at a nearby plantation. These texts went out to adults, as well as, college and high school students. And these texts were not just in Georgia, Alabama, Louisiana the states considered the deep south…were I guess people expect such racism, seriously? They were sent in New York, California, Pennsylvania, Ohio, Wisconsin, and Michigan. And that is not the entire list. What is happening?

*The rise of fear, anger, and hate, and a growing attitude of us vs them. The use of those emotions as weapons to pit us against each other…even when what we are hearing is not true.

*The supreme court granting the president almost complete unchecked power. The branches of government designed to act as the checks and balances of presidential power no longer function that way.

*The President Elect already preparing pardons for the January 6Th rioters who attempted to overthrow our government and disrupt the peaceful transition of power. People died that day. 174 police officers were injured. One was killed.

*Elon Musk promised a cabinet position where he will cut the federal budget by 3 trillion dollars. And they have told us that people will suffer.

*RFK Jr. will oversee the Department of Health…and specifically women’s health. There is nothing that makes less sense than a man appointed to make the rules or guidelines for women’s health. He is an unapologetic anti-vaccination and conspiracy theorist…which could lead to the return of illnesses that previously were eradicated by vaccines.

*Referring to anyone who disagrees with the administration as the “enemy within” and the threat of using the armed forces against citizens of this country.

*And the last thing I am going to mention (and I could go on), the President Elect plans to destroy the Department of Justice and fire all career prosecutors, to remake the justice system in his image and use it against his enemies…that would be anyone who disagrees with him.

I feel like I am living in The Hunger Games…only this is no game. I love movies, but I do not want to live in them. They are fantasy and not real…except when the leader of our country wants to make it real. The elite having all the privilege, access, and opportunity and everyone else existing to meet their needs and keep them happy. And to entertain them…fooling themselves into thinking that the game you are entering is a privilege rather than an atrocity. But in the end, it took 3 books, Katniss Everdeen, the girl on fire, prevails…but a lot of shit goes down before that can happen.

Back in 2020 I wrote a blog called, “Broken.” At the time I was feeling devastated because of Covid and the tremendous loss of life and the murder of George Floyd. I am sharing the link here (http://karenraines.com/2020/06/03/broken/) because I am still broken. We are broken. Our country is broken. It is easy now to feel like everything is out of our control and there is nothing we can do, but that is not true. This week I joined the ACLU and signed up to volunteer. It’s a small step but it’s a step. We all must make ourselves keep moving forward.

Here’s the thing, I always write about love. Love as a guiding principle in my life. The need for love in our treatment of other people. Seeing people who may not be the same as us through a lens of love. Love conquers hate. Love is bigger than any person’s bigotry. Love produces more love. When we act with love for ourselves, our communities, our country, our world, our actions become compassionate, filled with kindness, and a desire to connect, not separate. We come to care for one another and want the best for each other…regardless of the color of your skin, what pronouns you use, who you love, where you’re from, or what language you speak. We see and share our common humanity. In the end, what matters is how we love people. We have some serious work to do.

Love is powerful and healing. We need some healing…some big fucking healing. Is that going to happen right now? I hope so but I think we are in for a rough road ahead. While fear, anger, and hate are in the oval office love will appear to be losing…but it will not lose.

Love has been on my mind all week and I’ve been confused on how to proceed. I do not feel loving right now. I am scared and angry. So, I turned to some teachers to find comfort and direction. Buddha said, “In this world hate never yet dispelled hate. Only love dispels hate. This is the law, ancient and inexhaustible.” And St. Francis had a beautiful prayer that can help us move in a positive direction. “Make me an instrument of your peace, Where there is hatred, let me sow love; Where there is injury pardon; Where there is doubt, faith….that I may not so much seek to be consoled as to console; To be understood, as to understand; To be loved as to love.”

Now there are some marching orders. But I am not marching right now. I am staggering. We are staggering. I still feel a deep sense of shock and loss. We need to feel all the feelings and not rush ourselves to get over it. Take time. Time to care for yourself and those around you. Think about ways to get involved and stay involved. Imagine a world where equality is the norm, and everyone has the same opportunities. Imagine no racism, sexism, misogyny, homophobia, transphobia, elitism…all the isms and phobias eliminated. Picture that world. Create a picture in your mind or on a vision board. Look at in several times a day. Make it the first image of your morning and last image you see at night. Look at it and believe in the possibility…the possibility of real change. Let that image guide you to the next best step for you…for us. Remember, in the end all that matters is how we love people…especially when it’s hard. Love always wins. Let’s win together.

Not So Stupid After All

~ Kai Raines ~ Leave a comment


So, I have been reading What My Bones Know by Stephanie Foo. It’s a wonderful book so I’m reading it for the second time. She was horribly abused as a child, physically and emotionally. The physical abuse was quite significant. I worked with abused children for 20 years. Her story is horrible and compelling. Her ability to describe the process she went through to heal is so honest and real. It’s brilliant…hence the second time reading it. I highly recommend it.


Families are funny, as in strange, for many reasons but for now I’m thinking about how each child in a family is raised by a different parent than the others. I don’t remember who came up with the idea…definitely a family systems person…possibly Bowlby. Family systems theory basically says that a family functions as a system, and everyone has their unique role in keeping the system functioning. That’s a simplistic one sentence summary but it gives you the general idea. Within the system if someone changes or does something different it can throw the whole family off kilter. Kind of like throwing a stick into the spokes of a bike someone is riding…there’s gonna be a crash…. Speaking of bikes and crashes, when I was 9ish I was riding a tandem bike with my friend…who shall be nameless because I don’t remember her name. She was in the front steering, and I was right behind her. With the inherent wisdom of 9-year-olds, we decided that she should steer with her eyes shut and I would direct her, all while riding down a hill that, at the time, seemed huge…we lived in Wisconsin, so it was definitely not huge. Anyway, we started down the hill, and I yelled, “Go left! Go left!” And she went right, way right…into a mailbox. Huge crash, blood everywhere…not exactly. My friend ran off crying and I scraped my knee. And I’m pretty sure it was her mailbox…and it was made of bricks and cement. Only did that once.


Now I’m back from my wandering…All of that was to say that families shift and change, so each child’s experience of their parents is different…as if they were different people all together. That seems to be true for my sister and me. She’s 17 months older than I am, even though she convinced my children that she was younger than me. It took years for me to convince them that she was kidding…I probably had to show them my birth certificate. Little fuckers. ❤️


My sister and I have some very different memories from when we were kids. Our perceptions were different as well. I remember things that my sister doesn’t, and she remembers tons of stuff that I don’t. I seem to remember more painful memories. I was emotionally abused as a child. I believe sister was too, although her perception is different. I was told that I was dumb and stupid. That when they passed out brains, I thought they said trains and I missed mine. When it came to brains I got the short end of the stick. That I didn’t know anything about whatever we were discussing…especially if it was something I majored in or involved my career. My sister was told those things as well. “I don’t know how we had such stupid children.” While my parents lived with us my mom frequently called me a dummy. I am very sensitive about being called dumb or stupid or being told, as I regularly was “that’s the problem you’re thinking again.”


The insults to my intelligence and my ability to think were the most hurtful to me. I am someone who thinks a lot. In fact, I overthink a lot. But I make sense of the world by thinking. My thinking leads to my writing. I think about patterns in my life, I read books and think about the information in connection to my experiences. Sometimes I just sit and think…kind of like Winnie the Pooh sitting there tapping his head and repeating, “think, think, think.” If something is heavy on my mind…I sit and sort and think. So, the implication that I don’t think or I’m too stupid or dumb to understand something really hurts me at my core…in my heart. It damages my understanding of myself and the world…or it used to.


Sometimes I think I have so many degrees because I was trying to convince myself that I wasn’t stupid. When I was getting my master’s in counseling, I wrote a paper on…I have no idea. Too long ago. What I do remember is the professor writing on my paper that I had the second highest grade in the class and that it was a “brilliant” analysis. No one had ever used the word brilliant in connection to me. I cried. That was the first time that I realized I wasn’t stupid. The tears were full of anger and relief…anger at the messages I’d been given growing up and relief that they were wrong. And sadness that I spent so many years believing everything my parents said. They were the adults and so I thought they were right.


I have mentioned before that I have done a good amount of therapy. At one point in my psychological journey, I did EMDR…eye movement desensitization and reprocessing. I called it the light bar…sounds like a bar that serves only lite beer…and I was there drinking with my therapist. Anyway, in EMDR you focus on one memory that is particularly painful and emotionally charged for you…it’s juicy, as Pema Chodron would say. It’s a trigger. I picked being told I was stupid. Back then that was fireworks for me. So, I got the memory in my head and tapped into my feelings, all the while tracking the lights on the light bar moving rapidly back and forth across the bar. When it was over, I had an epiphany. I told the therapist that when my parents told me I was stupid, I wasn’t stupid, I just disagreed with them. I had a different perspective and to them that was being stupid. EMDR took a lot of the fire out of the word stupid…not all of it but it was a huge difference. I thought EMDR was magic.


I also think there was physical abuse in my house. I never had marks or bruises. Although when I was little, I never looked to see. I had some bruises, fingerprints on my arm, once when I was a teenager…from my dad. I think that hitting children is abusive. My sister and I were hit with a belt and a brush…that’s abusive. Even though spanking may have been standard practice in the 60’s, that doesn’t make it less abusive.


I spanked my oldest daughter but not my other two kids. I feel bad because I had to learn parenting with her. At the time, the far-right church I went to encouraged spanking your children. And the church was my teacher. They told us not to use our hands to spank but to use an object…like a wooden spoon. Which I did. Once. That’s all it took to realize they were wrong. We tell children to calm down and stop crying while we hit them…that makes no sense.


The thing about spanking children is that we do it when we’re angry. We ask our child to do something or stop doing something and they don’t. We probably ask more than once and then exasperated we spank them. We teach them that it’s okay to hit people smaller and less powerful than them. We hit the most vulnerable people in our world. We teach kids that when you’re angry and don’t know what to do you can hit someone…and then blame them for it.
We’re teaching our children that physical violence is a legitimate way to solve problems…and it’s not. “Spare the rod and spoil the child” and all that other bullshit. We confuse fear with respect. We think if our children are afraid of us then they respect us. But fear doesn’t breed respect, it breeds resistance, defiance, shutting down. It leads to avoidance. I avoid people I am afraid of. There may be people I fear that I respect but I do not respect them because of that fear. I respect them in spite of it.


One day we were talking about corporal punishment with my parents…not sure what started that mistake of a conversation. My dad told my wife that he made my sister and I go and get the brush to hit us with to humiliate us. My wife was gobsmacked for sure. I was too. Who intentionally tries to humiliate anyone, let alone a child? My mom was angry we were having the conversation and said, “I’m sorry. I guess you had a horrible childhood.” But that wasn’t my point. My point was that hitting children is not a good disciplinary tactic. It doesn’t teach any of the positive things we might want it to. It teaches fear and division. It teaches lying and deception…if I don’t get caught, I don’t get hit. It’s hypocritical to tell children they aren’t allowed to hit and then we turn around and hit them. That’s crazy making shit.


So maybe I’m not stupid but why did it take so long, and so much school, to come to that realization? And why did I need a teacher to praise me to recognize that? Why couldn’t I see it within myself? Hard questions. Maybe we form the internal vessel in our children that holds their thoughts and beliefs about themselves. Children think their parents know everything…at least until they’re teenagers…so when a parent throws around words like stupid, dumb, lazy, or tells them that they are too much or too little, their children believe them. Children incorporate that information as a fact in their lives. Sticks and stones may break my bones, but names can never hurt me…that’s some unhelpful bullshit.


Our words hurt and wound and damage other people. The good news is that our words can also heal. If you tell your children how much you love them, that you’re proud of them that means something to them. That is validation that helps them form their image and beliefs about themselves. Instead of tearing them down, build them up with praise…praise for the wonderful qualities they bring to this world. We don’t tell our children often enough that they are kind, compassionate, intelligent, capable, honest, loyal, hardworking, determined, loving, understanding…the list could really go on and on. There is no shortage of words available to describe our children and to encourage them to grow and believe in themselves. And really, I still want to hear those things. I want to feel that I am loved. Everyone wants to be loved. I still tell my adult children how much I love them, that I’m proud of them, and how lucky I am to be their mom. No one is too old for praise and encouragement. No one is too old to love or be loved.


Let’s focus on love. Let’s lead with love. We get plenty of negative messages about ourselves from the world. Now maybe there are people thinking that we can’t just be all about love with our children because the world is a hard place, so we need to do our part to toughen them up. No we don’t. Life will happen and they will grow stronger…they don’t need the negativity or bullying to come from us. That does so much damage. Let’s make sure our homes are places where we encourage and challenge our children to become the best version of themselves. And with respect, kindness, compassion, understanding, and tons of love that person will emerge. In the end, all that matters is how we love people. Let’s love our children and each other fiercely.

Why Would It Be Different In Heaven?

~ Kai Raines ~ Leave a comment

Mother’s Day was Sunday. I was asked several times how I was doing on my first Mother’s Day without my mom. There is no simple answer to that…or maybe no nice answer. The last two Mother’s Day’s were horrible. My mom was angry and mean. She spent the day yelling at my dad and I and slamming things around. So, it would be dishonest to say that I really missed her Sunday. I was grateful to spend this Mother’s Day with my daughter, grandchildren, and great-grandson. It was a beautiful day.

Prior to the last two years, I didn’t see my mom for twelve years. And although I sent her a text message each year, I know she didn’t read them…possibly because I sent them and also because she didn’t do texting. I always struggled to find a Mother’s Day card for my mom. They tend to be pretty mushy and sentimental…two things I don’t feel about my mom. I wouldn’t give her a card with words I didn’t mean and so I always got her funny cards, which she hated. She liked to be gushed over. The last two years I gave in and gave her sentimental cards and they didn’t make any difference to her. She wasn’t speaking to me, so she didn’t even acknowledge them.

The last time I saw my mom she was not in a great space or mood. She looked at me and pretty snarkily said, “I should have never moved to Wisconsin!” I told her we weren’t in Wisconsin. She asked where we were and then said, “I should have never moved to Florida.” Shortly after that she turned away from me, curled up, and went to sleep. That was the last conversation I had with my mom. She’s been on my mind so much.

I’ll be honest…I’m tired of grief. I am way the fuck over it. It isn’t as neat and orderly as I’d like it to be. It’s a fucking mess. I’m a fucking mess. I would like to know when I’ll be okay…when will I just feel like me again. Maybe I won’t…I mean I am an orphan after all. I would like to know something else…actually I’d like to know everything else, but specifically, right now, I want to know what it’s like to die. What does it feel like? I have some fears around dying…not so much the actual death but the being dead. I’m afraid I’ll miss people and be sad and lonely. I suppose at that point it won’t matter…it’s not like I can be suddenly undead…aren’t zombies the only people that can do that? Are they even people? I digress.

This is what happens to me when my wife travels. My mind runs wild with unanswerable questions. She had to go back to Colorado for work. Leaving my English Bulldog, Abby, and I alone in Florida. It’s the first time I’ve been here without either of my parents alive. I’d like to say Abby is helpful, but mostly she’s just sleepy. She needs her full 22 hours of sleep a day.

P!nk wrote a song after her dad’s death called, “When I Get There.” In the song she asks why things would be different in heaven than they were here. Or why would her dad be different in heaven. I think she says he was always first in line, and he always said what was on his mind…things like that. It’s funny because I’ve been wondering the same thing…mostly about my mom. Why would things suddenly be different just because someone died? Why would she be different just because she’s dead?

I floated this idea past my wife, just to see what she thought…she didn’t like it. She reminded me about all the accounts people have given of near-death experiences…I guess more accurately they are dying and being brought back to life stories. People report seeing a bright white light that’s warm and welcoming. They hear the voices of people they love who have died. This reassures her, and millions of others, that there is a heaven, and it’s our final destination.

Personally, I don’t believe in heaven or hell. I do believe in reincarnation. The energy that is the core of who we are, our soul or spirit, has to go somewhere. I think it comes back in another form. I’m pretty sure I’ll be back as a gnat or an ant, because I’ve killed many of them when they’ve invaded my home. Side note…The other day there was an ant on our counter. Now instead of killing it, I picked it up and went to put it outside. And that little fucker bit me. It left a red lump on my palm. That’s karma baby…but I still didn’t kill it. I used to tell the little kids in my mindfulness program that we don’t kill things just because we can…they would usually stomp ants anyway. I tried.

I have read several of books by James Van Praagh, the psychic medium. I’ve also seen him in person and watched him connect people in the audience with departed loved ones who have a message to give…or just something to say. He’d ask the audience if a name or specific situation, that he was describing, meant something to anyone in the audience. Someone would raise their hand and then he would begin to tell them about who was there to talk to them and what they were saying. He was able to provide very specific information about people, situations, causes of death, etc. He’s really impressive.

I have heard James Van Prague talk about what happens when we die. He had said that through his readings he’s learned that there isn’t a heaven or hell, although he does use the term heaven anyway. He explained that when we die our energy goes with like energy. If you were a loving and kind person in your life you would be surrounded by others with similar loving and kind energy. If you were mean and hateful then you would be attracted to the mean and hateful energy of the departed. So, in a sense we create our own heaven or hell. I suppose that’s good news and scary news.

Now I was raised Catholic. I come from an Irish Catholic family that has its attachment to Catholicism rooted in Ireland. My grandmother went to church early in the morning, before she had to work, at least several days a week. Then church on Sundays and confession probably every week. Now all of that is to say that there was no other option than being Catholic in my family…and it wasn’t really an option to just not be anything.

In my Catholic training (catechism classes…yay.) I learned about purgatory. Purgatory is an intermediate state between death and heaven. It’s a place of temporary suffering. Merriam-Webster says that it’s a “place or state of suffering wherein…the souls of those who die in God’s grace may make satisfaction for past sins and so become fit for heaven.” I’m gonna have to say “no thank you” to that good news…yikes!

What I don’t understand is if you go to confession, as required in the Catholic Church and you do your Hail Mary’s, or whatever the priest assigns, you’re supposed to be forgiven…so why the pit stop to be punished again? Although it sounds super fun…I’ll give it a hard “oh fuck no.” Why change if you still end up suffering before you’re good enough for heaven? Heaven being the goal for most people. I don’t believe in purgatory either. I do think there’s a gap between when we die and when we are reborn, but I don’t think it’s punishment.

So why is all this on my mind? I’ll tell you. I worry about my mom. I worried about her when she was alive, and I worry about her now. My mom was not a happy person…at least not the mom I experienced. She had a difficult life as a child and that shaped who she was and how she saw herself. She didn’t believe anyone loved her. She didn’t think my dad loved her, even after almost 70 years of marriage. She was damaged as a child and that kept her from fully accepting who she was. It also kept her closed off to recognizing and receiving love. She may not have had love as a child, but she was loved by many as an adult. It’s very sad to me that she couldn’t accept love. I worry now that she might feel alone. She didn’t like to be alone. She was scared alone. Nothing I learned in catechism told me how to address those fears.

Personally, I believe that our souls or spirits are timeless because we’ve been here before…many, many times. I don’t think that a love connection you shared with someone while you were alive is gone when you die. I think that love bonds go on forever. Maybe it’s like object permanence…even when a person you loved is gone from your presence, you know they still exist out there somewhere. And the love you shared with them continues.

I think part of the process of death and reincarnation is our souls working out past karma…karma from our current lives and past lives. James Van Praagh has explained that after death people of like minds gravitate together and share a natural attraction. So, for example, a soul like Hitler, who created mass destruction, devastation and death, will be attracted to similarly dark energetic souls.

James Van Praag describes “heaven” as having many levels and that the one that we enter right after we die is similar to our existence on earth and that people eventually evolve from these earth-like levels. He says that our soul’s movement is enabled by understanding that religion is a human tool and is not needed in the higher planes. From his experience communicating with spirits, he has learned that the only religion is love.

If we enter heaven with a similar mindset that we had while we were alive, then why would things be different in heaven? If you go to heaven as the same person you were two minutes before you died, then what’s different in heaven, besides being dead? I wonder if that’s confusing to a spirit…seems like it to me. I guess there’s no instant angelhood…I’m not sure that’s a word or a thing.

My mom was an angry person and she held on to resentments. I worry that heaven might not be great for her right now. I want her to find peace and rest but I’m not sure that’s immediately available to everyone. I don’t want her to live in an eternal place that’s as painful for her as her life was. The good news, according to James Van Praagh anyway, is that there’s no mental illness after death. Mental illness is a condition of the physical world. I don’t know who my mom would have been or what she would have been like without mental illness…maybe now she’ll have the opportunity to find out.

Honestly, I hope there’s healing in heaven…if there is a heaven…or wherever we end up. I don’t think there’s a place up in the sky where the dead, the “good” dead, reside, playing the harp and laying on clouds. But if heaven is where we go to work out our past karma and await rebirth, that makes more sense to me. If our mindset can continue to evolve and progress even after we die, then the work never ends…the work of becoming never ends. We are always becoming even after we cease to be on this planet. Maybe we have the ability for clear retrospect when we die. Maybe we can see more accurately what was available to us when we were alive. Maybe we see missed opportunities or missed understandings. Maybe we get to have all that we thought we missed out on…love, belonging, gratitude, rest, being seen and loved for who we are.

I definitely have more questions than answers with all of this death stuff…and I’m in no hurry to experience it firsthand. What I do know for sure is that in the end all that matters is how we love people. Because love wins…always.

And for you mom…May you find peace. May you find rest. May you know you are loved.

Where She Go?

~ Kai Raines ~ Leave a comment

When our soon to be 13-year-old grandson, Anthony, was a toddler, and he couldn’t find something, he’d say, “Where she go?” It was funny and adorable and not usually about a person…just something missing. He’d put his arms out with his palms up and turn his head side to side, and look around quizzically as he said, “Where she go?” I’m not sure why it was all “she.” It might have been as simple as him having a lot of women in his life. His two grandmas took care of him every day, and he had two other grandmothers, as well as, two sisters, and of course his mom. There were a lot of “she” in his life.

Yesterday I was sending out letters telling banks and creditors that my mom died. I was looking at the death certificates for both of my parents and I felt panic…where she go? How can she be gone? It’s the panic a child feels when they wander away from their mom in a store and when they turn around, they don’t see her. Where she go? Where the fuck are my parents asks the lost child and the panicked adult? Now I’m not wondering if they’re in heaven or hell…I don’t actually believe in either. I mean how could they possibly have death certificates? Only dead people have those. Why can’t I find her? She’s definitely missing. 

I packed up my mom’s clothes and have them loaded up for a donation today. All that’s left is pictures and memories. I just typed that sentence and remembered Jim Croce had a song in the 70’s called “Photographs and Memories.” My sister always said I liked sad music. She might be right…I did like his music…and it is kind of sad. Pictures and memories are what I have left of my parents. They are what remains for me to remember them. It doesn’t feel like enough…at least not today.

I feel untethered. Set adrift to…I have no fucking idea where. That feels a little risky…not knowing where I’m going. I’m 63 years old. I have plans and goals. I have a family. We moved to Florida to retire. I know where I’m going. I don’t know where I’m going with my parents…or my mom. There were years that I did not see my parents or talk to them, from 50 to 61, although I’m not sure why. I’m sure they had their reasons; I just don’t know what they were. I guess it doesn’t matter now. It seems that feeling untethered is a familiar feeling after all.

There were other times my parents and I didn’t communicate for a period of years, but the 50 to 61 period started on my 50th birthday. My mom remembered birthdays and she always called. Sometimes she’d send a card, but she always called…but on that day she didn’t call. No call and no card…I was in trouble. Why? No clue. I called my mom a week or two later, but she didn’t answer and didn’t return my call. That went on for several weeks…calling, no answer, leaving a message, no return call. And then I stopped calling. All I was doing was hurting myself by hoping she’d answer the phone…but she never did. And I quit trying. 

Maybe I should have persisted with my calls. I don’t know. I didn’t want to beg to be their daughter…and that’s how it felt. Like when your child comes up to you, usually while you’re on the phone, and pokes you repeatedly in the leg saying, “Mom! Mom! Mom!” Because all urgent matters take place while you’re on the phone. All my unanswered calls felt like me jumping around and poking her leg, and still getting nothing from her. I felt unwanted, or worse…like I didn’t exist. That’s when I felt like an orphan. From 50 to 61 I was an orphan. I was an abandoned child…although not exactly a child…not understanding where my parents went. They disappeared from my life.

For a long time, I thought there must really be something wrong with me because my own mom didn’t want me…didn’t love me. I felt like I must be defective somehow. Living on the island of misfit toys, or misfit daughters. What was so wrong with me that she didn’t want me? 

The difficulty with my mom was that I never knew where I stood with her. I would think things were fine and then she’d be mad at me and stop answering my calls. So, I’d call and call and call until finally she would answer the phone. She’d be cold as I ice, and I’d have to apologize and apologize some more until she’d finally let it go…but it was never gone. My mom remembered every detail of every time someone hurt her. She was easily angered or offended. And she kept score. The difficulty was I frequently didn’t know what I had done wrong. So, my mom would be mad until she wasn’t and then expect everything to go back to normal. If she was okay about something, I was expected to be okay too. Her feelings ruled.

The crazy thing in all of this is that if she had just told me that there was problem, we could have talked about it and hopefully resolved whatever the issue was. Instead, I tried to figure it out and when I couldn’t I stopped trying. It took me many years and lots of dollars in therapy to reach a place where I could see that I was not the cause of all of the problems in her life. She was the only one who could have changed anything…and she didn’t. I don’t know if she didn’t want to or if she didn’t know how…maybe she didn’t care enough to try. I don’t know and I’ll never know.

Now, let’s be real…what is my fucking point? I wish I knew. I still feel shocked that both of my parents are gone. All the years that I didn’t see them, I felt rejected. Like I didn’t matter enough for them to try. Try to see me or talk to me and tell me what was on their mind. Sometimes what I think I missed most about my parents during my 50’s was the “idea” of them. Perhaps more accurately, the “ideal” of them. Maybe that’s what I miss now too. The ideal of a mom…where she would love me just for being me. I felt the most loved when I graduated from law school. They both liked that for sure. I wanted to be loved just for being their daughter, not for an achievement. 

It’s easy to look back and question or wonder…second guess myself and my parents. I’m not sure how helpful that is. I don’t need to analyze my mom as much as I need to understand myself in relationship to her. Who was I with her and who am I without her? What habits or patterns did I develop in reaction to her? I frequently felt the need to protect myself when I was with her. How did that impact my relationship with her? How did it affect my relationships with other people? Does it still affect them? It all feels confusing right now. There’s a mountain of feelings and experiences to sort through. 

What I do know is that I can always love better. I’m guessing that my parents were hurt and I’m not sure how well I responded with love. And love isn’t all kisses and butterflies…it’s having hard conversations and being completely honest. It’s seriously clearing the air. Not allowing a lifetime of grievances to stack up so that even small things become a bigger deal than they need to be. 

What I know is that I tried. I did my best. I’m guessing they did too. What I’m left pondering is how I could have loved better? How could I have loved more honestly? More authentically and with more vulnerability? How could I have loved with less judgment? How can I stay grounded so that I can be my best most loving self all the time? 

I am grateful for the last couple weeks with my mom. While she was happy and relaxed, we loved each other. I know she loved me the best she could, and I loved her too. She knew I loved her. And in the end, all that matters is how we love people. So, we need to get busy loving people. Because love wins…every time.

Did I Mention My Parents Are Dead?

~ Kai Raines ~ Leave a comment

I realized today that both of my parents are dead. Dead?! WTF!? I know now why my kids never want to talk about my death, someday far away (I hope)…parents don’t fucking die! My kids assure me that they’ll take care of me and braid my hair. I ask them how long I will have been in a vegetative state for them to be able to braid my hair? My hair is maybe an inch long. It’s hard for them to imagine a world without me in it…it’s hard for me to imagine too.

I picked up my mother’s ashes today and suddenly all of this is very real…in a new way. When she died, I was in Colorado visiting my kids and grandkids and our new great grandson. So maybe things didn’t seem so real. My parents were never in Colorado, well not since 2009, so it was easy to think they were fine in Florida…maybe not my dad because he’s been gone a while but definitely my mom. As we were driving home it started to feel very real. I could feel her absence as I got closer to Florida. It’s weird to feel the absence of something, instead of the presence.

My mom had been asking to go to Bob Evans for breakfast and I never had the chance to take her…she got way too weak too fast. We ate there many times with my parents and had a lot of fun drinking mimosas and telling stories about our lives. I learned a lot about my parents there. The food is not my favorite, although if you like grease and fat pull up a chair. It wasn’t our favorite restaurant, but both of my parents really loved it.

Today Bob Evans wasn’t fun. It was sad. Sad because the reality of them being gone smacked me right in the head…I gotta start wearing a helmet. I can’t go visit my mom anymore and there are no more phone calls. We also picked up her belongings from her assisted living facility…the apartment, as she referred to it. One day recently, she asked me if I thought we needed that big of apartment. It made me smile. I didn’t really want to pick up her things, but it had to be done. My wife went with me and that helped. My sister and brother-in-law are coming this week too…I’m really glad.

I remember a cousin of mine telling me not to visit my mom everyday in the nursing home because then I would be lost when she was gone. She gave this advice after losing her father. I did not visit her every day, but it turns out you can still feel lost. I think I may actually feel like an orphan. Shit.

My parents and I had a challenging relationship…mostly my mom and me. Although my dad would always defend her. We had periods of years where we didn’t communicate at all or where my mom wouldn’t communicate with me. I’d try but after so many unanswered calls I’d give up…I guess that’s not great. I felt so rejected and every call made it worse. I guess I was protecting myself…I don’t know if that was a good thing to do or not, but I can only take so much. But seriously, I did not expect them to die. Parents don’t die. Not this soon anyway…maybe not at all. I’m okay with the fact that my parents were both ready to die. I’m just not okay with them being dead. If you’re confused, welcome to my world.

Given everything that went on with my mom and dealing with her anger, I thought I might feel relieved when she died. I’m looking at those words I just wrote and cringing a bit. You are not supposed to feel relieved when someone dies, especially your mother…that’ll send ya straight to hell. My physical therapist told me one day that I was a good person for taking care of my parents. What “good person” thinks they’ll feel relieved when their mother dies?

I thought I’d feel relieved that I didn’t need to be afraid of her anymore. I wouldn’t be wondering what her mood was going to be when I saw her. Turns out I don’t feel relieved…so my soul might be saved. I feel like I’m missing something. Like I went out without a jacket and am stuck outside in the snow. Like you know something isn’t right, but you can’t quite put your finger on it.

And here’s a strange thing…when we picked up her things no one said anything at all. No “We’re sorry for your loss” or “We loved your mom” or “We miss her.” Nothing. No comments at all from any staff. I guess they go through this all the time. Maybe it’s old hat for them but not for me. I wanted to yell, “You know my mother is dead right?!” Say something…say some fucking thing. Don’t act like it’s just a normal Tuesday. It’s not normal. Nothing is normal. My mom died. She’s dead. She’s gone.

Let’s be real…my mom died and nothing is okay. I need to learn how to navigate a world that she’s not in, neither is my dad. Am I still a daughter if my parents are gone? Who am I if I’m not busy being their daughter? Who am I when I’m just me on my own…not me in reaction to them? Who am I if I define myself without their input or opinion? Maybe we really don’t grow up until our parents are gone. Maybe that’s when we can be free enough to allow who we really are to shine…when we can come out of the shadows. I told my wife that I spent a lot of time trying to be invisible growing up. If you’re invisible, then you can’t be in trouble or wrong or bad. 

Now I need to become comfortable with visibility. I don’t need to hide in the shadows. Now I really don’t need my parent’s approval…even if I do, it ain’t happening. I loved my mom and dad. I believe they knew that…that they were loved. They had grandchildren and great grandchildren that adored them…and my sister was always there for them. My parents are gone but love continues to win. My mom wanted to be with my dad, and now she is. Maybe that’s the power of love, to take you where you want to be. 

Love is a powerful force. It’s a force that needs attention and direction. Let’s love consciously, with intention. Love is not something to do half-assed…because in the end, all that matters is how we love each other…so do it with your whole self. Love must continue to win. Always.

Multiple Diseases of the Elderly

~ Kai Raines ~ Leave a comment

The cremation place called me this morning…maybe it’s a cremation facility…I’m not sure. Anyway, they called early this morning to let me know that they have my mom and they’re taking care of her. That seems strange because she’s dead so how much are they really taking care of her? I understand that they were telling me that her body is being handled respectfully. I do appreciate that. They also wanted to ask me if I wanted the cause of death on all the death certificates or just some, what about half and half? Of course, I ordered 7 so there you go. We’re getting 4 of one and 3 of the other. I’m not sure which way so it’ll be a surprise. 

Since I had them on the phone…and a side note here, these cremation people are really lovely. They speak softly and calmly…slowly. They are as relaxed as possible, I’m sure because they are dealing with some unstable people…like me. So, since I was talking to them, I asked what my mom’s cause of death was, because no one told me, and I didn’t think to ask. She said, “Multiple diseases of the elderly.” Multiple diseases of the elderly…what the fuck does that mean? I thought they’d say natural causes because being almost 92 is a natural cause of death. Multiple diseases of the elderly make it sound like no one really knows…she was old…elderly…so check the box that covers the most options. Like a big “I’m elderly” blanket. 

I do not agree with their cause of death. My mom did have heart failure and A-Fib. She had a damaged valve in her heart because of rheumatic fever as a child. She had Parkinson’s disease that was progressing. She had a harder time moving her legs to walk and she became so unstable that she had to use a wheelchair. Her hands were shaking worse, and eating was more difficult. She had a hard time keeping food on a spoon or a fork. I know that really frustrated her. I can only imagine. I don’t think any of those multiple diseases were the cause of her death. 

Multiple diseases of the elderly were not the cause of my mother’s death. Not eating, not drinking, and sleeping were her causes of death. Maybe loneliness because she really missed my dad. Maybe that was the heart failure…failing from sadness. The real cause of death was that she wanted to die. So, the official cause of death was a “strong will.”

Now I feel confident in saying that “strong will” is not a choice on a death certificate. That’s too bad because I think it’s one of the most common causes of death for the elderly…strong will. I think that was the same cause of death for my dad. He was ready. She was ready. My mom told me that she wanted to die, and then she’d add, “Not because of you.” I did appreciate the clarification. 

My mom felt like she had lost control over her life and that all her decisions were made for her. That really made her angry. I told her that there were 3 things she controlled: what she ate, what she drank, and whether she took medicine. She controlled those things, and no one was going to make her do anything she didn’t want to. Then I talked to the staff to make sure I wasn’t lying. It was difficult for the nurses and aides who really cared for her to let her go. They wanted to convince her to eat, just a little, or take a sip of water…but they stopped. They honored her wishes, and in that way honored her. 

I do believe my mom willed herself to die. She definitely had a strong enough will to make it happen. She shut everything down and died. Strong will is not a disease but is certainly a cause of death. What are the multiple diseases of the elderly? At first, I was thinking of the obvious…heart failure, cancer, kidney, heart, lung, or liver disease, an aneurism, dementia, a stroke, and the list could certainly go on and on. My Aunt died of COPD, my dads’ parents died young of heart problems, my mom’s mom lived until 96…96 and ½. She’s got the record for sure. Her great grandchildren called her the “energizer bunny” and said that she kept going and going. 

But what are really the multiple diseases of the elderly? A “disease” is defined as an “illness or sickness characterized by specific signs or symptoms.” Seems obvious. But what about the “dis-eases” of the elderly? “Dis” is a Latin prefix meaning, “apart, asunder, or away.” The slang “dis” means “to treat with disrespect or contempt.” “Ease” is the “absence of difficulty or effort, making something less severe, or moving carefully.” Another definition is “to free something that pains, disquiets, or burdens.” 

So…apart, away, disrespect, absence of effort, less severe, free what pains or burdens us….Hmmm. Perhaps the real dis-ease for the elderly in our society is being put away or apart, not being respected as a useful member of society or a family. Maybe it’s that we want to be free from the extra burden of caring for someone in their last years. I guess it’s not that surprising since we do glorify youth in the United States. No one wants gray hair or wrinkles, so people have cosmetic changes made to themselves in hopes of looking forever young. We treat aging as a curse, instead of a natural part of life. I’ve told my wife that I like the lines on her face because I see them as laugh lines, and how could lines from happiness be a bad thing? 

When we moved to Florida with my parents, I had a plan. The plan was that my parents would live with us until their deaths. That way they’d never need a nursing home because we would take care of them for the rest of their lives. Oh, the best laid plans of mice and men…and women. For whatever reason, my mom became adamant that she wanted to be in a nursing home. She wanted to be away from me and away from my dad. She’d tell me that I didn’t want her there and neither did my dad, although that was untrue. 

We both tried to make her happy, but we couldn’t. When her aggressive behavior was too much for me to handle and keep my dad safe, I agreed to find her a nursing home. Getting her into a nursing home was a giant cluster fuck, as I have written about in other blog posts. Once she was in the nursing home she didn’t want to be there. She didn’t want to be at home with my dad and I either…I don’t know exactly what she wanted. I think that maybe she didn’t know either. That was sad.

I know that the elderly are frequently overlooked in our country. Unlike other cultures, we don’t look to our elders for their wisdom and insights about life. We don’t ask about what life has been like for them. We don’t ask about the things they’ve learned or the experiences they’ve had. My dad could tell you about every place he ate when he was traveling. When we were driving from St. Louis to Florida it was a narration of all the places he drove and where he ate the best something. I told my wife I want to start looking for places to eat when we’re driving cross country…usually I just want to grab something and get right back in the car…but I could change, and it might be fun.

I think the multiple dis-eases of the elderly are loss, sadness, lack of control, and nothing to look forward to. The dis-ease is in watching everyone you love die. You may want to live a long life but along with that comes the loss of many people in your life. My mom said all the time that all of her friends were dead. Then she lost my dad. It’s hard to go from independence to complete dependence. My mom would tell people that I made her sell her car and that she could still drive fine. What she didn’t say was that one whole side of the car was scratched because she hit the side of the garage regularly pulling in. And she was completely blind in one eye. So, she could drive but it was dangerous for her, anyone on the road, and the garage. I understand selling the car represented a huge loss of independence for her.

It’s difficult to move somewhere knowing that you won’t move again. My wife and I talk about Florida as our last move, and we hope to stay where we are. But I’m 63 not 91. I know there’s still life ahead of me and many things I want to do. In a nursing home people only leave when they die. She felt like she was waiting to die. I would try and focus on everything she still had, a big family with grandchildren and great grandchildren, and the fact that she was very loved. I think my mom was sad and felt like I put her away, even though she’s the one who put herself away. It was hard to see her sad and angry.

We have a rapidly growing population of people over 65 in this country…I’m not, but that’s what I hear. We don’t have good answers about caring for an aging population. If you have the money, you can find a beautiful resort style place for independent or assisted living, with increasing levels of care as you need it. If you are not independently wealthy, it’s not as easy. The multiple diseases of the elderly are sadness, isolation, loneliness, loss. Those are the dis-ease’s of the elderly. Those are the causes of death in our elderly. 

I don’t know how to solve the problem except with awareness. We tried to give my mom and dad a full and happy life in Florida, some days were more successful than others. I’m not sure I was always as aware or attentive to my mom’s emotional needs as I could have been. I do know I was doing my best. The only way to discover what needs to be done is to lead with love. If I am leading with love, then I am seeing issues and people through a lens of love. When we love people what are we willing to do for them? If we love our neighbor as ourselves then what actions are we willing to take? Could we befriend a lonely neighbor or just say “hi” to someone? My mom used to love to sit on the patio and watch people walk their dogs. She was thrilled when someone stopped and talked to her. That’s all it took. Less than 5 minutes. Certainly, we all have 5 minutes to give. 

Let’s be real…Everyone wants to matter…to be seen…to be cared about. None of that changes just because you’re 70, 80, or 91. We never reach a place of not needing. We thrive in connection with others…in relationships. We are interdependent beings. We all need love, and we all have a tremendous capacity to love. Sometimes we hoard our love or reserve it for special people in our lives. But love is one of those things that the more you give it away, the more you have to give. 

So, let’s lead with love. If we use love as our guiding force, we will find the people and places that need our love the most. Let’s find them and let’s give all the love we can. We can meet people’s needs to matter and be seen by taking our focus off of ourselves and turning it towards others. We can find ways to be loving all day every day. Let’s do that. Because in the end all that matters is how we love people. Let’s love freely and generously. Our actions can ensure that love wins. Love must always win.