Ringing In The New Year

Celebrating the new year has always been a funny thing to me…stay up till midnight, yell, “Happy New Year!” and go to bed…seems anticlimactic…perhaps it’s me that’s anticlimactic.  Last year, at midnight, we yelled “Jumanji!” so that we could get out of this horrible game that we seem to be in…with so much death and loss.  That didn’t work…2021 was not my favorite year.  There were some real high points, points of reconnection and healing, but some real low ones too.  So this year we decided to eat 12 grapes at midnight, in the first minute, and to say a wish for each month of the year.  Apparently this is done in Spain or South America or somewhere I can’t remember.  My sister had mentioned it to me and I thought she was ringing in the year with grapes and wishes…I think we should have used champagne instead of grapes…we would have been happier.  So I prepared. I got all my wishes written down and we each had a bag with 12 grapes…12 of the biggest grapes I’ve ever seen.  It’s also important to note that the stuff we read about this said that you have to do this all in the first minute of the new year or you won’t have good luck you’ll have misfortune…that’s a lot of pressure.

We counted down and started shoving grapes in our mouths.  I’d glance at my wish and eat a grape…glance and eat…barely glance and eat…what list? and eat.  As the minute was coming to an end my wife told me she still had grapes…she had 5 grapes…what had she been doing for 60 seconds?  Jesus!  So I reached over and grabbed 4 more grapes and shoved them in my mouth.  When the minute ended I casually walked back to the bathroom sure I was going to vomit all of my good fortune into the toilet.  

So it turns out you cannot eat a grape every 5 seconds, at least not the jumbo ones we had, without feeling very sick.  It also turns out that my sister was not telling me something she was going to do, she was just sharing interesting information…crap…no bonding over grapes for us.  And after the fact, of course, we read that you actually get 5 minutes to eat the grapes…that would have been leisurely, relaxed and without vomit. So now we know what we won’t be doing next year.  If I eat grapes in the future it’ll be in the form of champagne.

We’ve been having some crazy wind here in Boulder…gusts generally are 80-90 miles per hour but in the last few weeks gusts have been at 115 mph.  That’s the strength of a category 3 hurricane.  So Thursday, the 30th, we had these out of control winds.  Wind that pulled our wooden pergola apart and ripped the tree out of our front yard…pretty dramatic.  And with this out of control wind came grass fires.  Crazy, out of control, scare the shit out of you wildfires.  Fires that were started by downed power lines…they think.  These fires spread like crazy….you know that saying, “it spread like a wildfire” well that shit is true.  The wildfires were out of control and there was nothing the fire fighters could do.  There was no help from planes or helicopters dropping fire retardant or water…because nothing could fly.  Firefighters couldn’t use the hoses because of the wind and they were racing to get people out of danger because the fires were spreading so fast.  The fire jumped roads and spread randomly at incredible speeds. It felt like the wind and the fire were swirling in circles.  People had to be evacuated and some of them had only seconds to leave before the fire was on them.  We were in a pre-evacuation zone.  We could see the smoke from our backyard and watched it nervously all day…and went through all the states of contemplation…we don’t need to go, it’s still far away, maybe we should just get some things together, that looks worse, let’s just put all the stuff in the car so we’re ready, we need to go now!, ok I see it’s blowing away from us now…that’s exhausting.  I was nervous going to bed, although we left the car loaded.  The next morning I woke up early and thought the fire was right at our house…turns out it was the orange of a beautiful sunrise, not a catastrophic fire…that’ll wake you up fast.

So here we are…we had about a foot of snow on New Years Eve, high winds again the next day, and 7” of snow a couple days later….1000 homes destroyed…three people killed…businesses destroyed…and lifetimes of irreplaceable memories gone for good.

So let’s be real…this is not how I wanted 2021 to end and 2022 to begin…I’m not a big believer in the grapes…but I am a big believer in people…the basic goodness of people.  Everyone I know, from everywhere, checked in to see that we were ok.  People immediately donated money, clothes, food, places to stay.  Our neighbors lost power because of a downed power line.  Friday was the coldest temperatures we’ve had….6 degree low and 14 degree high…balmy for sure.  They stayed with us one night and we helped each other deal with the pain, fear, and loss. They were invited to stay longer but I understand wanting your own space and to make sure your house is safe when so many were not.  Now we didn’t do this because we’re extra special people…we did it because that’s what a community does…takes care of the other members of the community…we’re here for each other…we care for each other and we share the burden our neighbor bears.

Sometimes we lose sight of that…the community we all live in…multiple communities really; family, friends, neighbors, Boulder, Colorado, the United States, North America, earth…you get my point.  We tend to think of ourselves as individual planets orbiting by ourselves, caring only for ourselves and those closest to us…sometimes even that’s a struggle for us.  Look at masks…initially we wore them, not too much complaining, and now we have lawsuits over mask mandates…no one can tell us what to do right?!  My body, my choice…that argument is ironic huh?  You have a choice when we say so…whoever “we” is at the moment…otherwise you get no choice.  If you’re a woman, you have no right to control your own body…unless you don’t want to wear a mask or get vaccinated, and then no one can tell you what to do…and if you’re a man then no one ever gets to tell you what to do…that’s confusing to say the least.

A community takes care of its members, even if there is a personal cost for us, because it’s what is best for ALL of us.  I don’t wear a mask because of a mandate.  I wear one because of you.  I had Covid and never want to experience that again.  I am vaccinated and boosted.  I got vaccinated for you and I wear a mask for you too.  I wear it so you won’t experience what I did.  I’m vaccinated so you won’t get sick.  I wear a mask so your children won’t get sick or your elderly parents, or anyone you know with health issues.  I wear a mask and was vaccinated for you.  It’s time to show some gratitude by getting vaccinated and wearing a fucking mask!  The steps to get us out of this ongoing health crisis are so simple…get vaccinated, wash your hands, and wear a mask for fucks sake!  

So let’s be real…we are all part of a global community…a community threatened with extinction.  How do we care for one another?  Recycle everything you can, compost everything you can…make a goal of producing zero waste.  Buy less and waste less.  Don’t litter.  Don’t start fires.  Don’t hurt someone just because you can.  Be kind…even when it’s hard.  Practice the golden rule…treat others and the planet the way you want to be treated.  Give generously and anonymously…give for giving sake.  Believe the best about people and expect the best.  Remind yourself that the glass is half full.  Breathe. Smile more.  Laugh a lot…even at yourself.  Care about more than your own backyard.  Fight for those who can’t fight for themselves.  Stand up for what is right.  Protect children, animals, the earth…anyone you can.  Take care of children, animals, the earth, and anyone you can.  As Mr Rodgers would have said, be a good neighbor.

We are all interconnected.  What happens to one person happens to us all.  My actions or inactions affect more than me…they affect everyone.  So this year we have to decide what kind of people we want to be…the kind that take care of each other, or the kind who just do what’s best for themselves.  That should be a no brainer…so obvious…maybe not.  Let’s rethink our positions on issues and take a bigger view…bigger than me or my circle of people…a new, expanded, inclusive perspective.

Now wash your hands…get vaccinated…wear a damn mask…let’s take care of each other and rock 2022!

Happy New Year!

Follow me at karenraines.com

Instagram @karenraines11

What’s Up With God?

Church is a funny thing…funny strange I think.  It can bring people together or divide them like nothing else…except maybe politics.  I was raised Catholic and then in my late teens and 20’s I ended up going to an evangelical free church.  Unfortunately it was pretty far right and I was taught a lot of misinformation…maybe just lies…I’m not sure.  I ended up getting kicked out of the church, that I had been part of for 8 years because I’m gay.  I was on the staff of the church as a counselor and when I told the pastors, both of whom were my friends, that I was gay they took the key to my office, told me they couldn’t recommend that anyone come to me for counseling anymore and told me I’d have to make an appointment to get my things out of my office.  I lost my job and all of my friends.  It was a difficult time for me.  I couldn’t go near a church for years and even the topic made me crazy angry.  I felt rejected like I never have before…rejected by my friends, well they were supposed to be my friends…and rejected by God because they told me I was rejected by God…an abomination.  That’s nice from friends..makes you feel all warm and fuzzy…such a mind fuck.

After much therapy, I moved past the church stuff and turned my attention to Buddhism.  When you aren’t sure what to do about God, a religion without one is very appealing…and Buddhism has always made sense to me…be compassionate, be mindful, get to know your own mind and how it works…simple…maybe not simple but clear.  

Recently I felt like I wanted to be back in touch with some of the traditions and rituals of Catholicism and I decided to go and talk to a priest.  I read that the Pope has said that people are born gay, it’s not a choice, and so gay people should be treated with love and kindness…hmmmm?  So armed with that information I met with a priest here in Boulder.  I was nervous so I was more blunt than normal…I usually take sort of a serpentine approach to things that hard for me to talk about, and this topic is a loaded one for me…but no serpentine here, not that day.  I pretty much said…in a run on, one breath sentence, “I was raised Catholic but went to a different church in my 20’s.  I was on staff and when I told them I was gay they kicked me out is the Catholic Church going to kick me out?” And breathe.

What followed was the priest trying to convince me that the church would not kick me out even though I would not be able to have communion or any sacrament, unless I ended my marriage and was never in a relationship again…hmmm?  I have a hard time understanding how my leaving my wife and destroying our family would be a positive thing in any church. So “the tendency” to be gay isn’t a sin but my marriage is.  He said I cannot experience any forgiveness because I’m married to a woman.  He said I’m a sinner just like he is but that’s not really true…I’m like a “super sinner” or something.  Being gay is part of who I am not a casual choice for this month.  The priest said it’s a sin for people who have a civil union too.  But that isn’t the same at all.  People can choose a civil union because they don’t want to get married in a church, but they aren’t going to marry someone of the same sex.  You don’t get to tell me that who I am is wrong or that I’m a sinner because of who I am…if God made me then I am not made wrong.  None of that is loving or kind and not at all accepting.  He kept saying I would not be kicked out but everything he said made it clear that I might as well be.  That would be more honest anyway…so hmmm…I can attend church but I can’t be forgiven because I am legally married to a woman.  I could be forgiven if I destroy the lives of my wife and my family…that seems super fucked up. 

I love Glennon Doyle and have read all of her books, and a few of them, more than once.  In Love Warrior she says, speaking to her Sunday School class, “I explain that my idea of heaven is the completion of the scattered puzzle – but I ask them not to wait for some other-worldly reunion.  I ask them to bring heaven to earth here and now – to invite the Kingdom of God today – by treating every last one of God’s people like kin.  I tell each of them, Be brave because you are a child of God.  Be kind because everyone else is too.  We belong to each other.”

Continuing, she says, “I teach them that they are loved by God – wildly, fiercely, gently, completely, without reservation.  I promise that there is nothing inside of them that they need to be ashamed of.  I become a megaphone for the still, small voice that was drowned out so early for me – the voice that says to each of us You! You are my beloved!  I made you and everything you have ever been or are or will become is already approved.  Nothing you can ever do will make me love you more, and nothing you can ever do will make me love you less.  That’s finished.  So stop hiding, stop waiting, and come now!  Every time I look into a ten-year-old’s eyes and promise her that she is good and loved so she never needs to go underneath to breathe, I know I am speaking to my ten-year-old self.  Don’t hide.  You are safe here.  You belong, precious one, after all.  Do not be afraid.  Remember” (p. 232).

Glennon Doyle is talking to her Sunday School class but I don’t hear it as a ten-year-old.  I hear it for my 30 year old self being kicked out of the church and being told that I was unacceptable to God…unlovable because I’m gay.  I remember the first time I read this passage thinking, “I want that.”  I wanted what she was talking about but I didn’t know how to get it.  Now I see it’s always been there I just let other people convince me it wasn’t for me…it belonged to them but not me…God belonged to them not me.

So let’s be real…The priest and the Catholic church say I am a sinner, supposedly just like everyone…except sin is something other people do but it’s who I am.  You commit a sin…I am a sin…hmmm?  We can disagree on things like politics, the weather, sports but no one gets to disagree with who I am…with my identity.  I don’t get to disagree with straight people being heterosexual and tell them we just have to “agree to disagree…but I still love you.”  I don’t think so…that’s not any form of love or any form of a relationship that I want, ever.  None of that even makes sense…how come people can’t see how ridiculous that argument is?  People can be mean when they feel threatened…I’m not sure why I’m a threat to anyone…maybe I don’t need to understand why.

But let’s be real…I made the mistake once of believing I was condemned because “Christian’s” said I was. I let them judge me and I believed them when they said I was unacceptable to God.  I can’t go back there.  I will not allow myself to be in that tortured place again…I am worth more than that…and I worked too hard, and spent too much on therapy, to allow myself to be treated as less than others.  All you LGBTQ people out there are also worth more than that…anyone who has ever been on the “outside” of whatever, is worth more than that.  No one gets to define who I am or quantify my value based on their beliefs and opinions.  That is NOT love!  And it doesn’t matter how many times you tell me you love me, I know you don’t.  You can deceive yourself but not me…not anymore.

Anyone

In October I went to the Mayo Clinic for thetop expert opinion about my elbow and why it continues to hurt so much. I went at the recommendation of my PT and another orthopedic surgeon. I was nervous and torn between wanting to go and get help and being terrified of what they might say. The short version here is that there’s nothing to do. The words hit me like a punch in the gut. After the appointment I couldn’t talk about it and I didn’t want to. I was going to talk about it on a podcast but I couldn’t. I couldn’t talk without sobbing…that’s more vulnerable than I wanted to be. So I thought I’d write about it but no words came. I just felt broken. Finally the words of this poem came to me and I am finally ready to share what my Mayo Clinic visit was for me…how it impacted me…how I felt…how I feel. Although it may seem like a criticism of the doctor I met with it really isn’t meant to be. He was just giving his expert opinion…an opinion I asked for…although I hate when a doctor says, ”If you were my mom…” Seriously,. You are not young enough and i am definitely not old enough…just needed to clear that up. I call this poem “Anyone.”

Can you see me? 

Can anyone really see anyone?

Not the “should” of me

Not the “ought” of me

Just me

The scared, vulnerable 

Emotionally raw

Hurts to be touched

Skin feels painfully new…me

To be loved we have to be known

And to be known we have to be seen

Can I bear being known?

Being seen…exposed at all the most raw places


You enter quietly

Your smile is warm

Your eyes soft and kind

But you don’t see me

You look past me

Perhaps gazing at what comes next on your schedule

As the door closes I feel trapped

Trapped by inertia 

You causally deliver the news

There is nothing to be done

Any questions?

Just one…what the fuck!?


You don’t see me

Not really

You don’t see that you just broke my heart

Or the tears I struggle to contain

You don’t see the impact your words have

The distance traveled

My last hope packed with my suitcase

For 10 minutes of your time

Tests not even reviewed 

Why not save me the long trip

And the broken heart?


You deliver the same news

Multiple times a day…nothing can be done

This is routine for you

You’ve heard it all

Seen it all

Matter of fact

Next….please

This is nothing to you

Another day at the office

But for me

This is everything 

A last hope

A frantic prayer

A desperate plea

You don’t see me…

You just broke my heart

And you don’t even know


Do you see anything beyond

My “complex history”

Me….

The person behind the narrative and tests

Because I am here

I feel insignificant 

Dismissed

Is it too complex or irrelevant…to everyone but me

I want to feel good

You just assured me I won’t…

It’s not going to happen

Can anyone help me?

Can anyone see me?

Does anyone care?

You say I’ll get used to it

I’ll manage…really?

For all practical purposes 

I’ve lost my arm

Is that understood?

Why can’t anyone see me?

Is there anyone?

Please I need help…someone

Anyone


The shock has worn off

And my emotions want to breathe

To feel it all…let it surface

Probably erupt 

Even though I don’t like to feel it all

I want it all numb

My body

My mind

My spirit

Mostly my spirit…because it’s crushed

If I don’t feel anything

I’ll miss everything…pain…and joy

Everything 

I still struggle

Still not an obvious choice

But I dip my toe in and try…I feel 

Stuck

Stranded

Alone

Trapped

No one to rescue me

To fix this…fix me

Anyone?

Send me someone

Anyone

Anyone at all?

Nope…no one

The Strongest Person I Know

The Olympics are one of my favorite things, especially in summer.  When I was a pre-teen, I wanted to be a professional basketball player and an Olympic swimmer…there was no WNBA back then and no women’s basketball in the Olympics so my options were limited. My 12 year old self had a crush on Shirley Babashoff, a hot, young, US swimmer , in 1972.  I’m going to quickly acknowledge that I was not good enough at either sport to be a pro or an Olympian but I sure did dream…a lot.  If just dreaming was enough I would have been an Olympic gold medalist and a Milwaukee Buck. 

Aside from Tokyo having record numbers of COVID cases and no spectators allowed, the biggest news has been Simone Biles…although Katie Ledecky is now the most decorated female Olympic swimmer of all time.  Simone Biles is 24 and already the greatest gymnast of all time…24!  And then she struggled…and struggled some more…and pulled out…and then the backlash.  The cries that she let her team and her country down, that she just quit, didn’t really try…all because she was worried about her mental health and her safety.  Naomi Osaka dropped out of a grand slam tennis tournament for the same reason and she was criticized as well.  Why aren’t they stronger?  Why can’t they set their own needs aside for the good of the team?  Muscling through will be the best thing for her…..whoever “her” is at that moment.

Do we really see women as weak?  We can’t possibly be that ignorant or arrogant, can we?   The gender that produces human beings while at the same time participating at the highest level of sports?  I’d like to see a man do that, and not bitch about it.  Are we really that blind and unaware?  The lack of support for female athletes (and really for women) makes me think they’re lucky they aren’t forced to compete in their sport with a baby strapped to their back.  

A few years ago I read an interview with Jason Garrett, the then coach of the Dallas Cowboys.  He was being asked questions about an injured player who continued to play despite a broken bone.  After I read that I wrote a Poem called,  The Strongest Person I Know.  

Playing football with a broken bone

Elicits the response…

“He’s the strongest person I know”

I want to be the strongest person you know

Doesn’t complain

Copes with anything

Plays through the pain

Always finds the positive

Pushes forward no matter what

No sign of weakness

No pain no gain…right?

The strongest person

Doesn’t feel

Doesn’t allow

Doesn’t sit with anything…no time

Must keep moving…distracting

Too many unfelt

Unexperienced

Unrecognizable emotions

Can’t be the strongest person

And be present with pain

With disappointment, confusion

With grief, gut wrenching sadness

The strongest person doesn’t get lost

In my mind it’s all or nothing

The strongest…or the weakest

No room for anything in between

This won’t stop him

He’ll be back

She never quits

Nothing will stop her

She will always push, always do, always be a winner….

Is there a different perspective?

A bigger view…

The strongest person I know

Nothing will stop her…from sitting

She’ll never quit…being with her feelings

This won’t stop her…from being present

Even though it’s tremendously painful

The strongest person I know

Is content to be who she is

Fully human and frightened

She’s afraid but she stays

She’s confused but she stays

Feels lost but she stays…no excuses

She’s fearless

She’s the strongest person I know

Why do we have such messed up ideas of strength?  I’m not sure where they come from…well we do value white males more than anyone else…so there’s that.  I think women are judged by what people think a man would do in the same situation…why can’t she be more like a man?  That may not be said out loud but we can hear it in the critiques, in the judgments…but we never say we think a man should be like a woman…that’s so offensive to them.  A man being like a woman would mean that you’re gay, right? Isn’t that what we think and the assumption we make? You play like a girl.  The mere innuendo is an insult.

Where did we get all these biases that we seem to have?  And it’s not just men.  It’s woman as well…there are many women who think that men are superior and that women should defer to them.  Some of those views I blame on religion.  I don’t believe in any way that women are inferior to men…different yes (thank god) but not inferior.  Bible verses that get taken out of context allow men to control women…submission applied generously to women but never men.

Why are we reluctant to talk about our mental health or to ask for help?  I think mental health issues are seen as weakness…as if you’re weak if you’re depressed or anxious…as if COVID isn’t enough of a reason to be depressed and anxious. Mental illness gets linked with homicides and suicides, just think about school and workplace shootings..  Why don’t we see the ability to know ourselves and communicate honestly about our struggles the greatest strength of all…a fucking superpower.  It’s that honesty that allows us to be vulnerable with each other and really love each other, scars and all.

Simone Biles is going to compete again on the beam.  I hope it’s not because she feels pressured.  I hope she’ll be safe…I’ll probably know before I finish this blog…and I do.  One of the announcers said that Simone Biles didn’t look nervous at all yesterday….I disagree. I thought there was a hint of “what if” in her eyes…what if I fall or can’t do this anymore or don’t want to?  Who am then?  Will I still matter?

The US women’s national soccer team will play for a bronze medal…not gold. What is the matter with them?  I can tell you what’s the matter with all of them…they all have the same thing…they are human beings, not robots.  Human beings just doing the best they can on any given day.  And unfortunately it is painful to be human, and to have your humanity exposed to others….or the whole fucking world.

Instead of judging these women, we could show compassion as a first response.  If I’m upset, just imagine what they are feeling and thinking..the loss, disappointment, sadness, uncertainty.  We could give them the love and respect they deserve.  Because as much as we may want to judge them we aren’t them….and although we act like we do, we have no idea what they are going through.  I wanted to be a champion and couldn’t because I wasn’t good enough….they are champions, many times over, and still have struggles.  We all struggle in the same way….it may look different, but we all doubt ourselves all the time…we just don’t have the whole world watching us and telling us we’re right or wrong…based on their own judgment of us.

Some of the pressure women feel is from trying to prove their worth over and over again…endlessly it seems. The world doubts us and we doubt ourselves.  The  American women’s beach volleyball players wear a necklace that says, “I am enough.” Why do we need that reminder?  Maybe because the world questions who we are and our relative value daily…more accurately, many times a day.  Am I enough if I lose?  What if I decide not to participate because I can’t or I don’t want to?  Do men question their value or worry they will be judged for losing or not trying or quitting…or disappointing?  I suppose some do….some of everyone does.  We are subject to doubt because we are subject to being human, with all the emotions and mental health issues that involves.

Let’s Be Real…When we judge ourselves by what other people say and think about us…it’s as if what they say is more true than what we know of ourselves.  The Bible has a well known quote attributed to God… “Be still and know that I am God.”  Be still and know…be still and know.  Knowing comes in our stillness, our silence.  I am…when we are still and know part of what we know is who we are…I am. And I “Be” (with a Capital B) when I act and live in connection to what I know…what I know of me, what I know of you, what I know of the world.  What I know, not what you say I know…or really what you say at all…because you are not me.

We are constantly going through the labor pains of rebirthing ourselves because we are always changing….becoming a truer and more honest version of ourselves.  And there is strength in vulnerability…in honesty..in letting ourselves be seen and known, and ultimately, loved.  In honoring and speaking our needs…courageously showing our humanity…..That’s the real strength…the true superpower.  And we all have it…the ability to be fully human and to embrace it all.  It’s a superpower because it takes superhuman strength to be vulnerable and allow ourselves to be seen, scars and all.

We need to redefine strength, because real strength is fearless…that is, fearless in the, “I face the truth and move forward even if I am afraid” kind of way…not the “I’ll play with a broken bone or mental health issue even if it means I may harm myself permanently” kind of way.  Real strength is the ability to stay with whatever arises….even when it hurts and we hate it…we stay…even when it feels overwhelming…we stay.  Even when we aren’t sure we’ll survive the pain…but in staying we Become…Because…

The strongest person I know

Nothing will stop her…from sitting

She’ll never quit….being with her feelings

This won’t stop her…from being present

Even though it’s tremendously painful

The strongest person I know 

Is content to be who she is

Fully human and frightened

She’s afraid but she stays

She’s confused but she stays 

Feels lost but she stays…no excuses

She’s the strongest person I know

She’s fearless

And then she emerges and places that hard earned bronze medal around her neck…proud she stayed and displayed her full humanity for the world. Let’s learn from all these women what it means to be a true champion.

Grief and Bargaining – “Have I Got A Deal for You”

I have been absent for a couple weeks as I have been recovering from elbow surgery. Now that I’m feeling better, I’m back to my blog and podcast.

So here we go with Bargaining…Bargaining seems almost funny in the way I think of it…like the game show “Let’s Make A Deal” from when I was a kid. People dressed up crazy and if they were picked they got to choose between door #1, door #2, and door #3…then they’d have something that they won already but they had to decide if they wanted to trade it and take a chance on what was behind the door or inside the box…it was kind of a goofy show but sometimes it was cool to see what people won. People on game shows want to bargain…they want a deal and they want the most they can win…not $5,000 they want $10,000…not $100,000 they want $1,000,000…they want it all…we want it all. Death and loss are reminders that there are some things that aren’t up for negotiation.

We think of bargaining generally when someone we love or when we ourselves are diagnosed with a terminal illness. We plead to have our loved one healed completely and live a long life…. we ask that we be taken instead of them…especially a child. If we’re sick then we try and bargain with promises, heal me and I’ll never do drugs again or drink again or eat meat or I’ll lose weight or gain weight or whatever we think is the best deal…for us of course….it’s all about us…not in a mean way, but it’s our own pain we want to ease.

We may become more religious at a time of a crisis…we want something to be more powerful than whatever crisis we are enthralled in…so we ask God to take away the illness and restore our loved one to health. We may be angry with God as we bargain, or we take a milder tone, so we don’t piss God off more…well that’s my thinking. We think that illness or pain are a punishment and health or lack of pain as a reward…in which case there are winners or losers…if you win and get well you are favored by God or whoever you were pleading to. If you do not get well or the pain does not end, then you are not favored…and that sucks. There is some kind of crazy logic out there like that…for example, in my own head…I have struggled with that thinking for a long time…and still do sometimes.

In my 30’s I had to deal with a lot of emotional baggage from childhood…physical and sexual abuse and I was going through a divorce with 3 small children, the youngest an infant. That thinking of not being favored or liked by God the same as everyone else, or even more than everyone else…who wouldn’t what that. That thinking plagued me for several years (and sometimes still does) as I tried to make sense of my past.

I was a part of a church as I was going through the divorce and people would say, “Oh, God must have a special plan for you because of all you’re going through.” Fuck that shit is what I said…although I doubt it was out loud. I don’t believe in a God or a Universe that puts someone through horrible pain just to make me be how you want me to be…so much for free will. Or they’d say, “God doesn’t give you more than you can handle.” Fuck that too! I do not believe in a God or Universe that causes things or prevents things…shit happens. If God causes and prevents things then God is capricious and plays favorites.

I had to learn that the things that happened to me are not me…they are a part of me, and they helped to shape who I am, but they are not me. I am not my story. My story doesn’t define me, and it doesn’t dictate what is possible in my life.

In my experience people turn to religion, or God, as a way to feel control in a situation you are clearly are not the boss of…and that is scary as shit…go to church more, pray more, give more, anything to try and change reality…to find some ground in our groundlessness. Apparently, I am a big believer in trying to control what I can’t…it takes time to wrap my head around the fact that I am not in control of all things…not even most things…very little in fact.

Bargaining also applies to losses with chronic pain. We try and make deals with the Universe or God or whatever is out there or whoever we look to for a bargain…let this be the last surgery…please don’t let anything be broken or torn…please ease my pain…please, please, please…help me…I need help here. Bargaining can be a temporary distraction from our pain.

I have had many elbow surgeries…my wife says 9 including the one that I just had a couple weeks ago…regretfully I think she’s correct. My elbow replacement was loose and needed to be revised…my replacement needed to be replaced. So, I promise…if this one can be the last, I will never lift anything heavier than a paper plate with my left arm. If this can be the last one I won’t fall anymore (as if I wanted to fall when it happened) or if I do fall I’ll keep my left arm in the air so it isn’t touched…as if I can do that in the middle of falling. But I want to promise something so that things can be the way I want them to be…and in this case it doesn’t seem bad or wrong to want this…perhaps controlling but not wrong…I want a bargain…I do, I do, I do want a bargain.

Father Richard Rohr, a Franciscan monk, writes, “Our wound is our way through.” I have been thinking about this quote for a few weeks now…I think it’s another way of saying that we have to face what is…face what is reality….and to even lean into our woundedness so that we can grow to understand it, instead of fighting it.

By my “wound?” Does he mean just my physical woundedness or does it include the wounds to my soul or my spirit? Richard Rohr goes on to say that, “God sees the wounds and sees them not as scars but as honors….” Now as spiritual or evolved or whatever kind of person I see myself as, I don’t see all my physical disabilities and pain as an “honor.” “Honor” means “high respect, great esteem…to regard with great respect “and that sounds good and if it’s true and God regards me with great respect, I’m grateful…surprised but grateful….still not sure I’m happy about it.

He says, “We need to look for our shadow, what we dismiss and what we disdain. Look at what we’ve spent our whole life avoiding.” I already know that I have avoided the issue of chronic pain and the label of “disabled” or “handicapped” and I know that’s because I feel less than everyone else when that label is attached to me. I have worked hard to accept those labels…sometimes better than others…and to try not to fight what is…which is often my specialty.

The fact is that I am differently-able or handi-capable as I like to say…my kids hate when I say that…I heard it in an episode of the old sitcom “Reba” and I think it’s funny, but not at anyone’s expense. Disabled feels like a put down. “Dis” is a Latin prefix meaning “apart,” “asunder,” “away,” “or having a negative or reversing force.” Thank-you Merriam Webster for that uplifting definition.

I don’t want to move too far from the topic of grief, and in particular, bargaining, but the word “dis” is offensive to me. I’m not sure I like “differently able” because it still feels like being set apart…not being normal. And we can all say, “But really what’s normal anyway?” But if you’re the “not normal” you know what “normal” is and so does everyone else.

So, here’s the thing…We say we don’t discriminate based on sex, age, race, religion, culture, sexual orientation, economic status, education, physical abilities, mental health issues, substance abuse, or developmental abilities, or all the other things I know I’m leaving out…but we do! Seriously we know we do!

If we really valued diversity like we say we do, then, for example, the norm would be handicapped parking everywhere and curb cuts, all showers would be wheelchair accessible, there would be touch pads to open all doors, bathrooms would all have larger stalls with rails and higher stools, there would be alternatives to stairs everywhere, seating in restaurants would accommodate everyone regardless of their size, shape, or ability…if all of that was just “the norm” then we might get close to acceptance. As it is those things only exist sometimes, why? because we don’t care.

Just look at mask wearing. It has become this huge personal freedom thing when really, it’s just caring for each other…we can’t even manage that. We only care when something affects us or someone we care about, otherwise we don’t even notice. We bargain for what we care about…what impacts us.

How can we even get close to compassion first when we don’t even see each other…really see each other? When was the last time we put ourselves in someone else’s shoes and tried to imagine what it would be like to be them? What about the 302,000 people who have lost their lives, have we tried to put ourselves in the shoes of their families? I imagine they tried to bargain and save the life of the person they loved. We have been missing compassion in our country…our world for a long time…maybe especially the last 4 years.

Loss scary and as much as we try…and we try…bargaining does not work…things may turn out as we want but it isn’t because of our exceptional bargaining skills or a deal we think we’ve struck. People are hurting, we are hurting…let’s do some walking in different shoes…

So here’s the thing…Compassion first is the deal of the day…today and every day.